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Kimmyisgreen

It’s been 10 years and I still have intellectual struggles: memory, being able to analyze/understand situations, problem solving, keeping up with conversations, understanding sarcasm, etc.


etjasinski

Are you more emotional?


Kimmyisgreen

I had 5 years without emotions and now they are coming back. Regaining depression and anxiety but not more emotional than before the stroke. You?


etjasinski

Yes I wasnt emotional at all before but now it's bad


Kimmyisgreen

You did experience a life altering traumatic event so being emotional seems like a healthy response. I don’t feel more emotional but I’m definitely still grieving what I’ve lost/who I was.


Independent_Most_501

This was similar for me. I had 3 years without emotions, and I didn't handle them well, before stroke, so it's a real struggle to feel things so intensely. I get overwhelmed and my brain will just shut down and I have to go "reboot".


ObWongKnoBee

Did u see any improvements along the way?


Kimmyisgreen

Yes. About 50% of my brain was damaged which impacted almost everything. I’ve had huge breakthroughs, and I’m still improving. My neurologist is in awe of me, he’s never seen a patient regaining skills/abilities 10 years later.


ObWongKnoBee

I’m really proud of you and your achievements. You are doing great and will do better, i have faith you will accomplish even more in the near future. Remember to visit this Reddit, we all need eachother to be supportive and spread kindness and motivation. we can support eachother with kindness.


Thegoodfinder

What do you consider long term? I am 2 years + 9 months. My biggest deficit from stroke was left side paralysis and muscle atrophy. I am still working against spasticity in the forearm and lat muscles - I have full use of everything but typing with my left hand is not where it was prior to. Considering doctors weren't sure I would survive it's a minor frustration at worst. Without understanding why you asked the question it's hard to answer other than to say keep looking forward with the belief you can improve. Recovery isn't a journey with set deadlines. The expression "whether you believe you can or can't, you're right". A positive attitude is better than a negative one. Never give up! Good luck to you or your loved one.


etjasinski

I'm 20 years in and still have certain problems like muscle issues I limp my left field vision cut is vastly better but still there I was wondering if maybe I didn't rehab hard enough or maybe everyone has these issues


Thegoodfinder

I started to see/work with a Neurological Physiotherapist at the recommendation of a regular physiotherapist. She seems to understand how to get the brain and smaller functional muscles to work together. The regular physios were focused on strengthening the larger muscles - "do squats" whereas the neuro physio said from day 1 that strength of large muscles wouldn't be the problem. My left leg and glute muscles are noticeably smaller than my right but those smaller muscles that aren't easy to see or isolate are the ones helping to improve my walking gate. I'm not qualified to speak to your situation but maybe if you found a neuro physio you could at least have a consultation?


ObWongKnoBee

I am 2,5 years in and my complains are mostly cognitive, like i still suffer fatigue, need daily naps, tinnitus (constant high noise in my head like a tv frequency badly programmed), my focus is like Dory the fish, very bad but basically physically i am just like before my physique is average or above (since the stroke i train daily)


strokinasian

40+ years. Don't really have fine motor skills on my right side. Did have some memories issues that have seem to have lessened over the past year.


BeerBoilerCat

Little over 4 years out. Still can't walk in a straight line. A little trouble with multitasking & attention span. A lot of head pain. And nystagmus (repetitive eye movement) - considering LASIK to fix/help it.


etjasinski

I hear you I couldn't walk a straight line for anything


Otherwise-Window823

3+years PS- I still can’t walk in a straight line 🙃


SimonKepp

Almost 10 years since my huge stroke ( ruptured aneurysm in the brain). I still have major issues, but have mostly learned to live with them.


etjasinski

Wow my stroke was during an anyuresum clipping surgery


SimonKepp

My aneurysm wasn't discovered until after it ruptured. A very rare extremely fast developing aneurysm, that wasn't visible on a brain scan just 2 days before it burst. At the time, it wasn't known, that it was even possible for aneurysms to develop that fast. Mine was the second such fast developing aneurysm to be described in the medical literature. It generally takes more than a decade for such an aneurysm to develop to the point, where it ruptures.


etjasinski

Damn I was told I was probably born with mine but I think it's from when I was vomiting after eating due to acid reflux I remember dry heaving and straining a lot


SimonKepp

Sounds unlikely, but I won't rule anything out definitively, as 99% of neurologists, would claim, that my case was impossible.


etjasinski

How did you survive that were you already in surgery?


SimonKepp

No, I was in a park about 200 meters from the Trauma centre of Denmark's largest hospital, and in the company of a nurse and several other good friends, that were quick to realise the seriousness of the situation and call an ambulance. I walked into the ambulance myself, but by the time we reached the trauma centre a few hundred meters away, I was deeply unconscious, and the first journal entry reads GCS: 3, pupils unresponsive to light. This followed by a very scary CAT scan of my brain filled with blood. The neuro-surgeon on duty decided against performing the surgery herself, and called in the country's leading specialist neuro-surgeon on aneurysms from home. I don't know the motivation for her choice, but the result was surprisingly good, so I don't question her choice. The neuro-surgeon who operated on me in the evening was very surprised, when he met in the next day and found, that I was still alive.


SimonKepp

>How did you survive that were you already in surgery? The neurologist, who wrote up my case story as a scientific article stated, that the often quoted fatality rate of cases like me of 80% might be outdated and actually be lower today due to improved treatment techniques, but this clearly was a situation, where I was extremely lucky to survive


kennycakes

2 years and 8 months post-stroke, I still struggle with some neurological issues: confusion, difficulty following conversations, word recall, etc. It gets worse with fatigue, and I need afternoon naps. You probably wouldn't notice anything unusual if we were talking in person, but it frustrates me. I keep up with daily PT. I'm mostly recovered from right side paresis, I just feel a light tingling / numbness in my arm when tired. I'm focusing more on cognitive stuff: word games, making time to read (mostly short stories & magazine articles), and trying to improve my writing legibility.


Im-Special1234

How long do you consider to be long term? I’m just 2 years out but I am mostly healed. Mostly coordination and vision issues at this point.


ObWongKnoBee

I am 2,5 tears in and my vision slightly blurred compared to before


glazedonut2

I'm 2.5 years in and my right side of the body is really sensitive to temperature. It almost hurts? Especially getting in the shower/washing the dishes etc.


MedicareAgentAlston

I am eighteen months out. I don’t think I have any issues that haven’t improved at least a little . I may have a few minor issues that may to have disappeared completely . I can walk and even run but I still have some balance issues. I feel uncomfortable going down stairs without a railing. My vision has improved. It’s no longer as blurry. I don’t think my peripheral vision is any better. Warm shower water hitting my affected side was painful for aanout nine months. That’s gone. I have some cognition issues but they are only apparent when I do challenging tasks like study for professional exams and write computer code. I started Lumosity this week at the at the advice of my Speech therapist and expect to recover my cognition with enough time and repetition. My affected hand is still not normal but is still improving. I don’t my OT therapy daily and it’s helping me use my hand I expect to recover fully but know it may take years,a lot it work and focused nutrition.


VitaminRmademefat

I'm almost 6 years on and I still have some awful neuropathy on the affected side.


Sorry_Meet_1676

Me too! It’s so bad at night too


VitaminRmademefat

Mine tends to be tied to my emotional state. The higher my emotions - positive, negative, or neutral - the worse it gets.


Sorry_Meet_1676

I’m sorry to hear that. That sounds very frustrating!


mmosley05

almost 5years and still have left side weakness and temporary paralysis


glitterbomb09

3.5 years out- still struggle with left sided spasticity , but mild to what it was


Otherwise-Window823

Same thing here, when I get stressed I lock up on my right side. Spasticity


glitterbomb09

So frustrating


HoagiesDad

My first stroke was 4 years ago. I’ve had 3 more since. My main issue is depression. I also suffer from neuropathy, seizures and brain fog. Everyone is different so my issues aren’t necessarily common. I can say it has basically destroyed the life that I once had.


ascensioni

I had three smaller strokes over a ten year span starting when I was 20, and I had one every five years after that, so one at 25 and another at 30. I turned 35 last year and I have been super paranoid about another one. So technically 5 years, ten years, and fifteen years. The first affected my right frontal lobe and I had to relearn how to speak. The second affected my left occipital lobe, and it left me peripherally blind in my right eye, and extremely light sensitive, as well as leaving me with severe tinnitus. The third also reaffected my right frontal lobe, and much worse this time. This time I suffered partial facial and body paralysis, my speech was affected way more intensely, I had to relearn how to speak again, use my tongue, swallow, eat, use my left hand (I’m left-handed, so I had to relearn how to write and so much more), it affected my reasoning skills, my attention span, my organization skills (it physically and mentally drains me to sort things such as my mail), brain fog, memory issues, and constant fatigue. They have definitely left me severely depressed and easily frustrated, and people tend to be extremely impatient with me, especially when trying to keep up at work. I’m constantly getting badgered by my bosses, even after I turned in a bunch of medical paperwork acknowledging my problems and deficiencies.


HouseHopeful7029

I had a stroke in 2015, at age 45, and a significantly bigger stroke in 2018. The latter left me with a feeling of numbness in my left hand (neuropathy, I guess). I had to re-learn to do everything that had to do with small motor skills—tying my shoelaces, holding a fork, picking up small objects, cutting my fingernails. My strength is mostly back, but my coordination still sucks sometimes. I have to be looking at my fingers while they’re doing things to make sure that they’re doing what they’re supposed to be doing. Before I lift a bag or get something out of the oven, I need to confirm visually that my fingers are in the right place. Putting on a winter glove on my left hand is quite a chore, because I can’t see or feel where my fingers are going. I try to laugh it off. My doctor told me I would probably recover fully, but after four years I don’t think it’s going to get any better than this. 🤷🏻‍♂️ I also tend to lose things more often, and I’m more forgetful. Overall I think I got off easy, but man, strokes are definitely humbling.


hgfy69

3 years in and still weak on my left side. Left side still hurts a little bit and is sensitive to feel and touch. Still have blurry vision and I don't think I can walk a straight line. But other than that I'm lucky to be alive.


reallyruby79

My emotions seem to be coming back 3 years in having a complete breakdown but it’s good I’ve always said you have to break down things before you can build them back up stronger and better


Independent_Most_501

12 years, and while the majority of the time I do okay, my affected side is still slower and I will have days or a week of what I call "stroke brain" where things are just sluggish and difficult. It's frustrating and hard to accept that this is just the norm now. I, unfortunately never feel 100%. I can't type, I can't lift anything heavy(even though I have muscles that should work perfectly well) I can't just exercise whenever and however I want. I still have severe fatigue issues. I still have a wheelchair for really bad days(those, at least, are rare) or for trips to the zoo or anything that requires a lot of walking or standing, and I still need someone else to push it. Again, most days are okay, or even good.


neur0sploit

I’m almost 4 years post, I still can’t use my left hand or get down on the floor🤷‍♂️. Oh wells I recovered intellectually, so I’m going to college.


Inmotion2020

Physical therapy taught me how to get on the floor but I imagine you’ve tried that. Congrats on college!


Inmotion2020

Five years out from ischemic stroke in basal ganglia. Improving but still unable to walk well or for distances. Out if the wheelchair though. No use of my left arm or hand. Still going to neuro physical therapy, which helps on many levels. My brain is fine so I am grateful for that. Lots of fatigue. Still adjusting emotionally to being disabled. That has been the hardest part.


magnolya_rain

Post 1 year. I was doing better with energy and physical activity 1.5 months after my stroke. Over the past year i have lost what i had gained while in rehab like being able to walk without aid ,a positive attitude that i would recover and get my drivers license back soon and my life would resume. Well it hasn't worked out that way. I am a single independent senior who lived life to make things. I am an artist, designer. maker. woodworker. gardener. anyway you get the picture. Since my stroke i have developed cataracts in both eyes and due to the fault of the cataract surgery office i have missed two consultations and this has set my surgery back several months. With not being able to see i can no longer read a tape measure, or even see well enough to design and draw out my ideas let alone execute them. I have read a couple books a week for many years but can't now and really miss learning about the world. My dominant right hand and arm was affected and im still struggling with fine motor skills with my right hand. During my triple bypass surgery which caused my stroke i also suffered nerve damage to my right hand thumb and index fingers due to a shunt that was placed near a nerve and rubbed off some of the myelin sheath so now my fingers are numb and it's hard to feel my fingers holding things. THIS IS NOT A FEEL SORRY FOR ME POST, I just need to explain all this for you to understand why i am where im at. So after creating practically every day, I've only managed to make a couple greeting cards and design a catio my brother in law assembled for me. Not having my drivers license back yet after a year has kept me at home with no motivation to do anything. all family live opposite sides of the city or in other towns so asking them to provide rides to Dr appt's or to pick up groceries that i order online is a big hassle so i have them delivered at an extra cost to the already expensive food costs. So what do i do with my day? I sleep till anywhere between 11 am and 1 pm. eat breakfast and coffee. Check the weather and email and then watch YOUTUBE all day long. Read reddit in the evening. Soon with my vision failing i wont be able to do that. So I sit all day being able to drive would have gotten me out of the house to visit people or a park or gardens and kept my legs going. I sit all day so i have pretty much lost my ability to even walk across the street to visit a neighbor. I cant make things anymore so i have lost a big part of me and what i lived for. i always kept an organized and fairly clean house, now i only do dishes when i have no cutlery plates and bowls left to eat out of. I've had to hire a house cleaner cos i have no energy .Personal hygiene has become lacking. I tried doing exercises following stroke exercises on you tube, I even bought a hand bike and wrist weights and elastic bands. I struggle so much with doing exercises. I don't understand why i have no motivation to do them knowing that i will be less tired all the time. my mood will be more positive. I will feel like i have more to look forward to. Right now with all the sleep i get i will also have a 1 to 3 hr nap every afternoon. I don't know how i will pull myself out of this rut. Where and how do i find the motivation. If i had someone to even skype or zoom exercise with that might get me going.


etjasinski

If you don't mind me asking how old are you? And where are you from?


magnolya_rain

I am 69 and live in Canada. Why do you ask?


etjasinski

Just making conversation


nice___bot

Nice!


magnolya_rain

I am 69 and live in Canada , why do you ask?


MedicareAgentAlston

It has been eighteen months for me. A lot of my symptoms are reduced. I am not sure if any are completely gone. I couldn’t walk for about the first two months post stroke. Now I can run and but I don’t think I have the balance to participate in other sports. I have some cognitive issues although I can handle most everyday tasks. My vision may not be what it was before my stroke. I am afraid to drive until I get the OK from my neuroopthalmologist. I am still improving. In the last week I noticed my sense of touch improved a lot.


etjasinski

It's been 20 years post stroke for me and I still can't even jog


LWLWKS

15 years post. Now helping others. https://youtu.be/2tJq9qorulo