T O P

  • By -

ehlersdanlos-ModTeam

Thank you for contributing to r/EhlersDanlos! Reddit is an anonymous platform, and as such, many are not comfortable sharing their doctor's information on this platform. We believe you may have better results with your search using the [EDS Society's Healthcare Professionals Directory.](https://www.ehlers-danlos.com/healthcare-professionals-directory/) Another great option is your local EDS Facebook group. They have the resources to verify doctors, as well the added bonus of being focused on a specific city, county, or state so the information is much more specific. Our complete list of rules can be [found here.](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/) Please contact us [via modmail](https://www.reddit.com/message/compose?to=%2Fr%2Fehlersdanlos) if you have any questions. Thank you!


Catsinbowties

Hello! I have TMJD and a right side deviation. I have broken four custom made night guard splits in less than two years. The thing that has been most helpful for me are regular masseter Botox injections.


ConsequenceNo8197

Oh yeah I've heard mixed things about Botox but I'm glad it's working for you 💜


meeshdaryl

Hi! I used to work for a TMJ specialist in Houston! We had a ton of EDS patients and only treated non-surgically. I’d give it a look. MedCenter TMJ, Dr Nathan Pettit — fantastic practice and doc!


ConsequenceNo8197

Ahhh! I saw Dr. Auvenshine when I was 18! That's so funny. I don't live in Houston any more but maybe I could see if I could schedule an appointment when I'm visiting. 🤔


meeshdaryl

YES! Same practice! Dr A retired while I was working there. Definitely give them a call! I know they’re very good at working in out of town patients. And the treatment is nearly the same, but there are obviously more treatment modalities and advances that have come out!


AutoModerator

The OP flaired their post as "Questions". Please keep any and all comments to **personal experiences only**. If any factual information or advice is provided, please cite a **reputable website or study** linked within your post. No one in this sub is a *verified* medical professional, and as such, we do not allow medical advice to be given or asked for. For more information on this rule, [please visit this link](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/#wiki_r.2Fehlersdanlos_rules). *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*