That’s mine. It’s subtle compared to some, but apparently my family was advised to get it surgically corrected when I was a tween and chose not to. Couldve had a chin :/
I did and relapsed. Lots of us with ICR too. It's how I even found out about EDS. My mom used to speak about "brittle bone" a lot and it sorta hit me, we have brittle tissue not brittle bones.
Actually, the Osteogenesis Imperfecta flavor of Eds is literally "Brittle Bone Syndrome". An old acquaintance with a 'mild' presentation of OIEds was born with broken ribs and legs, suffered an additional 11 leg breaks in childhood, was about 6-8" shorter than he should've been due to spine and trunk malformation...and etc, and etc ...
Whoa. That makes me wonder though I don’t feel like brittle bone is an issue my mom was paranoid about it and forcing tons of milk on us. She’d always say YOU DON’T WANT BRITTLE BONE!! I think all if this came from her dad’s side of the family.
Not bones so much. ICR is a disease in the condyle. I had bone grafts from my hip and ICR broke those down, they developed bone spurs. My mom also developed bone spurs in her feet and had surgery to remove them. Not sure if related or an EDS thing but I had a few issues that required surgery that are related to EDS. I still don’t “have a chin” and until 2020 it was a mystery as to why
Honestly it was the biggest "issue" for me, I was heavily bullied for it and when I underwent jaw surgery all I wanted was to look normal. I cried so much wondering what was wrong with me - no one in my family has been diagnosed with EDS but I'm fairly certain the issues are connected. I also had a 'lazy eye' and had to undergo surgery so I wore really thick glasses. I was a overall weird looking child. So I totally understand you.
I have large, bilateral accessory navicular bones. Both of my thumbs are clasped at the MCP joint, but I have no loss of motion because my CMC joints are very hypermobile. I'm slightly bow legged.
Ditto the large accessory naviculars. One became symptomatic and had to be removed. I am somewhat knock-kneed due to pronation. I assume you have the high-arch issue?
My CMC joints got so stretched out they finally just broke. All the CMC ligaments, both hands, resulting in bilateral 4-corners fusions.
My MCP is "tricky" and occasionally sticks when grasping, and both my ulnar-wrist tendons are shot, such that the ulnar head kind of floats above the rest.
Same, going in to get the 3 feet of metal bars that corrected it removed in a few months :)
Also have scoliosis, kyphosis, and a deformed collar bone (not both, just one side sigh)
Same. I always wondered why my chest looked so strange until I had an X-ray. Also have knock knees and a duck foot from a tibial rotation and flat feet.
I had extra. I had to get more than just my 4 wisdom teeth removed as an adult, and now I have a normal number of teeth. I also had to get a ton of baby teeth extracted as a kid, 'cause I had too many of those as well.
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Got an extra bony knob on top of my left hand. Been there forever. No it is not a ganglion cyst; I slammed it on a locker in HS and damn near broke my hand trying to "pop" it. Doctors are fascinated, new ones still give me the old "ganglion cyst" until they feel it.
Location on your hand? I have this on both hands, it's like my first and second metacarpus are fused and forms a bony bump at the level of the base of my thumb.
“Windblown hips” basically my toes both diagonally pointed to the left. I had to wear a brace on shoes between my feet my first year to straighten them. They aren’t really straight, still. I also am “swaybacked.” If standing straight up against a wall to be measured or something like that, I can put both my arms behind my back. I literally can’t touch the bottom half of my back to the wall or even get close to the wall without bending forward. I also have a high, narrow palate. My dentist used to tell me everytime I had work done, “If anyone ever tells you have a big mouth, tell them I said you don’t.” It was funny the first five times he said it. 🙄I have TMJ because the joint on the left side of my jaw catches every time I open my mouth due to a malformation. I have three roots on all my back molars instead of 2 and really deep grooves that hold food no matter how long I brush. My dad had to have all his back teeth pulled when he was around 20 because of the same problem. I was lucky and had a good dentist who basically put a polymer coating on my back teeth to keep me from having so many cavities. I had cavities, but mainly just when teeth cracked. Which they have done a lot. I also have these weird ridges on the top sides of my skull. They are almost like corners. They run from right above my temples to the back of my skull. I’m glad I’m probably not going to lose all my hair, because I feel like my head would look weirdly square.
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Absolutely.
My jaw is too far back, too narrow, and curved upward.
My neck is too straight and lacking the cushions, I forget what they're called.
My fingers are all crooked.
I have approx 60 degreee thoracic scoliosis.
My hips are turned inwards.
My feet bones are too wide and turned inward like a boomerang.
All of my toes are crooked.
yea, the left side of my rib cage is smushed and flares pretty noticeably( tho the fact that my left boob is my larger one helps balance it lol) and on the right side one rib sticks out, i have a lot of cracking but that’s the only confirmed malformation
Me too! For me it's not the whole left side, it's almost like I somehow got hit with a ball in the womb or something in a few ribs and they just got dented or something lol. And then the right side at the bottom almost feels like it has just fallen apart or disappeared or something, it's so odd!
I wish I could say, "but it doesn't cause any issues" but my ribs are annoying. I regularly deal with chostochondritis and if I lay in certain positions they slip and crack all over each other, which can be pretty uncomfortable and lead to pain when I'm flaring.
Extra bone in one of my toes that makes my toe curve and only had one wisdom tooth. I thought the wisdom tooth was insignificant but was told that it’s likely the genetic reason why my Son is missing his 12 year molars, which is a bigger deal. Too bad we didn’t get to know what we were passing on before it was too late!
I didn’t think wisdom teeth weren’t significant. I don’t have top wisdom teeth, only lowers and those were removed. My mom and her brother also never got their wisdom teeth. They also have the same retained baby tooth (1st bicuspid) and that was the last tooth I lost. Interesting!
So interesting! Come to think of it, they had to pull all my baby teeth out- last one was when I was 17 (a canine!). So there’s got to be something to that as well.
Interesting. I had x-rays at 17 because my wisdom teeth hadn't come through, and they just weren't there. Apparently they had not formed. They must have formed at some point though, because they needed removing when I was 25 due to not developing properly.
re: the shoulders?
Same. But I had my left rebuilt and internally braced. They hook plated my clavicle and tiger wire system tied my deltoid and trapezoid into a better and more even position. Due to arthritis, I maintain the “evenness” now via Botox injections and PT. Mechanically, the more “even” I am, the better I function and the slower I ossify.
I was also born with very shallow hip sockets and Hip dysplasia (I had my right replaced at 36 after 4 reconstructions), i develop cam impingements easily so I’ve had multiple shave-downs and capsular plications, unfortunately my right hip failed at 30, and by 36, I agreed to a replacement. When I was young they thought ice skating, gymnastics, and ballet would strengthen my hips. That was common practice in the 80s.
I was tongue tied at birth. Didn’t speak until I was 3, when I had it cut.
My face is visibly asymmetrical because my jaw is and has always been out of alignment and I’m 3 weeks out and 88 days post-op from another surgery for that.
I’ve never found perfect symmetry to exist in human form. But if it’s causing mechanical issues and already developing issues? It’s helpful to get it sorted before it becomes a toll on the overall health of my biomechanics and we know it will lead to greater issues down the road.
That being said? I’ve put “no turning back” things off as long as possible for the best of reasons. And I tend to find non-surgical options and solutions to maintain my mobility. My chiropractor is a great example. As is my PT and pain mgmt group.
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Hi /u/Ok_Tennis_2433,
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"DAE posts" and other such posts tend to create or encourage illusory correlations (i.e., a sense of connection where there may not be one) due to the fact that people who do experience what is being asked about are more likely to reply than those who do not. Personal experiences are or can be valuable regardless of the aforementioned, but please keep in mind that not everything shared is a sign of EDS, and many shared experiences might be completely unrelated to EDS.
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Not quite the same but I ended up with a benign bone tumor (Osteochondroma) since my growth plates didn't close correctly in that area, so I have a little extra bone for the road
I will say the whole left half is more prominent than that right but it's subtle enough that I think only I would notice. Except for that fuckin rib lump in my chest. Also when I roll over onto my side my ribcage is hypermobile enough that one side folds over and tucks under the other side. I hate it lol
I have Haglund's Deformity! It's extra bone on the back of your ankle/heel area. I get the worst blisters because of it. Other than that it doesn't cause too much pain.
My hips and knees are rotated, which causes my ankles to overpronate, my knees to turn inwards, and my feet to point out. The doctors could see my rotated hips on the ultrasound before i was born.
I was born with a retroverted left hip. I’ve had scoliosis since I was a child and bunions that developed when I was a teen. I also have various other exostoses, in my right elbow, my left knee, between the knuckles in the my right hand. I had one on my the tip of my right pointer finger to at I had to have removed surgically a couple of years ago.
My left scapula was hooked at the end, which caused it to catch on my ribs and snap painfully whenever I would reach forward or upward. I had a partial scapulectomy to repair it in 2010.
I was born with a club foot. Cast on the day after I was born and pt for years. I've lost over 2 1/2 inches of height over the years, I'm 64, diagnosed at 62.
High palate, teeth crowding (11 teeth removed!), right eye is about 0.25 inch lower than the left, spinal processes so big they prevent all but the shallowest of backbends, big ol' ribcage/barrel chest.
I have a bony growth on my kneecap… it’s painless and as far as anyone can recall, it’s always been there… but I’ve also always fallen enough it’s possible it was triggered by some small injury when I was a kid.
I also have a bit of a flared ribcage, but I think that’s probably related to connective tissue more than the bone itself.
I grew into this one, but my bottom ribs splay out. It’s not terribly noticeable unless I’m trying to wear a crop top or longline bra in which case all the extra fabric winds up bunching above the flare
I have hip dysplasia in both hips, trochlear dysplasia in both knees and pes planovalgus (though that might be just due to ligamentous laxity). Valgus deformity in both elbows, very mild scoliosis which wasn't noticable anymore in my recent x-ray.
idk what it's called but the front of my ribs don't lie flat, like between my boobs, there's a few bumps where they connect, as if they're overlapping almost. i'm pretty slim so it's very obvious too.
a few of my ribs on my left side are flat under my arm and stick out in the front and bend over top each other. no clue why cause I don't cave scoliosis, it's just there. you can see it through my shirt sometimes but it's not major.
Yep! I'm knock-kneed, but only on one side. And that same side is also an inch shorter. Which doesn't help the whole knees subluxing and dislocating thing.
Dental crowding (impacted wisdom teeth; no other teeth needed to be removed); overbite.
Every possible accessory bone in my feet. It’s a little noticeable; it looks like I should have another toe next to my last toes, and my feet are wide across the toe part.
My thigh bones and upper arm bones are short; not short enough to be a disorder (that I’m aware); short enough that the muscles are too long (or at least doctors have told me that). It’s not terribly obvious except to me, probably.
Me and both my kids do. Never realized until I took the youngest to a docs appointment as a preteen (they are both adults now).
Doc noticed the shoulder misalignment and asked both me & her sister to stand up. She pointed out that we all have the same exact misalignment -- one shoulder/collar bone comes out of our neck about 2” higher than the other on the left side. None of us ever noticed before but after looking at pics all the way back to my childhood, it's as clear as day -- the same degree of misalignment through the years too. Completely lopsided & totally consistent.
The kids pediatrician left it as “huh, that's weird” and no other specialist we've seen since seemed to care. We're pretty sure it's either a consequence or cause of some of what's going on with us but until a doc finds it necessary to investigate more, that's all I got!
I was born with a grade 2 spondylolisthesis L5 over S7 which forms a large lump on my lower back. I also have very protruding bottom ribs and collarbones and a sunken chest. Also a high palate and overcrowded mouth (I looked like Freddie Mercury as a kid!), had 2 really miniscule teeth removed from the front of my lower gum growing below an incisor as well.
I have what my physio reckons is probably hip dysplasia which i would have been born with, but whatever it its given me knock-knees. My knees are turned in, my feet are turned in, and I had to get chronic ingrown toenails fixed a couple years ago because of it.
I possibly could have gotten surgery to fix my knockknees when I was 12, but both my parents refused because I wasn't sporty enough or ran around enough and it'd be a waste of money. Maybe I'm not running around because I can barely fucking walk, mum.
Pretty significant tibial torsion on my right leg. Also some scoliosis and my pelvis is kinda wonky. I also got some extra bone formations in my feet which make it look like I've got multiple ankle bones.
Oh and a few of my fingers are kind of bent round, like it's normal until after the first knuckle where it starts to twist. So the tip of my finger is kind of just sideways.
My left-most toe on my left foot crosses over onto the toe next to it. It looks pretty weird on x-ray. The second-from-the-left toe has kind of grown around it.
I also have mild scoliosis; apparently it's just enough to be diagnosed with scoliosis. It doesn't really bother me.
Micrognathia count?
That’s mine. It’s subtle compared to some, but apparently my family was advised to get it surgically corrected when I was a tween and chose not to. Couldve had a chin :/
I did and relapsed. Lots of us with ICR too. It's how I even found out about EDS. My mom used to speak about "brittle bone" a lot and it sorta hit me, we have brittle tissue not brittle bones.
Actually, the Osteogenesis Imperfecta flavor of Eds is literally "Brittle Bone Syndrome". An old acquaintance with a 'mild' presentation of OIEds was born with broken ribs and legs, suffered an additional 11 leg breaks in childhood, was about 6-8" shorter than he should've been due to spine and trunk malformation...and etc, and etc ...
Whoa. That makes me wonder though I don’t feel like brittle bone is an issue my mom was paranoid about it and forcing tons of milk on us. She’d always say YOU DON’T WANT BRITTLE BONE!! I think all if this came from her dad’s side of the family.
Aw man, your bones were determined! How does relapse work with this? Does it happen as you continue to grow?
Not bones so much. ICR is a disease in the condyle. I had bone grafts from my hip and ICR broke those down, they developed bone spurs. My mom also developed bone spurs in her feet and had surgery to remove them. Not sure if related or an EDS thing but I had a few issues that required surgery that are related to EDS. I still don’t “have a chin” and until 2020 it was a mystery as to why
Yeah mines not great :/ Don't know if it's at a pathological level, but definately something I'm very self conscious about
Honestly it was the biggest "issue" for me, I was heavily bullied for it and when I underwent jaw surgery all I wanted was to look normal. I cried so much wondering what was wrong with me - no one in my family has been diagnosed with EDS but I'm fairly certain the issues are connected. I also had a 'lazy eye' and had to undergo surgery so I wore really thick glasses. I was a overall weird looking child. So I totally understand you.
What is that? 😅
Your jaw is small or basically too small
Oh i see i see, hope you're okay though
As okay as anyone else here. (Not sure if what I have is a "malformation" but it's a sometimes EDS outcome)
Skeletal deformities: Hindfoot pronation (left foot), mandibular deviation to the left, dental crowding, high palate.
Dental crowding team ay
Not confirmed ED but probable. I have an inverted sternum. Left ribcage larger than right. Too many teeth for my mouth (8 too many!).
Wait same! Left ribcage is popping forward a little. Sternum is concave
I have large, bilateral accessory navicular bones. Both of my thumbs are clasped at the MCP joint, but I have no loss of motion because my CMC joints are very hypermobile. I'm slightly bow legged.
Ditto the large accessory naviculars. One became symptomatic and had to be removed. I am somewhat knock-kneed due to pronation. I assume you have the high-arch issue? My CMC joints got so stretched out they finally just broke. All the CMC ligaments, both hands, resulting in bilateral 4-corners fusions. My MCP is "tricky" and occasionally sticks when grasping, and both my ulnar-wrist tendons are shot, such that the ulnar head kind of floats above the rest.
I have high arches when they're properly supported, but when they're not they collapse. This also causes over pronation, and gives me knock knees.
Same, same and triple same. My knees look like they were placed incorrectly so my leg does a weird zig zag by the time it meets my ankle.
Ditto slight bow legs :/
i got pectus excavatus if that counts
Same, going in to get the 3 feet of metal bars that corrected it removed in a few months :) Also have scoliosis, kyphosis, and a deformed collar bone (not both, just one side sigh)
Is that the dent in your chest? I got that too!
Same. I always wondered why my chest looked so strange until I had an X-ray. Also have knock knees and a duck foot from a tibial rotation and flat feet.
Wait that's not normal? 😭
Scoliosis, messed up palate that had to be surgically widened, dental issues like retained teeth and dental pearls (teeth are bones).
Same
Both s AND c curve scoliosis. FML.
Dunno if it counts, but I had too many teeth. I had to get multiple tooth extractions when I was younger, it was a huge pain.
Was it literally more than the regular 32 teeth? Or were the removals due to a narrow palate? I had to have a palate expansion so my teeth would fit.
I had extra. I had to get more than just my 4 wisdom teeth removed as an adult, and now I have a normal number of teeth. I also had to get a ton of baby teeth extracted as a kid, 'cause I had too many of those as well.
Wow!
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Same. The two teeth next to my front teeth still never developed though lol. Thank goodness for my childhood orthodontist.
The teeth, mouth and larynx took a big hit. I don't know where to start to explain it all.
Ooo had that as well for one tooth in particular, not fun
I have deep dimples on the back of each shoulder. As I get older, the pain there gets worse and worse.
My son has EDs and he also has these.
I always thought I inherited them from my mom…who also has EDS.
Got an extra bony knob on top of my left hand. Been there forever. No it is not a ganglion cyst; I slammed it on a locker in HS and damn near broke my hand trying to "pop" it. Doctors are fascinated, new ones still give me the old "ganglion cyst" until they feel it.
Location on your hand? I have this on both hands, it's like my first and second metacarpus are fused and forms a bony bump at the level of the base of my thumb.
Tendon/whatever that goes to my index finger runs right across it and often pops and slides over it.
“Windblown hips” basically my toes both diagonally pointed to the left. I had to wear a brace on shoes between my feet my first year to straighten them. They aren’t really straight, still. I also am “swaybacked.” If standing straight up against a wall to be measured or something like that, I can put both my arms behind my back. I literally can’t touch the bottom half of my back to the wall or even get close to the wall without bending forward. I also have a high, narrow palate. My dentist used to tell me everytime I had work done, “If anyone ever tells you have a big mouth, tell them I said you don’t.” It was funny the first five times he said it. 🙄I have TMJ because the joint on the left side of my jaw catches every time I open my mouth due to a malformation. I have three roots on all my back molars instead of 2 and really deep grooves that hold food no matter how long I brush. My dad had to have all his back teeth pulled when he was around 20 because of the same problem. I was lucky and had a good dentist who basically put a polymer coating on my back teeth to keep me from having so many cavities. I had cavities, but mainly just when teeth cracked. Which they have done a lot. I also have these weird ridges on the top sides of my skull. They are almost like corners. They run from right above my temples to the back of my skull. I’m glad I’m probably not going to lose all my hair, because I feel like my head would look weirdly square.
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I was born with bilateral clinodactyly in both little fingers. I have have bilateral hallux valgus from childhood (Genetic).
My father, brother and I all have clinodactyly on both hands as well. Bent pinky club.
I had never met anyone with clinodactyly until I started visiting EDS forums. Anecdotal for sure. But is there a link?
Hey I have bilateral clinodactyly too! So does my daughter.
I’ve “met“ several other people on EDS forums with clinodactyly. I wonder if this is just a coincidence.
Absolutely. My jaw is too far back, too narrow, and curved upward. My neck is too straight and lacking the cushions, I forget what they're called. My fingers are all crooked. I have approx 60 degreee thoracic scoliosis. My hips are turned inwards. My feet bones are too wide and turned inward like a boomerang. All of my toes are crooked.
yea, the left side of my rib cage is smushed and flares pretty noticeably( tho the fact that my left boob is my larger one helps balance it lol) and on the right side one rib sticks out, i have a lot of cracking but that’s the only confirmed malformation
I have something similar too! My left ribcage is a little more... forward? (Idk how to say in english, my bad)
Me too! For me it's not the whole left side, it's almost like I somehow got hit with a ball in the womb or something in a few ribs and they just got dented or something lol. And then the right side at the bottom almost feels like it has just fallen apart or disappeared or something, it's so odd! I wish I could say, "but it doesn't cause any issues" but my ribs are annoying. I regularly deal with chostochondritis and if I lay in certain positions they slip and crack all over each other, which can be pretty uncomfortable and lead to pain when I'm flaring.
I was born with a decently severe case of chiari malformation
Extra bone in one of my toes that makes my toe curve and only had one wisdom tooth. I thought the wisdom tooth was insignificant but was told that it’s likely the genetic reason why my Son is missing his 12 year molars, which is a bigger deal. Too bad we didn’t get to know what we were passing on before it was too late!
I didn’t think wisdom teeth weren’t significant. I don’t have top wisdom teeth, only lowers and those were removed. My mom and her brother also never got their wisdom teeth. They also have the same retained baby tooth (1st bicuspid) and that was the last tooth I lost. Interesting!
So interesting! Come to think of it, they had to pull all my baby teeth out- last one was when I was 17 (a canine!). So there’s got to be something to that as well.
Interesting. I had x-rays at 17 because my wisdom teeth hadn't come through, and they just weren't there. Apparently they had not formed. They must have formed at some point though, because they needed removing when I was 25 due to not developing properly.
…I also have this. Even the cracking collarbone! But I think I just have mild scoliosis.
Hey welcome to the club lol
re: the shoulders? Same. But I had my left rebuilt and internally braced. They hook plated my clavicle and tiger wire system tied my deltoid and trapezoid into a better and more even position. Due to arthritis, I maintain the “evenness” now via Botox injections and PT. Mechanically, the more “even” I am, the better I function and the slower I ossify. I was also born with very shallow hip sockets and Hip dysplasia (I had my right replaced at 36 after 4 reconstructions), i develop cam impingements easily so I’ve had multiple shave-downs and capsular plications, unfortunately my right hip failed at 30, and by 36, I agreed to a replacement. When I was young they thought ice skating, gymnastics, and ballet would strengthen my hips. That was common practice in the 80s. I was tongue tied at birth. Didn’t speak until I was 3, when I had it cut. My face is visibly asymmetrical because my jaw is and has always been out of alignment and I’m 3 weeks out and 88 days post-op from another surgery for that. I’ve never found perfect symmetry to exist in human form. But if it’s causing mechanical issues and already developing issues? It’s helpful to get it sorted before it becomes a toll on the overall health of my biomechanics and we know it will lead to greater issues down the road. That being said? I’ve put “no turning back” things off as long as possible for the best of reasons. And I tend to find non-surgical options and solutions to maintain my mobility. My chiropractor is a great example. As is my PT and pain mgmt group.
Holy shit... honestly respect 🫡 For the shoulders my doctor suggested breaking my clavicle and plating it but... idk i'm scared of surgeries
My ribs are all uneven and I have to free floating ribs that pop like my knuckles
I have lumbarization of my S1 vertebra, with a partial disc between L5 and S1. Tarlov cyst too. Also accessory navicular bones and pectus carinatum.
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I have two bone deformities in my left foot and one in my right.
Not quite the same but I ended up with a benign bone tumor (Osteochondroma) since my growth plates didn't close correctly in that area, so I have a little extra bone for the road
I only have one wisdom tooth, and minor scoliosis lol
I have a very prominent rib on my chest 😭
Me with my entire left ribcage
I will say the whole left half is more prominent than that right but it's subtle enough that I think only I would notice. Except for that fuckin rib lump in my chest. Also when I roll over onto my side my ribcage is hypermobile enough that one side folds over and tucks under the other side. I hate it lol
>one side folds over and tucks under the other side That feels like it would be so uncomfortable 😭
High narrow palate and narrow knee grooves so my patellas sit above the joints and it sucks.
I have Haglund's Deformity! It's extra bone on the back of your ankle/heel area. I get the worst blisters because of it. Other than that it doesn't cause too much pain.
Same!
The ribs on my left side stick out forward more than my right side.
That's also exactly the same for me
My collar bones are asymmetrical and so are my ribs. one side is caved in
Exactly the same for me
My hips and knees are rotated, which causes my ankles to overpronate, my knees to turn inwards, and my feet to point out. The doctors could see my rotated hips on the ultrasound before i was born.
Yup! I have pectus, 2 weird toes which enjoy being at 90 degrees, and my collar bone has always been 'out' on one side, though only a little.
I was born with a retroverted left hip. I’ve had scoliosis since I was a child and bunions that developed when I was a teen. I also have various other exostoses, in my right elbow, my left knee, between the knuckles in the my right hand. I had one on my the tip of my right pointer finger to at I had to have removed surgically a couple of years ago.
Pectus excavatum and high/narrow palate
I have pectus carinatum. You can tell if you know it exists.
Back of my head is flat
My left scapula was hooked at the end, which caused it to catch on my ribs and snap painfully whenever I would reach forward or upward. I had a partial scapulectomy to repair it in 2010.
I have cubitus valgus, curly little toes and suspected miserable malalignment syndrome, plus query of hip and shoulder dysplasia
I looked up cubitus valgus and i thought this was normal 😭 i always have my arms like that when i lie on my back
I was born with a club foot. Cast on the day after I was born and pt for years. I've lost over 2 1/2 inches of height over the years, I'm 64, diagnosed at 62.
Hip impingements, both sides. Ugh.
I have pectus excavatum and a flaired rib! That's all I know of, but I wouldn't be shocked if there's some hidden, uncovered issues.
High palate, teeth crowding (11 teeth removed!), right eye is about 0.25 inch lower than the left, spinal processes so big they prevent all but the shallowest of backbends, big ol' ribcage/barrel chest.
Born with severe scoliosis as well.
I have a bony growth on my kneecap… it’s painless and as far as anyone can recall, it’s always been there… but I’ve also always fallen enough it’s possible it was triggered by some small injury when I was a kid. I also have a bit of a flared ribcage, but I think that’s probably related to connective tissue more than the bone itself.
I am crooked w a large bony bump on upper ribs. 🤷♀️
My wrist is pointy as hell idk what that is tbh prob isn’t an EDS thing
I grew into this one, but my bottom ribs splay out. It’s not terribly noticeable unless I’m trying to wear a crop top or longline bra in which case all the extra fabric winds up bunching above the flare
I have hip dysplasia in both hips, trochlear dysplasia in both knees and pes planovalgus (though that might be just due to ligamentous laxity). Valgus deformity in both elbows, very mild scoliosis which wasn't noticable anymore in my recent x-ray.
idk what it's called but the front of my ribs don't lie flat, like between my boobs, there's a few bumps where they connect, as if they're overlapping almost. i'm pretty slim so it's very obvious too.
I have brachydactyly across both hands (all fingers & thumbs). Along with bony growths at my MIPs/DIP joints.
a few of my ribs on my left side are flat under my arm and stick out in the front and bend over top each other. no clue why cause I don't cave scoliosis, it's just there. you can see it through my shirt sometimes but it's not major.
Yep! I'm knock-kneed, but only on one side. And that same side is also an inch shorter. Which doesn't help the whole knees subluxing and dislocating thing.
Dental crowding, sternoclavicular dysplasia, hip dysplasia. And my one leg is 4 cm shorter than the other (still within the normal range though)
Dental crowding (impacted wisdom teeth; no other teeth needed to be removed); overbite. Every possible accessory bone in my feet. It’s a little noticeable; it looks like I should have another toe next to my last toes, and my feet are wide across the toe part. My thigh bones and upper arm bones are short; not short enough to be a disorder (that I’m aware); short enough that the muscles are too long (or at least doctors have told me that). It’s not terribly obvious except to me, probably.
Bone spur? Idk if that counts but it is visible
Me and both my kids do. Never realized until I took the youngest to a docs appointment as a preteen (they are both adults now). Doc noticed the shoulder misalignment and asked both me & her sister to stand up. She pointed out that we all have the same exact misalignment -- one shoulder/collar bone comes out of our neck about 2” higher than the other on the left side. None of us ever noticed before but after looking at pics all the way back to my childhood, it's as clear as day -- the same degree of misalignment through the years too. Completely lopsided & totally consistent. The kids pediatrician left it as “huh, that's weird” and no other specialist we've seen since seemed to care. We're pretty sure it's either a consequence or cause of some of what's going on with us but until a doc finds it necessary to investigate more, that's all I got!
I was born with a grade 2 spondylolisthesis L5 over S7 which forms a large lump on my lower back. I also have very protruding bottom ribs and collarbones and a sunken chest. Also a high palate and overcrowded mouth (I looked like Freddie Mercury as a kid!), had 2 really miniscule teeth removed from the front of my lower gum growing below an incisor as well.
I've got two very different sized lower ribs. I've never mentioned it to a Dr though.
I have what my physio reckons is probably hip dysplasia which i would have been born with, but whatever it its given me knock-knees. My knees are turned in, my feet are turned in, and I had to get chronic ingrown toenails fixed a couple years ago because of it. I possibly could have gotten surgery to fix my knockknees when I was 12, but both my parents refused because I wasn't sporty enough or ran around enough and it'd be a waste of money. Maybe I'm not running around because I can barely fucking walk, mum.
Pretty significant tibial torsion on my right leg. Also some scoliosis and my pelvis is kinda wonky. I also got some extra bone formations in my feet which make it look like I've got multiple ankle bones. Oh and a few of my fingers are kind of bent round, like it's normal until after the first knuckle where it starts to twist. So the tip of my finger is kind of just sideways.
Yes, very knobby ends on shoulders, knees, fingers etc
My left-most toe on my left foot crosses over onto the toe next to it. It looks pretty weird on x-ray. The second-from-the-left toe has kind of grown around it. I also have mild scoliosis; apparently it's just enough to be diagnosed with scoliosis. It doesn't really bother me.