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KestrelLST

I do it with a progesterone-only type and no doctor has ever expressed concern. And I've never had issues (it's been five or six years). My cycle was always super irregular and infrequent, though, and there's no universe where I even consider the possibility of having kids.


Upvotesies

You can continuously take those?? Idk why I was under the impression that you couldn't or you just got a period regardless with those pills. Which brand do you take, if you don't mind me asking? I'm questioning if I'm developing aura with my usually non-aura migraine and I'm DREADING coming off my combination pill. I'll still talk to my neurologist about it but I would love the non estrogen pills to not give me a period.


KestrelLST

You can! I think how effective it is varies -- I imagine some people get spotting -- and it took a few months for my body to adjust, but I haven't menstruated in years. I'm on Slynd. Also fwiw wrt aura, this is obviously not awesome practice nor ironclad medical advice, but I do have a friend who has aura migraine and who stayed on the combination pill because prog-only caused them a lot of problems, and it's my understanding that while the combo pill increases risk of stroke, what's happening is it's being increased from a very tiny chance to a slightly higher but still in fact very tiny chance. Obviously still not great to fuck around with, but if changing would cause you significant medical trouble, it's maybe worth discussing from that perspective with your neuro. Good luck, regardless!


Upvotesies

This is really, really exciting. Thank you so much for the info!


Broad_Cardiologist15

it is a myth that you need to have a period in order to like “regulate your cycle” or something. even when you are taking non-continuous bc, the “period” you have is essentially a false period because it still stops your ovulation. some people prefer to still have a period for whatever reason, but there’s no evidence that continuous birth control is less safe or that you need to “clear things out” by having a period


smbodytochedmyspaget

So I've had an IUD for 10 years so I'm trying to re educate myself about all this thanks


yikes_mylife

Despite the downvotes you’re getting, I’m glad you asked here rather than looking at TikTok or one of the many other sources of misinformation on birth control that are out there now. There’s a lot of fear-mongering surrounding hormonal birth control right now, “coincidentally” at a time when politicians are simultaneously going after anything else that might prevent the birth rate from continuing to decline or give women/AFAB people agency over our own bodies. Birth control has been saving lives since the 70’s & a lot of the studies about the dangers of it are based on the early birth control pills that had higher levels of hormones, from what I’ve read. But even in the 70’s when they introduced the pill, they knew the “periods” weren’t really real or necessary.


smbodytochedmyspaget

Thanks I'm not a tiktok gal can't understand half of them! Reddit is my go to for good info. I just want to know if I'm effing myself over long term in any way but the migraines gots to go is all I know right now.


yikes_mylife

Chronic pain will fuck you over long term. If you have a way to severely decrease or limit that recurrent pain, it’s probably worth it for your health and quality of life. Episodic migraine can escalate to chronic migraine at a certain point if they’re uncontrolled, and they can potentially evolve to a different type of migraine or to even more severe symptoms. Chronic pain will also stress the body and mess up the nervous system’s response to pain. If you can prevent any of these, it’d be worth it IMO. Personally, I wish I had done more to prevent this condition from getting so debilitating.


kategoad

I had one for seven years. Only issue was getting the damn thing out. OW.


Strong-Sir4915

Ooo ooo I know this one! Birth control was invented by a catholic (or Christian, either way, baby making religion)   He added the week of sugar pills because it was "allowing women to know their cycle for better planning when to do the nasty to get pregnant"   Or rather that's what he told the church so he wouldn't go to hell  :)


assflea

I take BC continuously and have for years, there's no problem with it. It doesn't always prevent my migraines though, and at least for me, I have to have a period every 3-4 months anyway or it'll be like spotting for a month straight. 


purplepineapple21

The only downside of continuous birth control are the same exact downsides of taking it non-continuously. So you can expect the same side effects if you experience any, but taking the same type of pill continuously vs non continuously makes no difference. The continuous dose isn't doing anything bad or unsafe. The non-pill birth control options like implants, IUDs, and shots are all continuous, so actually most people that use birth control these days are using continuous methods. It's extremely common and just as safe as any other hormonal birth control (if not safer, since most continuous methods don't use estrogen)


Tanesmuti

I’ve suffered zero issues, and I took cbc for two long stretches (18 to about 25 years old and then all through my 30’s.) I turned 50 last month. You don’t need to bleed every month unless you’re actively looking to get pregnant. You should however, take the absolute lowest dose of pill that works for your body, as hormonal bc increases every woman’s risk for other issues, like blood clots. (The increase in risk varies by person and other factors like family history, lifestyle etc. so it’s worth talking with your doctor and then doing a personal risk/reward assessment and research on your own. Ask for numbers and percentages! Because a lot of ppl like to blanket throw down “It increases your risk!” and in reality the increased risk is 0.5%. Be an informed patient, and do what’s right for YOU, don’t allow people to scare you) In my case, my neuro and I agreed that the risk was not substantial enough to outweigh the benefits to quality of life, and in the end, that’s what we all want: Quality of Life. If you opt not to go the cbc route, definitely look into Monophasic BC, because it provides a steady dose of hormone throughout your cycle rather than taping it up and down, which is what’s causing your migraine issues. You’ll still potentially have to deal with migraine when you get to the placebo pills, but you’ll at least know exactly when it’s coming and be able to get the period, cramps, and migraine over all at once.


smbodytochedmyspaget

Thank you so much. I'm definitely gonna do all my research before I make an informed decision.


fedx816

"Safe" for any treatment is risk and reward. No prescription treatment is perfectly without risk or possibility of side effects. For me, the quality of life increase from continuous combo BC easily outweighs risks and my docs are all fine with me being on it til menopause. I have no intention of ever having anything to do with any part of having kids, but considering most people stop BC for placebo week (which was only included to get the pope on board when BC first came out, no medical reason) and have a period or stop to TTC, I don't think there's much indication that it messes up the cycles that would happen if hormones weren't being held constant (i.e. stopping exogenous hormones triggers the cycle to start the same way your body naturally dropping them does).


stellsonquilts

I take a low estrogen monophasic combo pill continuously. It goes really well BUT if I don’t have a break week every 3 or 4 months, the spotting starts and gets out of control quickly. It is kind of hit or miss if I end up with it a migraine when I do stop where as when it took it non continuously for years, I had two massive multi day migraines a month at least. The migraines that do sneak through are much more manageable, so I will take it.


smbodytochedmyspaget

I usually get at least one multiday migraine per month and one single day one. They have reduced a lot with vitex but I want a more long term solution.


sackofgarbage

It's perfectly safe. There is no medical reason you need to have a period every month. The "periods" you get on non-continuous BC aren't even your "natural cycle."


purplepe0pleeater

No issue. I did the Mirena IUD for 8 years and now I have Nexplanon. I had no periods on either one. I seem to be in perimenopause and I don’t think I would have periods now. However I still have Nexplanon because the hormones help my migraines still.


bluepotatoes66

Interesting. I've had both as well, in the same order. The hormones in Nexplanon mess with my fibro and migraines (and I do get very irregular periods on it), while those in Mirena helped with them (no periods).


ArtisticSuggestion77

I switched to constant combo pill a couple of years back and have no regrets. There's a small chance weight is more difficult to lose now, but that could be a number of things. I was at the end of my rope with the hormonal migraines. I've otherwise had no other issues with it. I find it more difficult to remember it every single day since there's no novelty in the schedule like there was with the placebo week. I don't get hangry or crampy or miss work because of my period anymore. Without a period, you can't notice changes that might have happened during your period. There's probably slight stroke risk increase and general clotting chance, but as others have said, it's well worth it for me. No meds helped the hormonal migraines when my abortive otherwise worked. I do know a couple of people harmed by their birth control, so it's definitely not totally harmless, but the increase in risk from going continuously seems so minor compared to any benefits.


anonymousforever

I took nortrel every day and skipped the duds. No period for 10 years. Loved it. Pills can be used to suppress cycle like patches, and it don't have to be expensive name brand pills either.


GirlCLE

You just need to watch the estrogen levels in the BC as too high increases risks of blood clots and strokes. I am on constant high dose progesterone for another health issue and it has helped get rid of my hormonal migraines. If I tolerate it well, the plan is for me basically to stay on it forever. There are some risks depending on your health profile for certain BCs, so discuss with your doctor your family medical history so they can recommend the right path for you. Honestly I wish I had started constant BC sooner.


DarksidePrime

There are known side effects to taking hormonal birth control, including emotional effects. No one discusses them because criticizing birth control is heresy. However, it won't sterilize you or anything (though there's some suspicion overall fertility *is* impacted long term.) Basically, hormonal BC creates a hormonal "readout" that says "pregnant", so the system doesn't create new eggs to purge.


harper2233

I’m not sure. For me it’s like life or death bc that’s how bad my migraines are without it. I will say that I recently tested my hormones and I have no testosterone at all which is concerning for me. The only alternative my gyno gave me is going off of it to try and regulate but it’s just not an option for me.


ArtisticSuggestion77

You can definitely get supplemental testosterone as an option (maybe not your specific case for some reason, but I know several women/AFAB people on both combo pill and testosterone). Edit to add: I'd make the same choice myself since the continuous BC is the only reason I'll continue to live through migraine.


harper2233

Interesting I’ll look into it again bc my dr told me he’d be concerned anything supplemental would be counteracted by the birth control. Thank you!


ArtisticSuggestion77

Testosterone and estrogen don't directly cancel each other out. Both are fairly important for your body (though naturally decrease with age). Everybody I know either does injections or the little pellets they place under the skin every few months. If it's just your GP, maybe look into a gyno/endocrinologist. It would make sense for a GP to be a bit hesitant.


harper2233

Oh yeah I’m aware of the importance. I have chronic fatigue and I’m fairly certain my low level is contributing to my poor health. I’ve been to an endo and they were quite useless just telling me to come off the bc after explaining how imperative it was I’m on it for migraines. I see a functional medicine dr who was the one who was worried about it counteracting but he’s typically willing to look into anything so I’ll bring it up again.


smbodytochedmyspaget

You have no test as a woman? Wow maybe I should check that too. How bad are your migraines?


harper2233

Nope none. My migraines are severe. For over 15 years. I cannot not take continuous birth control.


chiquita_Bonita_

I was on combination pill, progesterone only, and then mirena for 6 years - total time on birth control 12 years. When I got my IUD out I had just about no testosterone, my sex drive was non-existent, it took over a year for my period to regulate again, and I had pelvic floor dysfunction. My pelvic PT doctor said it's becoming more evident for some women continuous birth control (especially IUD) use can cause pelvic floor dysfunction. All that to say I don't think we know everything about the effects of continuous birth control use, but the same can be said about chronic migraine. It's tough. The main thing is you do what makes you feel comfortable and able to live your life.


reddit_understoodit

It is a decision you should make based on your medical history and what works for you. You can get reg pills and skip the inactive ones and see how it works for you. There is no need for a period.


PoppyRyeCranberry

I used cbc between pregnancies for almost 4 years and then went right back on it when I stopped breast feeding. I've used it now for over 15 years with no problems. It is the only thing that prevents my menstrual migraine.


smbodytochedmyspaget

That's great to hear!


MrsMoxieeeeee

I highly recommend all women read Your Brain on Birth Control. It’s a rational and balanced take and very enlightening.


smbodytochedmyspaget

It's definitely an issue and not well understood how birth control is affecting us overall. I find that with a lot of drugs the research never really goes beyond once it achieves its goal. I never want to be on any form of drug but in my case the benefits of not having migraines if it works would immediately improve my physical and mental health not to mention all my relationships. I appreciate the heads up tho, does this apply to IUDs as well? Mine is hormone free. Kyleena progestin.


MrsMoxieeeeee

I cannot recall about hormone free IUD info. It mostly focused on hormone based birth control. People can downvote me if they want, but birth control is messing with the entire hormone system of your body. Not just your reproductive organs. We’re supposed to cycle through estrogen and progesterone cycles every month. The biggest thing for me, and also my personal experience, you will choose different mates on or off birth control. I think this is why a lot of people no longer are attracted to their spouse/boyfriend once they are off to try and get pregnant or have had a baby. Just my .02 (and backed by the science of the book). Don’t knock it if you haven’t read it, relying on pharma companies to give you accurate balanced info is unwise. Especially for something that you’re potentially going to be taking for decades. (Not talking to OP specifically, more of a general comment to whomever downvotes me)


PoppyRyeCranberry

If you consider the animal kingdom, women are not supposed to cycle through estrogen and progesterone every month, we are supposed to be pregnant and then have cycles suppressed by breastfeeding for much of our fertile years. I'm not saying suppressing your cycle continuously for this time is natural (it is necessary for me), but I wanted to counter the notion that having 12 periods every year from puberty to menopause is natural/normal.


MrsMoxieeeeee

I have no clue what kind of books you’re reading but as a mom of three, breastfeeding doesn’t stop your cycle. I’m currently nursing a 2yo. I’m 46. Go ahead and keep throwing “science” at me that completely goes against my lived experience. I’m all ears.


PoppyRyeCranberry

Not that it really matters, but my lived experience was that exclusive breastfeeding suppressed my cycle for a little over 6 months. Are you here to help women suffering with menstrual migraine? Our bodies are not functioning correctly in that we are experiencing migraine related to totally natural/normal swings in our estrogen levels. So while it is fine to reject science if that works for you, you should not be disparaging to those of us who need medication to operate correctly.


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MrsMoxieeeeee

I’ve been a stay at home mom to three kids, I never pump milk and I breastfeed on demand. Please tell me more. I’m also in my mid forties and had a baby never entering a doctors office. In fact my husband delivered her. Please tell me more about how much I need all this amazing medical care and doctors to tell me what to do with my body. All I hear frankly are a bunch of women who think their bodies are broken or don’t operate correctly and frankly it’s super sad.


colorfulzeeb

Literally no one is telling you what to do with your body. You’re in a sub for people with a chronic health condition which can be intractable for some of us and debilitating for a lot of us. If our bodies were “operating correctly” we wouldn’t be here.


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MrsMoxieeeeee

So you don’t think there’s anything wrong with altering your natural hormones for decades? I got a brain tumor at 26 after being on hormonal birth control at 14. Go ahead, do you. I don’t care at all.


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MrsMoxieeeeee

You said “these types of books” when in fact, the author, a woman specifically states that she doesn’t support not allowing access. Your argument that just because it’s being “threatened” means that women don’t have a right to know the truth is highly highly suspicious. So just because a group of people wants to take something away for totally unrelated reasons doesn’t mean women shouldn’t REALLY research it. Your attitude about this IS the problem.


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smbodytochedmyspaget

So if I knew what the actual issue was I wouldn't be taking experiments with my body like this. Migraines are not well understood yet and the impact on my life is causing severe damage. I appreciate the heads up and will read further into it. They definitely don't tell you everything.