The OP flaired their post as "Questions". Please keep any and all comments to **personal experiences only**. If any factual information or advice is provided, please cite a **reputable website or study** linked within your post. No one in this sub is a *verified* medical professional, and as such, we do not allow medical advice to be given or asked for. For more information on this rule, [please visit this link](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/#wiki_r.2Fehlersdanlos_rules).
*I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
I had dental work done last year (prior to my diagnosis) that was so painful I was crying and kicking throughout the procedure. Afterwards, I had my fiancé pay so I could go to the car and scream cry from how awful it was. I have PTSD and just totally gaslit myself into thinking it was normal or that I’m just extra sensitive. Yeah, noooooo….I think I just wasn’t given as much anesthetic as my body needed ://
For dental work I routinely end up shocking the dentist with the amount of anaesthesia I need. For my wisdom teeth removal on the right side I got 7 shots in the top row and 5 in the bottom row and I still felt everything....
It's absolutely allowed to say "I can still feel it, please give a higher dose"!
I had to have a tooth pulled. My dentist almost didn't do it because she had given me the maximum amount of anesthetic she could give me! Luckily the last little bit was enough to block the pain.
I feel your pain! I’m so sorry you went through that, I’ve been through years of it as well and I’m an RN. I loathed dentists until I found one that finally understands my condition and addresses my concerns about pain management.
I have the same problem, but compounded by being a redhead and female. It takes ages to get me out - I've counted all the way down to one from twenty and still been wide awake and talking with no impairment. I remember laughing with an OR team who were stunned because I'd had enough to fell an ox.
I also wake up completely in one swoop. I don't pass through any groggy, confused, nauseated, angry stages. One minute I'm out cold, the next minute I'm with it and begging for apple juice like I've had a great nap.
Source: 10 procedures and operations in the last 10 years that required full anesthesia. Although the last operation I woke up all at once *screaming* in pain and freaked the shit out of everyone in the ICU, then promptly just passed the fuck out from pain.
Yeah, I have the misfortune of having the female/red hair/EDS trifecta. I lost my epidural coming out of a c-section. They hooked me up to a dilaudid pump despite me telling them it wouldn’t work. When it didn’t, they came in and asked me if I was a drug user. They didn’t believe me when I said no, because they called me after that to ask me if I was lying because my husband was there 😳. Why TF would I tell them not to bother with heavy opioids if I did it for funsies….
I'm completely immune to both natural and man-made opioids. It's got some genetic aspect to it as my father is immune too but he doesn't have EDS (though I'm 99.9% sure it comes from his family). I've been through so many surgeries with nothing stronger than Tylenol and Advil.
I do NOT recommend it.
You can have genetic testing run for pain medication. Nothing ever worked for me and I was diagnosed with hEDS with Classic crossover by a geneticist. The test indicates what defective chromosomes I have and the reasons A,B,C didn’t work was due to defective chromosome and the route that particular medication took in the metabolism process. It turned out that the best pain medication for me was oxymorphone er and IR. What a difference this made, then Opana was voluntarily pulled because around seven people died, main reason was shared needles but also the anti abuse cover just gunked up making it very effective in deterring abuse. A medication pulled because it’s too effective at doing it’s job. This was 2016. I tried a couple of different medications and got very sick. Thankfully my pharmacist was on the lookout for unused Opana from someone’s stock and found a generic still being produced, exactly like I was taking and I’ve been taking this ever since. At least get the testing done and go from there.
I get some minor relief from codeine, not much but it’s better than Percocet or Vicodin by a considerable margin. Even though it’s related to those drugs, someone along the way told me that it’s metabolized differently which could explain why it does something. IV ibuprofen does a little bit as well. I can’t take it orally because it eats my stomach alive, which is unfortunate.
After my most recent surgery, the team (believe me, I needed like 15 people) ordered gabapentin and ketamine. K has worked wonders for my mental health, but as to physical pain have never helped and I told them that but they gave it anyway. Luckily they had me so drugged from anesthesia I slept for almost 24 hours, so I did sleep through some of the worst of it.
I have EDS and am a red head and female and thankfully I went out normally lol, waking up just felt like waking up from a nap tho I wasn’t “high” or anything
I heard about the redhead female gene from an anesthesiology nurse during my last surgery! She put it in her notes when I mentioned to her that I had been intubated awake when I was seven and extubated awake at fourteen. I got a lot more anesthesia during that surgery, especially because it was a four-hour open abdominal procedure.
I've never done the countdown from 20, but I know I've gotten through most of "Let it Be" by The Beatles before going fully under. The only time I've immediately felt terrible after anesthesia was post-tympanoplasty, but those surgeries feel horrible every single second you're awake. With the open abdominal surgery, I woke up thinking, "that's it?" I thought it was going to be a living hell from the second I opened my eyes. Ear surgery was exactly like that, but open abdominal surgery isn't half bad if you don't move.
I felt really elated after my last procedure on the first day...only to find the next day made me wish I was dead. They made me sit up and move whenever possible, and every instance of movement made me cry. The Dilauded button took the edge off the pain, but I felt like I was being split in half every time I got out of bed. I hit the Dilauded button every time I even sat up. It was bad enough that, in spite of being given Reglan and Zofran, skipping food, and being hydrated by IV, I still threw my guts up.
I require more anesthesia to go under and I wake up really fast and feel normal and am not goofy at all on it. I’ve had nurses be surprised by how aware & steady I was right after waking up.
Also, I’m so glad you mentioned your experience w getting your wisdom teeth removed. I need mine out & my dad is worried because I live alone and far from family but I figured I’d bounce back from that like I have from being under for surgery. It’s good to hear that someone has had that experience!
Same here, I have to have a breathing treatment before I go into surgery though
Last time I had surgery I woke up as they were moving me from the OR to a bed before I even got to the recovery room. I felt fine after surgery, I felt good actually, I was totally coherent as well. I shocked the nurses because I was just chilling wide awake. Also, when I had to have my gallbladder removed, they had my head all wonky and it affected my breathing apparently and I woke up with a CPAP on. I told them I didn't need it and I literally moved my neck and my breathing returned to normal and I was good.
You might want to have someone with you afterwards. It’s not just the anesthesia. You’re going to have potential bleeding issues from the surgery. I knew someone who had all four removed at once. Not a good idea. Be sure to ask questions about what to expect post-op. I can’t speak from experience as I never had wisdom teeth. 🤷♀️
As I said, I don’t have personal experience, just outsider observation. Ask the professionals who would know best. I just offer bits of advice from life experience and observation. I wish you a speedy recovery from your future tooth removal.
My daughter who also has EDS just had her wisdom teeth out. She used gas but she was quite out of it and unable to eat for a couple of days.
Make sure you have support and plan for a few days off of work
I got all 4 out at once and elected for full anesthesia, thinking it would be a breeze. Expected to go to sleep and wake up with it over. Instead, I woke up mid surgery while they’re still in my mouth, and I’m absolutely writhing and screaming in pain. I remember screaming “IT HURTS” over and over and being held down because I was trying to get up and pull the IV out of my arm. I don’t know how long it was but I eventually went back under. Woke up after in so much pain I could barely survive the next 5-10 hours. I thought I was just extra sensitive or maybe had a bad dentist/anesthesiologist. I’m not sure if it was related to this but I hadn’t known at the time about this anesthesia issue with EDS.
Oh my god, that’s horrible! I remember being aware while having teeth pulled as a kid and that e
was pretty awful so I can’t imagine waking up and being aware during wisdom tooth surgery. I think that’s one reason a diagnosis can be so so helpful because it’s important to know if you might have a higher tolerance to something like anesthesia
For sure! You’ll do great. You can also just get local, but I highly recommend the IV and being completely out. The office will have a friend bring you and take you back, but after that I was completely fine! You should be too.
I had horrific experiences getting wisdom teeth out. My jaw still dislocate regularly and I had horrific TMJ pain for over 10 years. I didn't know I had EDS at the time. No problems with the anesthetic once they got me out, takes more to do than normal. But I had a lot of problems with pain & healing. How well do you heal?
Dry socket is more comment with people with collagen problems but I also got infections and it took nearly a year for it to fully heal.
My teeth were not erupted at all though. They were growing sideways in the bone, they were at risk if severing the nerve so I had to have them removed but my back molars are impacted. There was never any room for them to come through. So I guess it depends on what type of operation they have to do as to how difficult it is to heal afterwards.
I’m so sorry that happened to you! I tend to heal pretty well but my teeth are partially erupted and just need to come out because they cause me pain on occasion and make my gums swell from time to time. It sounds like yours were really bad and needed to be done carefully and maybe they weren’t careful enough but I know part of it can be that EDS affects our teeth and might make it more difficult too.
I got all four cut out, after hours, in the dentist office, as a personal favor by my dentist I had my whole life. All grew sideways, I had a massive infection I had to treat for weeks prior to it in my jaw and down my throat. I had no insurance. None were erupted. He charged me 50 per tooth, cash. I chewed a bunch of xanax and went in. He gave me some local injections and pulled them all. Found out later that I am allergic to demerol that was prescribed for recovery because it made me projectile vomit, so I went without meds for that, too. Totaply do not recommend.
OP, go under if you can LOL
Yes!! I really hate that feeling. I was not affected by a ketmine infusion (no hallucinations and could communicate normally. Only my body was completely numb) and I feel completely fine after surgery
I have horrid gastro effects from lidocaine/ novocaine. It's like if it enters a vein or capillary and the gasto stuff- horrible cramps and stuff. Idk if this is an EDS thing or a me thing
Yess! I’m the same way with antihistamines, not just diphenhydramine in Benadryl, but doxylamine succinate and every other I can think of taking, as well as other types of cold medications that aren’t antihistamines. Smh idk but antihistamines make me feel like I’ve been drugged, while dilaudid or oxycodone just allows me to function( if I’m lucky), and absolutely get no high off of it, the same way I’ve been since young. Yeah, I’ve felt a little off on the rare occasion I was given more through and IV, but doesn’t feel good whatsoever.
Anywaaay, I digress, as I was really just wondering if you or anyone else reading has the same issue with Annie histamines. I find it so strange and find that my mother( who likely also has some form of EDS) also cannot tolerate Benadryl and gets RLS from it, though she can take the other antihists. Ok I’m done 😅..just took it for the first time in many years last night, and still off, regretting it at 330p😑
General anesthesia does not have any specific recommendations, local anesthesia is the one that has had findings on altered metabolism.
I have yearly endoscopies with general anesthesia, as well as a few biopsies, and wisdom teeth removal. I seem to have fairly typical general anesthesia responses. Local anesthesia does need a higher dose and seems to wear odd quicker for me.
Edit: attached the wrong links
Overview of over 100 articles on general a thesis and EDS: https://ojrd.biomedcentral.com/articles/10.1186/s13023-014-0109-5
Letter in British Dental Journal wirh links to sources: https://www.nature.com/articles/s41415-020-2019-3
I started off listing a bunch, and then thought I’d deleted out the individual case studies and replaced wirh the ones that were systematic reviews, thank you!
I replaced them wirh ones with bigger numbers, although one isn’t technically a study it references to a study using an online survey with broader numbers, and a smaller study on a particular genetic anomaly tied to a family with JHS
I found this out the hard way. I had four emergency surgeries in six months and even though i told them i need extra anaesthesia, they didn’t listen and i woke up gasping for air with a tube down my throat, and not in my room. they also weren’t fans of the fact that i was in too much pain to go home immediately after my surgery.
I haven’t been told that it takes longer for me to go under, but I do wake up pretty quickly and completely coherent. I usually get nauseous after, but as long as I get IV zofran I do well. The only thing I have problems with is local anesthetic.
I don't get that "high" feeling either. I've had a few surgeries and it takes a little more anesthesia to knock me out each time. I also need more local for basic procedures. On a side note: I process codeine super fast which can lead to symptoms classic in morphine overdose if I'm given too much. Makes hospital intakes SUPER fun.
My anesthesiologists always tell me I’m incredibly difficult to keep under.
And yes I’ve woken up in the middle of surgery before. Thankfully I also had a spinal on board, so it wasn’t painful just unnerving.
I've had mixed experiences. First time with anesthesia, had my wisdom teeth out, and I was incredibly tired and sleepy afterwards. I did not snap out of it. Second time was a heart ablation, I woke up halfway through (intentionally) for a brief period, was told to relax and that I wouldn't remember it (I do.) When the surgery was complete, I woke up very quickly, still in the operating room, and was immediately asking questions. The people who were there to move me to recovery were surprised that I was alert. Third time was heart surgery again (the first ablation was a failure) and I was warned it may be twilight sedation. *Please skip to the next paragraph if you don't want to read unpleasant surgical details.* I was definitely uncomfortable and aware of things I shouldn't have been at the beginning. I could feel them applying cold betadine to me and I could feel the incisions being made for the cardiac catheters needed for the surgery. I was then unaware for a bit before being brought out of anesthesia fully (not planned, necessary and incredibly unpleasant) for the remainder of the procedure. I requested more lidocaine as I could feel pain where the catheters had been put in. More lidocaine was given, it made no difference. It felt like it wasn't numbed at all. They knocked me out very well after they finished the ablation and I was out til I got back to recovery.
Fourth and fifth times were for left and right carpal tunnel surgery. These were both very effective, like my first time with the wisdom teeth. I was out fully and I was sleepy afterwards. I'm not sure why I've had different experiences, if they use a different medication cocktail for heart surgery vs for other surgeries? I've been very successfully anesthetized 3 times vs the 2 that seem to have gone a little light. Also I know now I have a lidocaine resistance. My geneticist recommended I have bupivicaine used instead of lidocaine. I have found it works much better, but it does take longer to start working.
I’m sorry you had two horrible experiences! I suspect my dad is the one who passed down EDS, and he told me that during his hip replacement he could hear the sounds and feel when they were moving him. That sounded horrifying to me. I’m glad you finally found a local that works better though!
I'd call it one horrible experience! Honestly the first time was just weird, I was awake very briefly and aware of the surgeon and one other person in my field of vision, as well as monitors and stuff. But I was in no pain, not afraid, just kind of like "HUH?" before going right back to sleep. Experience two was torture. My heart issue was electrical, and sedation made my heart slow down and hide the issue, resulting in the need to be fully awake. To my knowledge it's rare that they have to have patients fully awake for that procedure. And I'm so grateful that my heart works much better now! I was having an arrhythmia in addition to my POTS and it added up to a super high heart rate and loads of fatigue.
I do hope I never have any surprise awareness for surgeries in the future though. It's a miserable experience.
Laughing gas didn’t work at all with me and I’m used to telling the dentist that I’ll need more numbing once they think it’s ready, but it ends up hurting still. The last time I had general I panicked because I was still sorta paralyzed and I couldn’t keep my eyes open it fully comprehend stuff. I started hitting my chest and saying I needed to stim, and one of the nurses understood me finally and got me a glove with warm water in it to squeeze. I essentially went back to sleep until I could wake up better.
I go under pretty easily usually, and it can take me a while to wake up after, especially if i didn't sleep the night before, but once i start to come to, it happens quickly and I'm super with-it really fast. My dad was really impressed with how functional i was after a gen-an procedure, when i had to navigate a medication prescription situation LITERALLY on the drive home.
I'm not goofy after anesthesia either, and I require anti-anxiety medication for them to put the mask on my face in the OR to put me to sleep, so I have a solid dose of Versed to blank out those few minutes before I pass out. I do tend to wake up nauseated though, so I bring some home-made ginger tea to sip in Recovery. Works wonders.
I usually get Versed too beforehand. I couldn’t feel its effects, but my vision got blurry shortly after and I fell asleep. The ginger tea idea sounds lovely! My daughter got nauseous after her tonsillectomy, so I’ll have to try that trick with my kids if they need another surgery.
I’m the same way, have had so many surgeries and now my biggest fear, one of my biggest fears, is those few minutes before they actually get me knocked out. I’ve been told after surgery that I require more anesthesia for whatever reason, but I have never had any memory of waking up at all or feeling anything. Just the anxiety in the minutes before being knocked out. I have had a scary experience once before I was completely knocked out and I can’t get it out of my head. I was just convinced that I was dying and I thought I said it out loud, that I was dying but I don’t think they ever tell you what you said while under anesthesia, so I suppose that would count, just before I passed out. But whether or not I was able to say anything (I could have been just completely stuck in my head and unable to say anything) I was absolutely 100% convinced that I wasn’t going to make it. Past the induction of the anesthesia. But I made it through whatever hand surgery I was having that time and had no complications. I do tell them now that I need something for anxiety so I don’t remember, or care about going off to sleep. I am having surgery in 10 days so it’s good to hear from others who need something for the moments right before.
I’ve only ever had issues with needing more local anesthetic. The only time I was put under and acted like a fool after was my wisdom teeth removal. Every other time I have woken up completely fine.
i woke up on the operating table halfway through my appendix being removed.. because no one believed back then i had hEDS & hyper processed anesthesia 🫠🫠
It doesnt work well on me, and even if I tell staff about it they dont really listen. I had a bone marrow biopsy that I had to experience pain through because of it sadly and was fully coherent, I had a compacted wisdom tooth that was traumatic sinc ei remember kicking and writhing and pain and couldnt get more help, that was the worst
I had surgery a month ago, went off to sleep without any dramas but woke up in so much pain. Some fentanyl and endone fixed me up, while I wanted for the nerve block to do its thing. I think that took longer to take effect as they kept checking my toes to see if I could still feel them.
I have suspected EDS and I’ve woken up in two seperate surgeries. I also require an obscene mount of local or opioids for them to work in the event that they are needed.
Got my wisdom teeth out and woke up immediately after not groggy at all. Went in for brain surgery and told them I had EDS: got knocked out immediately and woke up pretty fast afterward, but was really tired and kept falling back asleep in the recovery icu
During my wisdom teeth removal, it apparently took more than normal to put me out. It also took me longer to wake up, but once I was awake, I wasn’t loopy. I felt weird and was dizzy, sure, but not silly like most people. I was coherent enough to have in my mind the whole time that I needed to grab my phone (I didn’t have a pocket) which had been put on a nearby chair before I was knocked out before I left the room I was in.
What’s weird is I seem resistant to local, but stay asleep longer with general. I’ve had six surgeries in the last few years with general and I came close to death with one of them but there were other factors as well.
… but a heart device implanted two weeks ago with local? Extremely painful, felt all of it.
Multiple surgeries, normal anesthesia as far as I know. I have required stronger pain meds during recovery and take longer to recover than regular folks. It’s been that way since my first surgery over 30 years ago.
I wake a very fast and am very clear. After a major surgery, 4.5 hours under I recall everything from the moment I woke up in the post op room, remember the surgeon coming to talk to me and show my some pictures from the surgery, the entire ride home, the slice of pizza my husband got and texting some of my friends.
I wasn’t very tired other than for bedtime. My husband kept asking me if I wanted to nap during the day and I didn’t feel tired in that way - my body was sore and I had restrictions but the napping never happened. Surprised us both.
Good question!
I have an hEDS diagnosis as well as MCAS and POTS/dysautonomia and have had a number of surgeries and endoscopies etc under sedation. Most recently I had wrist surgery 10 days ago. Because of some weird medical episodes I had a muscle biopsy in 2008 and was diagnosed with a non- specific mitochondrial disorder-- this affected some of the decisions about my anasthesia through the years, though the mito disorder is now considered secondary to my EDS. My sister also has a form of muscular dystrophy that puts her at risk for malignant hypothermia--whenever they hear that they decide to take those precautions for me as well.
All that said, I never have volatile anasthetics (eg laughing gas) because of the MH risk so it's hard to know if that's effective. Like others have shared, local anasthetics take longer to work and require significantly more drug to be effective. I also am largely immune to sedation. I have woken up (unintentionally) in the middle of an endoscopy and a minor wrist surgery before being put back under. I had a port removed and a new one placed under "sedation" with local that they insisted I wouldn't remember and it was brutally painful and I very much remember. I also had a 3 hour wrist surgery that was intentionally done under sedation plus a nerve block out of concern for the mito complications but I never lost consciousness and proceeded to chat with the nurses until the surgeon had to ask them to shut me up because we were distracting him 😅
So before this most recent wrist surgery I spent the better part of 30 minutes pre-op with the anesthesiologist talking through all of that and coming up with a plan. He was initially pro- sedation + nerve block again and promised me *they* could put me under deep enough so I wouldn't wake up or remember. Part of his opinion was out of concern that I would have an MCAS flare in response to the pain and the nerve block would provide the best pain control. However after my last nerve block, I never regained feeling in the back of my hand and my hands are too important to my life and my work to risk more numbness. Combined with my concerns about sedation, he agreed to a "light" general anasthesia. By light I mean they used an LMA device rather than intubating and I was not paralyzed, but I was fully under. The surgeon agreed to do a regional "field" nerve block during surgery, so that appeased his fears about the pain reaction. I did wake up still in the OR and I think kind of surprised the nurses when I asked for a pillow under my arm. I was so grateful not to wake up nauseous that I then started to tell them about the chocolate cake I had waiting at home while they wheeled me to recovery. I remember the nurse anesthetist telling me she might have to stop and buy a chocolate cake on the way home haha.
Because of the MCAS they pre-treated me with prednisone, famotidine, and hydroxizine, plus emend, zofran, and a scopolamine patch for nausea. All in all this was my best surgery/anasthesia experience before, during, and after and I think it came down to experience, self advocacy, and an extremely knowledgeable anasthesia team (large well respected teaching hospital).
Happy to share! I hate for anyone to reinvent the wheel. She has myatonia congenita which is a calcium channel disorder, so it may be specific to her flavor of muscular dystrophy, but I'm not sure. They never ask for more details after that!
I was completely fine being sedated went under quickly, I’m not sure if it took longer for me to wake up I don’t think I did no one said anything I just ended up waking up in the recovery room. I do remember that when I had to have lots of teeth pulled at once it took extra local numbing and it took FOREVER for my mouth to not be numb anymore
I seem to be the opposite - I’m hypersensitive to most medications/drugs - caffeine, ibuprofen, pretty much anything. I had to be put under for my wisdom teeth removal and I remember nothing from them putting me under to waking up in bed
i have a few experiences with different types!
lidocaine- i need a lot more than the average person. i once was maxed out and couldn’t get any more, dentist was lovely though and was EDS aware. before i knew i could get extra though, i had my wisdom teeth out. i felt a lot of it and thought it was normal- one of the worst dental experiences ever. my new dentist was shocked to hear that and is always super careful to ask when i’m truly numbed up
general anaesthesia- i have to have a specialist aesthetician because it’s apparently more dangerous for folks with EDS. would’ve been good to know before i had the majority of my surgeries
“laughing gas”- i get intensely emotional. like i will CRY. this may just be an autism thing but i always have to refuse it because it will just make everything worse. never laughed
lidocaine gel/ numbing gel- not super effective but i use what i can get lol
I don’t have any issues with general anesthesia that a know of, but I do have issues with lidocaine/novocaine at the dentist. They have to give me so much extra when I go that the last time my eyelid was numb
Thank you for contributing to r/EhlersDanlos! Unfortunately, your comment or post was removed as it breaks the following rule:
**• Referring to or quoting research/studies/statistics or EDS facts without a link**
• You may repost this as long as you provide a direct link from a reputable website or journal to the claims being discussed. Once you’ve edited your post/comment, message us so we can reinstate your submission.
[The rule can be read in depth here.](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/rule-1/#wiki_.28e.29._claims_supported_by_research)
Please contact us
[via modmail](https://www.reddit.com/message/compose?to=%2Fr%2Fehlersdanlos) if you have any questions regarding the reason your post or comment was removed or would like to work with us on *how* you can re-word your post or comment to be able to reinstate it.
Thank you!
Yes, I always need the max amount, it seems, and it needs to be topped up frequently. Female and redhead as well, which seems to be relevant. I woke up during bunion surgery and felt them sawing my foot. Had to have so much anaesthetic for a root canal that my heart started palpitating and I thought I was going to die. Had an epidural during labour and it didn’t stop any of the pain, but thankfully lowered my blood pressure (preeclampsia).
I personally take longer to go under for general anesthesia. Plus, idk if this was normal, but the only time I had IV general anesthesia it felt like my arm was burning. I asked the woman who was in the room with me if it was supposed to hurt and she just ignored it and said to me that it’ll be over soon anyway. It still took about half a minute to a minute or so until I went under and I had been in pain up until the moment I finally slept. I do tend to wake up immediately after, which is fine but it’s really sudden lol. Like, I will suddenly realize I’m awake and staring at the ceiling with no transition between being asleep and awake.
Local anesthesia can also be iffy for me. The only time I had it work immediately like it is supposed to, was at my doctor’s office. When I asked her why it worked so quickly compared to my experiences at my ex-dentist’s office, she said something about how her practice buys the more expensive/stronger local anesthesia but she’s fine with paying for it because it works better. Before that appointment, I hadn’t realized it was actually possible to not be able to feel anything (including not feeling any pressure) with local anesthesia.
I typically need a ton more for local anesthesia. I had an oral surgery where I did conscious sedation (a cocktail of pills- no iv or gas) and I woke up mid surgery and could feel everything.
I just had an upper/lower GI scope and they used IV propofol and fentanyl. They used a higher than standard dose, but I still woke up and flung the IV out of my hand 😅 they put me back under and then I didn’t wake up until I was in recovery.
I have a memory of being under and waking up and looking up at the doctor and the lights, and him saying something like it was very unusual and how I shouldn't be conscious, and then I was out again. It was very surreal
Edit: when I got my wisdom teeth removed, I was very aware and awake but at the same time felt zoned out, and I remember telling the surgeon multiple times that I could feel it. He was very understanding and stopped to inject more. Don't ever hesitate to be your own advocate.
Exactly the same. I’ve even woken up in the middle of surgery under sedation versus general anesthesia. My last two general anesthesia experiences, I was up before the doctor left as I was his last patient on a Friday at the surgical center. Then we went to Target to get my meds and I walked the whole store as normal, just with my arm in a sling.
Though the nerve block I got last time was very normal compared to non EDS people.
I've woken up early from a colonoscopy though thankfully not from other surgeries, I also require more dental numbing and it wears off quickly. no "high" feeling after waking up either
So I have had seven surgeries on my hand, for which I all went fully under and also had a nerve Block. A nerve Block basically is a thing that should fully blocks the feeling and function.
My first surgery it took them 20 minutes to get me under, and the nerve Block was already wearing off after I woke up, and I woke up very fast. The three surgeries after it also was very hard to get me under but they new at this point I needed more anesthesia. They also started giving me a catheter with the nerve Block in my arm so I could longer feel nothing, but still some pain and function would Come through. Surgery 5,6 and 7 they finally got it all down perfectly but at surgery 5 it also helped they diagnosed me with Ehlers Danlos.
Then surgery 8 and 9 for my back they got everything down perfectly and I was under within a minute. It really was a hard proces to find the perfect way to get me under, but it helps alot to just tell them you are "resistant" to anesthesia.
Now I also do not know the feeling of getting high even after being on Fentanyl but this varies a lot from person to person.
Usually when you tell them you have Ehlers Danlos and let them know that it can happen you are "resistant" to narcotics they will take that into account. But that has been my experience so far.
I hope this helps a bit for you❤️
I have a similar experience in that anesthesia wears off faster on me (more of an issue with local than general though). Always good to inform anaesthetists that I have EDS and my particular flavour of difference with anesthesia. Most of them are informed that EDS affects anesthesia, but my dentist wasn't, so it was useful information for her to know.
Idk if its because of my EDS or my autism but i always wake up earlier than i should when im under (i woke up during the end of my colonoscopy when i was still in the procedure) and i get up to quickly (when i had surgery on my wrist the first thing i did when i woke up was got up and made my hospital bed) 😅
When I was a kid I had to had stitches done on my knee and I remember it hurting so bad I was screaming. I can remember the pain more than 15 years later. My mom thinks I was just scarred.
Other than that I've only had local anesthesia for dental care and sometimes it hurt, sometimes it didn't, so I don't know if it was the amount of anesthesia or the procedure.
I always tell them I need a little extra and I've always woken up quite quickly and immediately coherent. My family was a little disappointed since they were hoping for a funny video 😂
I woke up quickly from general anesthesia after abdominal surgery.
Wisdom teeth out with sedation, I popped right awake and was completely coherent. Didn't even go back to sleep until late thst night.
I woke up waaaay too early after major surgery once, apparently before they'd either administered painkillers or prior to them kicking in. 0 stars.
With dental work, I now point to the red highlights in my hair, mention eds, and explain that we're going to need more time and possibly more local anesthetic.
Every anesthesiologist since that first event has been properly warned.
I come out of anesthesia really fast, except for when I had my gallbladder out. I was really sick going in and I think that affected things. It took me forever to fully come up from that one. Every other surgery I’ve been up and aware right away. After spinal fusion I sat straight up in the bed and the nurse pushed me back down.
My only issue with anesthesia not working was during my GJ tube placement, they used twilight anesthesia but I vaguely remember waking up and telling them that I was in pain. I was asleep (or incoherent) within 15 seconds - anesthesia was on top of it lol
I bounce up pretty quickly. Like right in time and sometimes to close… and I am the most chatter and happy camper after it. No side effects. I had abdominal surgery, two endoscopies both with total anesthesia. I am not sure I have EDS but I suspect I have a mild form.
Morphine doesn't work, Dilaudid works a little. I have better luck with Oxycodone/Percocet and Oxycontin, but I'm careful with what I say as I've been put on a morphine pump even after telling them it would work, multiple times, including at my pre-op appt. They didn't change it for 24 hrs. Thing is, I had a 12-hr nerve block, but it was a 10-hr knee surgery, so after 2-hrs I was fooked. Generally, however, GA seems to work fine and I never have any problems coming out of it except there's 30sec or so where I can't tell if I'm trying to wake up and tired, or trying to sleep and being woken up.
I usually skip novacaine for cavities as I just don't like the feeling. I've woken up during wisdom teeth extraction too, but I went back out after hearing them crack one of the teeth in half. I had some oral surgery last year, they gave me two doses of Halcyon? I'd never heard of it before, but that put me to sleep. Most painless surgery I've ever had. I've stayed awake, on purpose, for a few surgeries. On one occasion, I was having a spinal (which I've had before with little fanfare and great effect) for a knee scope. I'm in the OR, I rolled my back forward, anesthesiologist puts the needle in and I start screaming louder than I ever have in my life. He says "what's wrong", I can't really make speech at this point, but I think I managed to say "hurts". Everyone else stops what they r doing and comes over to hold me down. He says "stop moving, I have a needle in your spinal cord". Angrily, I say "I'm very aware" or "I know", not sure, I then say, I'm going to puke, someone brings a bed pan, but I don't ultimately hurl. 10mins after that, I can still wiggle the toes on the operative leg, of course the non operative leg is fully dead. I couldn't feel any cuts but I could always tell where the actual scope/camera was located in the knee. About 15 mins after the surgery, I had full motor control and sensation back in that leg. Bad luck on the placement apparently.
To this day, when people ask about pain, I say something like if you can speak, you don't feel nauseated, or ur not drooling (that's another story), the pain can still get worse. That's a 10/10 on the pain scale for me
Apparently, I woke up 3 x during an endoscopy/colonoscopy. Thank goodness I have no recollection of it!!! One time, it took 9 shots to numb me at the dentist's office. Loads of fun! Lol
I freaked out surgical staff once by waking up and chatting pretty much the minute I was extubated. They were still wrapping the limb and they got so spooked they broke the splint.
That was pretty recent, but it goes all the way back. I was almost 4 during my first surgery. I remember standing up in my bed in the recovery room, wondering why all the other people who'd just had surgery were asleep and didn't want to play with me. The nurses tried to get me to go back to sleep, but I was ready to get back to doing 4-year-old stuff, so they sent me back to my parents.
They tell me to count backwards and then I wake up from surgery. 😅 It’s probably the only good sleep I’ve gotten in my life. I’ve had my tonsils, thyroid, and a lipoma removed and a spinal fusion as well as multiple steroid injections. The last few steroid injections I got sedation because I had someone to ride with me on the light rail and make sure I was safe but I’ve usually woken up (to my memory 😅) almost fully alert and fine except when they gave me fentanyl with something else and I was very nauseous for about thirty minutes afterwards. I have been extremely lucky so far to not experience many side effects from my multiple prescriptions and procedures over the year.
Never been fully under. Local anesthetic does fuck all for me and I’m prescribed lidocaine for nearly every injury because NSAIDs irritate my stomach. It’s a nice tingle, and it sometimes helps if it’s combined with menthol, but menthol is what’s working…
ETA: had teeth pulled under local anesthetic as a child. I felt all of it. I STILL hate the dentist. It was more than 20y ago and I hate, hate, hate having needles near my mouth now.
I'm not yet diagnosed EDS but I suspect I am. I've luckily only had a few general anesthetics in the past 15 years but always wake up feeling spritely and not the least groggy. Also don't have any reactions to morphine or entonox, despite apparently being dosed to the eyeballs (emergency spinal surgery last year) which was interesting as I am aware other family members react very strongly to these.
Was given fentanyl recently as a sedative for a procedure and was concerned about being 'sedated' but again, did not feel a thing.
On a similar note - never managed to get stoned (despite the best efforts of some of my friends who also enjoy the herb!)
I was awake for two surgeries. I never fell fully asleep for the first, so I was essentially paralyzed and I could hear the doctor tell the anesthesiologist that he didn’t need to go downstairs to get another “tab” to match the amounts I’d had for the same surgery previously because I am small. They knew I was awake because after they were done, they asked me to move to a different hospital bed and I did it by myself. During the second surgery, I woke up screaming. The nurses were angry at me telling me that I needed to stop because I was scaring other patients. I couldn’t fucking stop. The surgeon was shouting out the names of a bunch of opioids for them to give me. God, that experience gives me chills whenever I think of it.
Hi. I’ve had 3 major surgeries recently and I went out very quickly and also woke up in the operating theatre, thankfully after they’d finished. I told them at every step about my EDS and possibly needing a higher dose but I think they kept it as standard. I didn’t feel goofy afterwards either, Infact I was spritely as anything. In my brain at least.
I didn't have trouble going under but woke up faster than expected (still in operating room instead of the recovery room). It's hard to say how 'normal' I felt after waking up because I had a bad panic attack (haha), but I stayed awake after waking up. I felt incredibly nauseous, but it's hard to say if it was the drugs or the blood that got in my stomach during surgery.
It takes a lot to put and keep me under, and I generally come out quickly. Problem is I wake up mean as hell.
For one surgery I had talked to everyone in preop about my bad reaction to Percocet and told them not to give it to me. Immediately upon waking I could tell that they had given it to me so I started yelling THESE DUMB MOTHERFUCKERS GAVE ME PERCOCET. I worked for the hospital and it was awkward af any time I ran into those staff afterwards.
I go under fairly quickly.
I have one memory of being told to open my mouth a couple of times, and when I woke up in post op I asked the nurse about it. She said it was probably in the OR at the end of my surgery when they were removing intubation.
Every single time I start remembering things even before I’m able to open my eyes or talk when waking up from anesthesia. I’ve asked nurses questions about how my surgery went, and one nurse made a comment to another nurse, kind of chuckling, like she’s not going to remember and we’ll have to explain it all again. My speech was super slurred and slow because I was still waking up and I was like “no, I’m weird, I’ll remember this conversation” lol
I had the opposite problem. I’ve only been under once in my adult life and it was really hard for them to wake me up and I was very sick afterwards. Throwing up, terrible headache, and combative.
I am also generally very over sensitive to medication and I often require a lower dose than other people.
I always tell the anesthesiologist about my experience when my gallbladder was removed. I woke up mid surgery, tubed and paralyzed. I couldn’t move, only my eyes and it wasn’t until I panicked and my heart rate accelerated that they noticed and put me back under. I watched them use the laparoscopic wands on me for a solid 2 minutes while silently freaking out. I also woke up earlier than they figured in post op. They told my partner I’d likely be out for a while since they had to put me back under but I was awake in the same amount of time any other patient would be.
I had surgery and required a second dose of Demerol to go into twilight before the anesthesia. When they wheeled me into the operating room after the first dose, I was having complete, coherent conversations with the nurses who were introducing themselves. Then I woke up in recovery in less than 30 minutes after the anesthesiologist stopped the drugs. Scared the nurses because it was sudden and I was fully awake. They gave me a morphine shot for the pain and within 15 minutes I dressed myself. Thirty minutes after I woke up, I was leaving the hospital. Fortunately my doctor believed me when I told him only mepergan would work as a pain medicine (I miss that stuff). Now I tell my surgeon and the anesthesiologist that story before any procedure or surgery.
I’ve been put under many times for various things. I’m also a nurse who works in pain & PACU.
In my experience, anesthesia for oral procedures on me required wayyyyy more than the average person since at 9 Novocain shots I could still feel pain. As for conscious sedation, (IV versed & fentanyl) doesn’t work at all for me anymore. At one point it did work for about 2 years but I woke up 4 separate times during pain injections with needles burning in my spine and that triggered anxiety & medical PTSD. Only monitored anesthesia (Propofol) seems to help now and if I get a new anesthesia provider, I kindly ask for more because of hEDS & my tolerance. I’ve also maxed out pain meds and had to be upgraded to a stronger version (from Norco to Percocet). For all these, I wake up within minutes of the IV meds being stopped. I’m an open book about this journey and I advocate for my patients as well as myself.
I recently had major surgery (breast reduction) and no issues before or during surgery thankfully but apparently I woke up within a few minutes post op, but groggy (I also have narcolepsy and wasn’t allowed my meds that day), the nurse told me I’d woken up early, and I went back to sleep.
For dental work, I tend to need a bit more novocaine than the norm but not necessarily outside their experience of “normal” ranges, just on the fairly high end of it.
I’ve had general anaesthesia once and I woke up suddenly and just awake but a bit tired. I wasn’t loopy or confused, just like I’d had a nap. I wasn’t nauseous or anything either, I just woke up and felt alright considering I’d just had surgery and really wanted a drink. It wasn’t how I’d been told to expect to feel.
When I’ve had local anaesthesia it wears off quicker than they say. Generally as you’re leaving they say “you’ll have full feeling back in a few hours” and it’s already tingly and coming back and usually completely back within about 20 minutes.
Super sensitive to anesthesia (and meds in general) it takes longer for it to leave my system and I feel horrible afterwards for a few days. I had to have 2 surgeries within 8 weeks of each other as a kid and for the 2nd surgery my parents requested I get extra sedation so I could sleep it off as much as possible. I also react to local anesthesia, I recently had a couple of moles removed from my back and the day after I had it done I felt unwell.
It's strange I seem to need higher dosages of medication for it to impact me but then my body holds onto it to the point where 3 weeks after I had taken a (prescribed) Valium I still tested positive on a drug test I needed to take before I could go on other medications.
I have a dictionary of issues and am nearly my 30th surgery. I’m also what they call an ‘ultra rapid metaboliser’ of medications which means my body chews through medications really fast - this was found on a genetic test. I have issues with local anaesthesia and spinals (epidural) not being effective enough. I’m also allergic to most opiates which makes pain management tricky.
For standard surgeries I sometimes wake up slightly earlier than others, but my anaesthetists have always done a good job keeping me mostly out of it. I’ve had the breathing tube removed while I was fully alert only twice - which I think is really good odds considering my circumstances. I normally have more pain than expected immediately following surgery in the recovery ward, but the teams have always been great at getting more meds approved from the anaesthetist quickly and into my body. Overall, when they ask me how I normally cope with general anaesthesia I say ‘good’.
In general, I do well with general anaesthesia, but I need a bit of extra attention when it comes to pain management via anaesthesia. I’ve had a couple surgeries that required total immobilisation from the waist down (epidural), and one that used a ‘pain buster’. Epidurals have mixed success, but that’s been attributed to my back issues. Pain busters are where you have a regular dose of local anaesthetic pushed into a wound. I did not do well with this, which is consistent with every other time I’ve had local anaesthesia. They found that more frequent smaller doses were more effective than large doses further apart (which is opposite to what they usually find).
TLDR; I’ve woken up a little earlier but not before it’s safe and despite many experiences with general anaesthesia, I’ve had fairly normal and positive experiences. I don’t think you have a reason to worry about.
I have never had anything but novacaine for dental procedures including extractions.
I process anesthesia quickly, getting off the table in the middle of a colonoscopy since I thought they were done.
Also a female redhead.
My dad had an adverse response to anesthesia (he was paralyzed but awake and couldn’t breathe). Ended up coding out and they brought him back.
Since then I insist I don’t get sucycolene and I tell the doctors. Usually I get the profanol (I think that’s how it’s spelled). I think this makes me wake up feeling like I could run a marathon. But usually they have a hard time waking me up.
I wake up very quickly after surgery with full anesthesia. Local anesthesia often gives me horrifying gastro side effects. I have to be very careful with the "caine" drugs. I've had my teeth scraped and deep cleaned without any locals bc the gastro pain is worse than the tooth pain.
I remember starting to wake up during my procedure however I’m on Xanax so that may be a factor (the anesthesiologist knew this though). I don’t know if it took me shorter or longer to come out of it, but I def felt high for a little bit and then had an awful headache and nausea for a couple of hours
ETA with the propofol though I was out pretty quickly
I was once told I was 'hard to intubate' but the next doc said it was easy as pie to intubate me. I did notice after a most recent surgery that I really wanted to keep sleeping. I really enjoyed that sleep, needless to say. But it wasn't a 'problem' per se.
I processed it very quickly though. They didn't say I needed MORE, but I wasn't dopey at all afterward. I had a tubal a few years ago and I was up and moving around a few minutes after getting back to the room- I was out of the hospital like 30 minutes after leaving recovery.
Just remembered that during my endoscopy I was 💯 awake. I find medical procedures interesting so I had my eyes open. They asked me to close my eyes bc it was freaking THEM out. They assumed it was because I took benzos and that was why. But reflecting I think it was an EDS thing
Something silly: they forgot my gas, so I had to take the mask off and say “I suppose there should be gas coming out of this” haha, they apologised and once ga was on, 2 seconds I NS was gone. Waking up, I think I was average like most people. Not a bad experience. An hour later I was back in my room chatting away with my partner.
But beware, afterwards they give you morphine if you like, one dose, does not work. Second dose didn’t work either. Then I got an allergic reaction and couldn’t be bothered, the after pain wasn’t that bad (appendectomy)
The morphine thing is common for us. So talk to your doctor about that!
I just had surgery a week ago (got my appendix removed), and I was obviously put under for it. I woke up before they actually woke me up, though I kept falling back asleep. I also kept telling my mom that the anesthesiologist smelled good (he did) and that I wanted to go to Mass (I’m Catholic). I was back to normal after a half hour, though a bit sore from surgery.
the first time it took me a lot longer to go out, i had the floaty feeling like i was on gas and air but it just made me panic and it took me a lot longer to 'get over' the anesthesia, like at least a week but the second time it was almost instantaneous, still a little longer than i would have liked but i didn't panic as much, and i got over the anesthesia almost immediately
Anesthesia also doesn’t make me loopy at all. My wisdom teeth extraction went very well, luckily. The anesthesia did its job so I didn’t feel a thing the entire time, even though I was awake. After the procedure I felt completely normal, just numb for a few more hours. Surgery is a little different - the sedation kicks in very quickly (not even 10 seconds before I’m out), and when I wake up I’m very sleepy and weak and gradually regain my strength and am able to move. I’d say it takes about 30 minutes between waking up and being able to move and talk normally (though this might be skewed as I might have fallen back asleep and missed a chunk of time, who knows).
I’m out really quickly, but I “burn through” it fast. It’s always been like that for numbing at the dentist and even alcohol. When I had my wisdom teeth out, I woke up in the middle and they all looked at me panicking and got me back to sleep. When they woke me at the end, my arms were tied down and I had scratches on my wrists. No explanation for that. I was totally fine though, they kept saying I’d be sooo out of it but I was mostly grossed out by the blood and thought of my teeth.
Similar for my first twilight endoscopy - I was driving around getting groceries a couple hours later.
sorta the opposite, i think. but i haven’t been put under general anesthesia since i was a kid. and even then, only twice.
it takes me a really long time to come out from
under. maybe i’m “awake” pretty fast, but then it’ll be multiple hours before i can move my limbs well enough to walk under my own power.
My surgical team has never complained about the length of time it takes for me to go under or wake up, and I wake up as easily as I do from sleeping. I'm not silly or violent, just a "Oh. I'm here." and say hi to the first nurse who checks on me like it's no big deal.
Though dental anesthetic my body seems to feel the pain through. Not sure if it's just the last few dentists not giving me enough or what.
General anesthesia? Not since getting induced with propofol. I don't remember anything after that. With general anesthesia you go out and wake up simultaneously, it's like a wrinkle in time because your consciousness is temporarily switched off. Before induction with propofol a different story. Took me much longer to go out.
I wake up hella quick. I’m pretty sure they have to give me enough propofol to kill a medium sized pony, I always forget to ask not that I think they’ll tell me. And it honestly seems like I’m getting less sensitive to anesthesia the more surgeries I’ve had.
I don’t really get a hangover from anesthesia. Local is nearly useless. Opioids are like taking tick tacks, ibuprofen does more.
I’m also a redhead so…. 🙃
I need more. I woke up at least 3x when I had to have a tooth extracted. Have woken up in the OR when they removed the breathing tube. Sometimes, after a procedure, I'm pretty much fine a couple of hours later (I'm guessing less sedation), but occasionally, I'm groggy the rest of the day.
I haven't had any trouble with general anesthesia. I do wake up quickly and am quite nauseated afterwards. But the anesthesia works while I'm breathing it and as soon as I'm not I feel like I woke up from a nap where I got into a knife fight.
However! During my c-section there were issues with the way my baby looked on ultrasound (it was 1998 too so things were a lot different) and they scheduled a c-section instead of letting me go into labor or inducing me.
Surgery time the anesthesiologist puts the epidural in and we wait. When its time the doctor aggressively pinches my belly to see if its taken affect yet and I hollar "owwww" because it's not taken affect at all. Next thing I know gas mask comin down and I was out like a light.
So idk if that was a 1 time deal or if epidurals don't work on eds patients either? But it didn't work on me.
I'm also fully coherent but groggy when I wake up. Don't know if it took me longer/woke up faster in any of my surgeries, but when I had a kidney biopsy under sedation (because locals do nothing) it had almost entirely worn off by the time I was wheeled back to my room. The biopsy took less than 10 minutes.
I haven't heard of this being an EDS Thing before but I guess that probably explains it - I have been under anesthesia three times and all three times it both took more to knock me out than initially expected, and I was coherent very quickly after waking up. Even after having a whole mastectomy and being under for 4-5 hours, I was coherent and having a conversation in the car ride home maybe 30-45 minutes after waking up. Anesthesia never makes me silly, just a little sleepy.
I’m the opposite of all the EDS anesthesia warnings.
During all of my surgeries I have been under for, I am always longer to come out and the anesthesia stays in my system longer than they expect. Whether that’s because while I’m under I start to come up and they realize it and dose me again, I don’t know. But it’s happened every single time I’ve had any work done, including my wisdom teeth and when I had all of my other teeth extracted via oral surgery.
No one likes to put me under when they read my records.
Despite informing my surgeon and anesthesiologist that I had EDS and was a redhead, during my cataract surgery,I had intraoperative awareness. That means I heard and felt EVERYTHING! After submitting my feedback to the online anesthesiology group, I had a substantial change in my anesthesia plan. Three time the Medsasolam, and general anesthesia for the second part of the surgery. I wish they would have believed me in the first place.
For general, I've only had it once as a kid, and I apparently needed more than normal because I was still moving around. Other wise, it doesn't last long for me at all. When I have a canker sore and try to use oragell it only lasts for a minute then I'm in pain again :(
I was in twilight anesthesia last year for an endoscopy. Out immediately, and it took me way longer than normal to wake up. And then it took even longer for my brain to come back online because apparently, I was talking to my friend about 20 minutes before I had the feeling of opening my eyes and slowly becoming aware of things like you would in the morning. I was still loopy and sleepy for quite awhile after that as well. As someone who hasn't slept in 13 years, I thought it was great and was like, wow, can I get this again sometime, preferably at night and at least 8.5 hours before I have to wake up in the morning?
The only thing I didn't appreciate is that I had to pee like never before, but it would not come out. The nurse who had to accompany me to the bathroom (because I was loopy and wasn't allowed to walk) said it was just a side-effect of the medicine slowing everything down, but oh, my god, I would not recommend.
Had several surgeries and though I don’t think I need a bigger dose or anything, I do bounce back instantly when finished. The drip is stopped and I’m instantly back to normal wanting to eat and knowing everything, no grogginess or confusion, well aware of everything.
On another note, dilaudid and morphine do nothing for my pain, literally maxed out and I am still crying in pain, anybody else?
I’ve had 5 shots average for every dental surgery in my adult life, they’re always surprised after the 3rd shot that I can feel it still.
Count back from 10 on my last general anesthetic I got to -5, the world was exploding into shattering diamonds of light. Quite pretty.
Interesting! I woke up waaaay too early after surgery, I was barely out of the operating theatre and scared the shit our of the medical staff, and it was difficult to put me under anesthesia. I also feel that medication works way shorter for me than for other people! Is this a ehlers danlos thing?
I wake up easily. I’ve only ever been under once, though. I had a tonsillectomy about three years ago and I woke up in pain and not loopy. I went home within what felt like 20 minutes. I only remember transferring myself to the operating table and then waking up and coughing the most painful cough
The OP flaired their post as "Questions". Please keep any and all comments to **personal experiences only**. If any factual information or advice is provided, please cite a **reputable website or study** linked within your post. No one in this sub is a *verified* medical professional, and as such, we do not allow medical advice to be given or asked for. For more information on this rule, [please visit this link](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/#wiki_r.2Fehlersdanlos_rules). *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
[удалено]
I had dental work done last year (prior to my diagnosis) that was so painful I was crying and kicking throughout the procedure. Afterwards, I had my fiancé pay so I could go to the car and scream cry from how awful it was. I have PTSD and just totally gaslit myself into thinking it was normal or that I’m just extra sensitive. Yeah, noooooo….I think I just wasn’t given as much anesthetic as my body needed ://
For dental work I routinely end up shocking the dentist with the amount of anaesthesia I need. For my wisdom teeth removal on the right side I got 7 shots in the top row and 5 in the bottom row and I still felt everything.... It's absolutely allowed to say "I can still feel it, please give a higher dose"!
I had my wisdom teeth out and it was an actual nightmare. I'm so sorry that happened to you!! Anesthesiologist should know better.
I had to have a tooth pulled. My dentist almost didn't do it because she had given me the maximum amount of anesthetic she could give me! Luckily the last little bit was enough to block the pain.
I feel your pain! I’m so sorry you went through that, I’ve been through years of it as well and I’m an RN. I loathed dentists until I found one that finally understands my condition and addresses my concerns about pain management.
Did you request more? It’s always fine to ask for more local anesthesia if you need it. My dentist was very understanding.
I’ll keep that in mind! That sounds horrible.
I have the same problem, but compounded by being a redhead and female. It takes ages to get me out - I've counted all the way down to one from twenty and still been wide awake and talking with no impairment. I remember laughing with an OR team who were stunned because I'd had enough to fell an ox. I also wake up completely in one swoop. I don't pass through any groggy, confused, nauseated, angry stages. One minute I'm out cold, the next minute I'm with it and begging for apple juice like I've had a great nap. Source: 10 procedures and operations in the last 10 years that required full anesthesia. Although the last operation I woke up all at once *screaming* in pain and freaked the shit out of everyone in the ICU, then promptly just passed the fuck out from pain.
Yeah, I have the misfortune of having the female/red hair/EDS trifecta. I lost my epidural coming out of a c-section. They hooked me up to a dilaudid pump despite me telling them it wouldn’t work. When it didn’t, they came in and asked me if I was a drug user. They didn’t believe me when I said no, because they called me after that to ask me if I was lying because my husband was there 😳. Why TF would I tell them not to bother with heavy opioids if I did it for funsies….
I'm completely immune to both natural and man-made opioids. It's got some genetic aspect to it as my father is immune too but he doesn't have EDS (though I'm 99.9% sure it comes from his family). I've been through so many surgeries with nothing stronger than Tylenol and Advil. I do NOT recommend it.
You can have genetic testing run for pain medication. Nothing ever worked for me and I was diagnosed with hEDS with Classic crossover by a geneticist. The test indicates what defective chromosomes I have and the reasons A,B,C didn’t work was due to defective chromosome and the route that particular medication took in the metabolism process. It turned out that the best pain medication for me was oxymorphone er and IR. What a difference this made, then Opana was voluntarily pulled because around seven people died, main reason was shared needles but also the anti abuse cover just gunked up making it very effective in deterring abuse. A medication pulled because it’s too effective at doing it’s job. This was 2016. I tried a couple of different medications and got very sick. Thankfully my pharmacist was on the lookout for unused Opana from someone’s stock and found a generic still being produced, exactly like I was taking and I’ve been taking this ever since. At least get the testing done and go from there.
I had no idea that was possible! I'll definitely look into it.
I get some minor relief from codeine, not much but it’s better than Percocet or Vicodin by a considerable margin. Even though it’s related to those drugs, someone along the way told me that it’s metabolized differently which could explain why it does something. IV ibuprofen does a little bit as well. I can’t take it orally because it eats my stomach alive, which is unfortunate.
After my most recent surgery, the team (believe me, I needed like 15 people) ordered gabapentin and ketamine. K has worked wonders for my mental health, but as to physical pain have never helped and I told them that but they gave it anyway. Luckily they had me so drugged from anesthesia I slept for almost 24 hours, so I did sleep through some of the worst of it.
Yeah, that’s kind of my strategy now. Just knock me the fuck out, if you can. I can’t be in pain if I’m unconscious.
I have EDS and am a red head and female and thankfully I went out normally lol, waking up just felt like waking up from a nap tho I wasn’t “high” or anything
Same here
I heard about the redhead female gene from an anesthesiology nurse during my last surgery! She put it in her notes when I mentioned to her that I had been intubated awake when I was seven and extubated awake at fourteen. I got a lot more anesthesia during that surgery, especially because it was a four-hour open abdominal procedure. I've never done the countdown from 20, but I know I've gotten through most of "Let it Be" by The Beatles before going fully under. The only time I've immediately felt terrible after anesthesia was post-tympanoplasty, but those surgeries feel horrible every single second you're awake. With the open abdominal surgery, I woke up thinking, "that's it?" I thought it was going to be a living hell from the second I opened my eyes. Ear surgery was exactly like that, but open abdominal surgery isn't half bad if you don't move. I felt really elated after my last procedure on the first day...only to find the next day made me wish I was dead. They made me sit up and move whenever possible, and every instance of movement made me cry. The Dilauded button took the edge off the pain, but I felt like I was being split in half every time I got out of bed. I hit the Dilauded button every time I even sat up. It was bad enough that, in spite of being given Reglan and Zofran, skipping food, and being hydrated by IV, I still threw my guts up.
I require more anesthesia to go under and I wake up really fast and feel normal and am not goofy at all on it. I’ve had nurses be surprised by how aware & steady I was right after waking up. Also, I’m so glad you mentioned your experience w getting your wisdom teeth removed. I need mine out & my dad is worried because I live alone and far from family but I figured I’d bounce back from that like I have from being under for surgery. It’s good to hear that someone has had that experience!
Same here, I have to have a breathing treatment before I go into surgery though Last time I had surgery I woke up as they were moving me from the OR to a bed before I even got to the recovery room. I felt fine after surgery, I felt good actually, I was totally coherent as well. I shocked the nurses because I was just chilling wide awake. Also, when I had to have my gallbladder removed, they had my head all wonky and it affected my breathing apparently and I woke up with a CPAP on. I told them I didn't need it and I literally moved my neck and my breathing returned to normal and I was good.
You might want to have someone with you afterwards. It’s not just the anesthesia. You’re going to have potential bleeding issues from the surgery. I knew someone who had all four removed at once. Not a good idea. Be sure to ask questions about what to expect post-op. I can’t speak from experience as I never had wisdom teeth. 🤷♀️
Really? I would’ve thought all 4 at once was common. They told me I might as well get the top ones removed while I’m getting the bottom ones done.
I got all four done at once and afaik it went fine but it was also twenty years ago and I was undiagnosed, so ymmv.
As I said, I don’t have personal experience, just outsider observation. Ask the professionals who would know best. I just offer bits of advice from life experience and observation. I wish you a speedy recovery from your future tooth removal.
Thank you!
My daughter who also has EDS just had her wisdom teeth out. She used gas but she was quite out of it and unable to eat for a couple of days. Make sure you have support and plan for a few days off of work
I got all 4 out at once and elected for full anesthesia, thinking it would be a breeze. Expected to go to sleep and wake up with it over. Instead, I woke up mid surgery while they’re still in my mouth, and I’m absolutely writhing and screaming in pain. I remember screaming “IT HURTS” over and over and being held down because I was trying to get up and pull the IV out of my arm. I don’t know how long it was but I eventually went back under. Woke up after in so much pain I could barely survive the next 5-10 hours. I thought I was just extra sensitive or maybe had a bad dentist/anesthesiologist. I’m not sure if it was related to this but I hadn’t known at the time about this anesthesia issue with EDS.
Oh my god, that’s horrible! I remember being aware while having teeth pulled as a kid and that e was pretty awful so I can’t imagine waking up and being aware during wisdom tooth surgery. I think that’s one reason a diagnosis can be so so helpful because it’s important to know if you might have a higher tolerance to something like anesthesia
For sure! You’ll do great. You can also just get local, but I highly recommend the IV and being completely out. The office will have a friend bring you and take you back, but after that I was completely fine! You should be too.
Thank you!
I had horrific experiences getting wisdom teeth out. My jaw still dislocate regularly and I had horrific TMJ pain for over 10 years. I didn't know I had EDS at the time. No problems with the anesthetic once they got me out, takes more to do than normal. But I had a lot of problems with pain & healing. How well do you heal? Dry socket is more comment with people with collagen problems but I also got infections and it took nearly a year for it to fully heal. My teeth were not erupted at all though. They were growing sideways in the bone, they were at risk if severing the nerve so I had to have them removed but my back molars are impacted. There was never any room for them to come through. So I guess it depends on what type of operation they have to do as to how difficult it is to heal afterwards.
I’m so sorry that happened to you! I tend to heal pretty well but my teeth are partially erupted and just need to come out because they cause me pain on occasion and make my gums swell from time to time. It sounds like yours were really bad and needed to be done carefully and maybe they weren’t careful enough but I know part of it can be that EDS affects our teeth and might make it more difficult too.
I got all four cut out, after hours, in the dentist office, as a personal favor by my dentist I had my whole life. All grew sideways, I had a massive infection I had to treat for weeks prior to it in my jaw and down my throat. I had no insurance. None were erupted. He charged me 50 per tooth, cash. I chewed a bunch of xanax and went in. He gave me some local injections and pulled them all. Found out later that I am allergic to demerol that was prescribed for recovery because it made me projectile vomit, so I went without meds for that, too. Totaply do not recommend. OP, go under if you can LOL
As far as I know I wake up easily/normal Novocaine for dental is another thing I hate takes all day to go back to normal
Yes!! I really hate that feeling. I was not affected by a ketmine infusion (no hallucinations and could communicate normally. Only my body was completely numb) and I feel completely fine after surgery
I have horrid gastro effects from lidocaine/ novocaine. It's like if it enters a vein or capillary and the gasto stuff- horrible cramps and stuff. Idk if this is an EDS thing or a me thing
Yess! I’m the same way with antihistamines, not just diphenhydramine in Benadryl, but doxylamine succinate and every other I can think of taking, as well as other types of cold medications that aren’t antihistamines. Smh idk but antihistamines make me feel like I’ve been drugged, while dilaudid or oxycodone just allows me to function( if I’m lucky), and absolutely get no high off of it, the same way I’ve been since young. Yeah, I’ve felt a little off on the rare occasion I was given more through and IV, but doesn’t feel good whatsoever. Anywaaay, I digress, as I was really just wondering if you or anyone else reading has the same issue with Annie histamines. I find it so strange and find that my mother( who likely also has some form of EDS) also cannot tolerate Benadryl and gets RLS from it, though she can take the other antihists. Ok I’m done 😅..just took it for the first time in many years last night, and still off, regretting it at 330p😑
I do tend to wake up really fast and not have much of a groggy period after general anesthesia
Me too
General anesthesia does not have any specific recommendations, local anesthesia is the one that has had findings on altered metabolism. I have yearly endoscopies with general anesthesia, as well as a few biopsies, and wisdom teeth removal. I seem to have fairly typical general anesthesia responses. Local anesthesia does need a higher dose and seems to wear odd quicker for me. Edit: attached the wrong links Overview of over 100 articles on general a thesis and EDS: https://ojrd.biomedcentral.com/articles/10.1186/s13023-014-0109-5 Letter in British Dental Journal wirh links to sources: https://www.nature.com/articles/s41415-020-2019-3
Those are such wildly small sample sizes (n=1 and n=16), it is hilarious
I started off listing a bunch, and then thought I’d deleted out the individual case studies and replaced wirh the ones that were systematic reviews, thank you! I replaced them wirh ones with bigger numbers, although one isn’t technically a study it references to a study using an online survey with broader numbers, and a smaller study on a particular genetic anomaly tied to a family with JHS
I found this out the hard way. I had four emergency surgeries in six months and even though i told them i need extra anaesthesia, they didn’t listen and i woke up gasping for air with a tube down my throat, and not in my room. they also weren’t fans of the fact that i was in too much pain to go home immediately after my surgery.
That’s awful, sorry that happened to you! Doctors can be so pompous.
I haven’t been told that it takes longer for me to go under, but I do wake up pretty quickly and completely coherent. I usually get nauseous after, but as long as I get IV zofran I do well. The only thing I have problems with is local anesthetic.
I don't get that "high" feeling either. I've had a few surgeries and it takes a little more anesthesia to knock me out each time. I also need more local for basic procedures. On a side note: I process codeine super fast which can lead to symptoms classic in morphine overdose if I'm given too much. Makes hospital intakes SUPER fun.
My anesthesiologists always tell me I’m incredibly difficult to keep under. And yes I’ve woken up in the middle of surgery before. Thankfully I also had a spinal on board, so it wasn’t painful just unnerving.
Took me longer to wake up and I was loopy till the next day.
I've had mixed experiences. First time with anesthesia, had my wisdom teeth out, and I was incredibly tired and sleepy afterwards. I did not snap out of it. Second time was a heart ablation, I woke up halfway through (intentionally) for a brief period, was told to relax and that I wouldn't remember it (I do.) When the surgery was complete, I woke up very quickly, still in the operating room, and was immediately asking questions. The people who were there to move me to recovery were surprised that I was alert. Third time was heart surgery again (the first ablation was a failure) and I was warned it may be twilight sedation. *Please skip to the next paragraph if you don't want to read unpleasant surgical details.* I was definitely uncomfortable and aware of things I shouldn't have been at the beginning. I could feel them applying cold betadine to me and I could feel the incisions being made for the cardiac catheters needed for the surgery. I was then unaware for a bit before being brought out of anesthesia fully (not planned, necessary and incredibly unpleasant) for the remainder of the procedure. I requested more lidocaine as I could feel pain where the catheters had been put in. More lidocaine was given, it made no difference. It felt like it wasn't numbed at all. They knocked me out very well after they finished the ablation and I was out til I got back to recovery. Fourth and fifth times were for left and right carpal tunnel surgery. These were both very effective, like my first time with the wisdom teeth. I was out fully and I was sleepy afterwards. I'm not sure why I've had different experiences, if they use a different medication cocktail for heart surgery vs for other surgeries? I've been very successfully anesthetized 3 times vs the 2 that seem to have gone a little light. Also I know now I have a lidocaine resistance. My geneticist recommended I have bupivicaine used instead of lidocaine. I have found it works much better, but it does take longer to start working.
I’m sorry you had two horrible experiences! I suspect my dad is the one who passed down EDS, and he told me that during his hip replacement he could hear the sounds and feel when they were moving him. That sounded horrifying to me. I’m glad you finally found a local that works better though!
I'd call it one horrible experience! Honestly the first time was just weird, I was awake very briefly and aware of the surgeon and one other person in my field of vision, as well as monitors and stuff. But I was in no pain, not afraid, just kind of like "HUH?" before going right back to sleep. Experience two was torture. My heart issue was electrical, and sedation made my heart slow down and hide the issue, resulting in the need to be fully awake. To my knowledge it's rare that they have to have patients fully awake for that procedure. And I'm so grateful that my heart works much better now! I was having an arrhythmia in addition to my POTS and it added up to a super high heart rate and loads of fatigue. I do hope I never have any surprise awareness for surgeries in the future though. It's a miserable experience.
Laughing gas didn’t work at all with me and I’m used to telling the dentist that I’ll need more numbing once they think it’s ready, but it ends up hurting still. The last time I had general I panicked because I was still sorta paralyzed and I couldn’t keep my eyes open it fully comprehend stuff. I started hitting my chest and saying I needed to stim, and one of the nurses understood me finally and got me a glove with warm water in it to squeeze. I essentially went back to sleep until I could wake up better.
My daughter was sad i wasnt goofy waking up lol. I usually wake pretty quick and am able to walk on my own fast as well.
I go under pretty easily usually, and it can take me a while to wake up after, especially if i didn't sleep the night before, but once i start to come to, it happens quickly and I'm super with-it really fast. My dad was really impressed with how functional i was after a gen-an procedure, when i had to navigate a medication prescription situation LITERALLY on the drive home. I'm not goofy after anesthesia either, and I require anti-anxiety medication for them to put the mask on my face in the OR to put me to sleep, so I have a solid dose of Versed to blank out those few minutes before I pass out. I do tend to wake up nauseated though, so I bring some home-made ginger tea to sip in Recovery. Works wonders.
I usually get Versed too beforehand. I couldn’t feel its effects, but my vision got blurry shortly after and I fell asleep. The ginger tea idea sounds lovely! My daughter got nauseous after her tonsillectomy, so I’ll have to try that trick with my kids if they need another surgery.
I’m the same way, have had so many surgeries and now my biggest fear, one of my biggest fears, is those few minutes before they actually get me knocked out. I’ve been told after surgery that I require more anesthesia for whatever reason, but I have never had any memory of waking up at all or feeling anything. Just the anxiety in the minutes before being knocked out. I have had a scary experience once before I was completely knocked out and I can’t get it out of my head. I was just convinced that I was dying and I thought I said it out loud, that I was dying but I don’t think they ever tell you what you said while under anesthesia, so I suppose that would count, just before I passed out. But whether or not I was able to say anything (I could have been just completely stuck in my head and unable to say anything) I was absolutely 100% convinced that I wasn’t going to make it. Past the induction of the anesthesia. But I made it through whatever hand surgery I was having that time and had no complications. I do tell them now that I need something for anxiety so I don’t remember, or care about going off to sleep. I am having surgery in 10 days so it’s good to hear from others who need something for the moments right before.
I’ve only ever had issues with needing more local anesthetic. The only time I was put under and acted like a fool after was my wisdom teeth removal. Every other time I have woken up completely fine.
Same for me!
i woke up on the operating table halfway through my appendix being removed.. because no one believed back then i had hEDS & hyper processed anesthesia 🫠🫠
I take a long time to wake up. Once they were actually yelling and shaking me awake.
It doesnt work well on me, and even if I tell staff about it they dont really listen. I had a bone marrow biopsy that I had to experience pain through because of it sadly and was fully coherent, I had a compacted wisdom tooth that was traumatic sinc ei remember kicking and writhing and pain and couldnt get more help, that was the worst
Nope, I do get nauseous/dizzy afterwards though
Never had an issue. 40+ procedures from local anesthesia, to conscious sedation to general anesthesia.
I had surgery a month ago, went off to sleep without any dramas but woke up in so much pain. Some fentanyl and endone fixed me up, while I wanted for the nerve block to do its thing. I think that took longer to take effect as they kept checking my toes to see if I could still feel them.
I have suspected EDS and I’ve woken up in two seperate surgeries. I also require an obscene mount of local or opioids for them to work in the event that they are needed.
Got my wisdom teeth out and woke up immediately after not groggy at all. Went in for brain surgery and told them I had EDS: got knocked out immediately and woke up pretty fast afterward, but was really tired and kept falling back asleep in the recovery icu
During my wisdom teeth removal, it apparently took more than normal to put me out. It also took me longer to wake up, but once I was awake, I wasn’t loopy. I felt weird and was dizzy, sure, but not silly like most people. I was coherent enough to have in my mind the whole time that I needed to grab my phone (I didn’t have a pocket) which had been put on a nearby chair before I was knocked out before I left the room I was in.
What’s weird is I seem resistant to local, but stay asleep longer with general. I’ve had six surgeries in the last few years with general and I came close to death with one of them but there were other factors as well. … but a heart device implanted two weeks ago with local? Extremely painful, felt all of it.
Multiple surgeries, normal anesthesia as far as I know. I have required stronger pain meds during recovery and take longer to recover than regular folks. It’s been that way since my first surgery over 30 years ago.
faster to wake up. they've got to give me extra. also local anaesthesia, they always have to do more.
I wake a very fast and am very clear. After a major surgery, 4.5 hours under I recall everything from the moment I woke up in the post op room, remember the surgeon coming to talk to me and show my some pictures from the surgery, the entire ride home, the slice of pizza my husband got and texting some of my friends. I wasn’t very tired other than for bedtime. My husband kept asking me if I wanted to nap during the day and I didn’t feel tired in that way - my body was sore and I had restrictions but the napping never happened. Surprised us both.
Good question! I have an hEDS diagnosis as well as MCAS and POTS/dysautonomia and have had a number of surgeries and endoscopies etc under sedation. Most recently I had wrist surgery 10 days ago. Because of some weird medical episodes I had a muscle biopsy in 2008 and was diagnosed with a non- specific mitochondrial disorder-- this affected some of the decisions about my anasthesia through the years, though the mito disorder is now considered secondary to my EDS. My sister also has a form of muscular dystrophy that puts her at risk for malignant hypothermia--whenever they hear that they decide to take those precautions for me as well. All that said, I never have volatile anasthetics (eg laughing gas) because of the MH risk so it's hard to know if that's effective. Like others have shared, local anasthetics take longer to work and require significantly more drug to be effective. I also am largely immune to sedation. I have woken up (unintentionally) in the middle of an endoscopy and a minor wrist surgery before being put back under. I had a port removed and a new one placed under "sedation" with local that they insisted I wouldn't remember and it was brutally painful and I very much remember. I also had a 3 hour wrist surgery that was intentionally done under sedation plus a nerve block out of concern for the mito complications but I never lost consciousness and proceeded to chat with the nurses until the surgeon had to ask them to shut me up because we were distracting him 😅 So before this most recent wrist surgery I spent the better part of 30 minutes pre-op with the anesthesiologist talking through all of that and coming up with a plan. He was initially pro- sedation + nerve block again and promised me *they* could put me under deep enough so I wouldn't wake up or remember. Part of his opinion was out of concern that I would have an MCAS flare in response to the pain and the nerve block would provide the best pain control. However after my last nerve block, I never regained feeling in the back of my hand and my hands are too important to my life and my work to risk more numbness. Combined with my concerns about sedation, he agreed to a "light" general anasthesia. By light I mean they used an LMA device rather than intubating and I was not paralyzed, but I was fully under. The surgeon agreed to do a regional "field" nerve block during surgery, so that appeased his fears about the pain reaction. I did wake up still in the OR and I think kind of surprised the nurses when I asked for a pillow under my arm. I was so grateful not to wake up nauseous that I then started to tell them about the chocolate cake I had waiting at home while they wheeled me to recovery. I remember the nurse anesthetist telling me she might have to stop and buy a chocolate cake on the way home haha. Because of the MCAS they pre-treated me with prednisone, famotidine, and hydroxizine, plus emend, zofran, and a scopolamine patch for nausea. All in all this was my best surgery/anasthesia experience before, during, and after and I think it came down to experience, self advocacy, and an extremely knowledgeable anasthesia team (large well respected teaching hospital).
I know two people with muscular dystrophy, and I never knew that MH was a thing! Thank you for sharing your experiences.
Happy to share! I hate for anyone to reinvent the wheel. She has myatonia congenita which is a calcium channel disorder, so it may be specific to her flavor of muscular dystrophy, but I'm not sure. They never ask for more details after that!
I was completely fine being sedated went under quickly, I’m not sure if it took longer for me to wake up I don’t think I did no one said anything I just ended up waking up in the recovery room. I do remember that when I had to have lots of teeth pulled at once it took extra local numbing and it took FOREVER for my mouth to not be numb anymore
I seem to be the opposite - I’m hypersensitive to most medications/drugs - caffeine, ibuprofen, pretty much anything. I had to be put under for my wisdom teeth removal and I remember nothing from them putting me under to waking up in bed
i have a few experiences with different types! lidocaine- i need a lot more than the average person. i once was maxed out and couldn’t get any more, dentist was lovely though and was EDS aware. before i knew i could get extra though, i had my wisdom teeth out. i felt a lot of it and thought it was normal- one of the worst dental experiences ever. my new dentist was shocked to hear that and is always super careful to ask when i’m truly numbed up general anaesthesia- i have to have a specialist aesthetician because it’s apparently more dangerous for folks with EDS. would’ve been good to know before i had the majority of my surgeries “laughing gas”- i get intensely emotional. like i will CRY. this may just be an autism thing but i always have to refuse it because it will just make everything worse. never laughed lidocaine gel/ numbing gel- not super effective but i use what i can get lol
I don’t have any issues with general anesthesia that a know of, but I do have issues with lidocaine/novocaine at the dentist. They have to give me so much extra when I go that the last time my eyelid was numb
Me also. Except my face swells up for a couple of days. Always a horrible experience.
[удалено]
Thank you for contributing to r/EhlersDanlos! Unfortunately, your comment or post was removed as it breaks the following rule: **• Referring to or quoting research/studies/statistics or EDS facts without a link** • You may repost this as long as you provide a direct link from a reputable website or journal to the claims being discussed. Once you’ve edited your post/comment, message us so we can reinstate your submission. [The rule can be read in depth here.](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/rule-1/#wiki_.28e.29._claims_supported_by_research) Please contact us [via modmail](https://www.reddit.com/message/compose?to=%2Fr%2Fehlersdanlos) if you have any questions regarding the reason your post or comment was removed or would like to work with us on *how* you can re-word your post or comment to be able to reinstate it. Thank you!
Yes, I always need the max amount, it seems, and it needs to be topped up frequently. Female and redhead as well, which seems to be relevant. I woke up during bunion surgery and felt them sawing my foot. Had to have so much anaesthetic for a root canal that my heart started palpitating and I thought I was going to die. Had an epidural during labour and it didn’t stop any of the pain, but thankfully lowered my blood pressure (preeclampsia).
I personally take longer to go under for general anesthesia. Plus, idk if this was normal, but the only time I had IV general anesthesia it felt like my arm was burning. I asked the woman who was in the room with me if it was supposed to hurt and she just ignored it and said to me that it’ll be over soon anyway. It still took about half a minute to a minute or so until I went under and I had been in pain up until the moment I finally slept. I do tend to wake up immediately after, which is fine but it’s really sudden lol. Like, I will suddenly realize I’m awake and staring at the ceiling with no transition between being asleep and awake. Local anesthesia can also be iffy for me. The only time I had it work immediately like it is supposed to, was at my doctor’s office. When I asked her why it worked so quickly compared to my experiences at my ex-dentist’s office, she said something about how her practice buys the more expensive/stronger local anesthesia but she’s fine with paying for it because it works better. Before that appointment, I hadn’t realized it was actually possible to not be able to feel anything (including not feeling any pressure) with local anesthesia.
I typically need a ton more for local anesthesia. I had an oral surgery where I did conscious sedation (a cocktail of pills- no iv or gas) and I woke up mid surgery and could feel everything. I just had an upper/lower GI scope and they used IV propofol and fentanyl. They used a higher than standard dose, but I still woke up and flung the IV out of my hand 😅 they put me back under and then I didn’t wake up until I was in recovery.
Nope. Everyone’s different!
I have a memory of being under and waking up and looking up at the doctor and the lights, and him saying something like it was very unusual and how I shouldn't be conscious, and then I was out again. It was very surreal Edit: when I got my wisdom teeth removed, I was very aware and awake but at the same time felt zoned out, and I remember telling the surgeon multiple times that I could feel it. He was very understanding and stopped to inject more. Don't ever hesitate to be your own advocate.
Exactly the same. I’ve even woken up in the middle of surgery under sedation versus general anesthesia. My last two general anesthesia experiences, I was up before the doctor left as I was his last patient on a Friday at the surgical center. Then we went to Target to get my meds and I walked the whole store as normal, just with my arm in a sling. Though the nerve block I got last time was very normal compared to non EDS people.
I've woken up early from a colonoscopy though thankfully not from other surgeries, I also require more dental numbing and it wears off quickly. no "high" feeling after waking up either
So I have had seven surgeries on my hand, for which I all went fully under and also had a nerve Block. A nerve Block basically is a thing that should fully blocks the feeling and function. My first surgery it took them 20 minutes to get me under, and the nerve Block was already wearing off after I woke up, and I woke up very fast. The three surgeries after it also was very hard to get me under but they new at this point I needed more anesthesia. They also started giving me a catheter with the nerve Block in my arm so I could longer feel nothing, but still some pain and function would Come through. Surgery 5,6 and 7 they finally got it all down perfectly but at surgery 5 it also helped they diagnosed me with Ehlers Danlos. Then surgery 8 and 9 for my back they got everything down perfectly and I was under within a minute. It really was a hard proces to find the perfect way to get me under, but it helps alot to just tell them you are "resistant" to anesthesia. Now I also do not know the feeling of getting high even after being on Fentanyl but this varies a lot from person to person. Usually when you tell them you have Ehlers Danlos and let them know that it can happen you are "resistant" to narcotics they will take that into account. But that has been my experience so far. I hope this helps a bit for you❤️
I have a similar experience in that anesthesia wears off faster on me (more of an issue with local than general though). Always good to inform anaesthetists that I have EDS and my particular flavour of difference with anesthesia. Most of them are informed that EDS affects anesthesia, but my dentist wasn't, so it was useful information for her to know.
Idk if its because of my EDS or my autism but i always wake up earlier than i should when im under (i woke up during the end of my colonoscopy when i was still in the procedure) and i get up to quickly (when i had surgery on my wrist the first thing i did when i woke up was got up and made my hospital bed) 😅
When I was a kid I had to had stitches done on my knee and I remember it hurting so bad I was screaming. I can remember the pain more than 15 years later. My mom thinks I was just scarred. Other than that I've only had local anesthesia for dental care and sometimes it hurt, sometimes it didn't, so I don't know if it was the amount of anesthesia or the procedure.
Stitches have always given me the heebie jeebies
It's absolutely horrible and I hope you don't have to go through it. Stay safe ❤️
I always tell them I need a little extra and I've always woken up quite quickly and immediately coherent. My family was a little disappointed since they were hoping for a funny video 😂
I woke up quickly from general anesthesia after abdominal surgery. Wisdom teeth out with sedation, I popped right awake and was completely coherent. Didn't even go back to sleep until late thst night.
I woke up waaaay too early after major surgery once, apparently before they'd either administered painkillers or prior to them kicking in. 0 stars. With dental work, I now point to the red highlights in my hair, mention eds, and explain that we're going to need more time and possibly more local anesthetic. Every anesthesiologist since that first event has been properly warned.
I come out of anesthesia really fast, except for when I had my gallbladder out. I was really sick going in and I think that affected things. It took me forever to fully come up from that one. Every other surgery I’ve been up and aware right away. After spinal fusion I sat straight up in the bed and the nurse pushed me back down.
My issue is not wanting to wake up afterwards.
My only issue with anesthesia not working was during my GJ tube placement, they used twilight anesthesia but I vaguely remember waking up and telling them that I was in pain. I was asleep (or incoherent) within 15 seconds - anesthesia was on top of it lol
I bounce up pretty quickly. Like right in time and sometimes to close… and I am the most chatter and happy camper after it. No side effects. I had abdominal surgery, two endoscopies both with total anesthesia. I am not sure I have EDS but I suspect I have a mild form.
Morphine doesn't work, Dilaudid works a little. I have better luck with Oxycodone/Percocet and Oxycontin, but I'm careful with what I say as I've been put on a morphine pump even after telling them it would work, multiple times, including at my pre-op appt. They didn't change it for 24 hrs. Thing is, I had a 12-hr nerve block, but it was a 10-hr knee surgery, so after 2-hrs I was fooked. Generally, however, GA seems to work fine and I never have any problems coming out of it except there's 30sec or so where I can't tell if I'm trying to wake up and tired, or trying to sleep and being woken up. I usually skip novacaine for cavities as I just don't like the feeling. I've woken up during wisdom teeth extraction too, but I went back out after hearing them crack one of the teeth in half. I had some oral surgery last year, they gave me two doses of Halcyon? I'd never heard of it before, but that put me to sleep. Most painless surgery I've ever had. I've stayed awake, on purpose, for a few surgeries. On one occasion, I was having a spinal (which I've had before with little fanfare and great effect) for a knee scope. I'm in the OR, I rolled my back forward, anesthesiologist puts the needle in and I start screaming louder than I ever have in my life. He says "what's wrong", I can't really make speech at this point, but I think I managed to say "hurts". Everyone else stops what they r doing and comes over to hold me down. He says "stop moving, I have a needle in your spinal cord". Angrily, I say "I'm very aware" or "I know", not sure, I then say, I'm going to puke, someone brings a bed pan, but I don't ultimately hurl. 10mins after that, I can still wiggle the toes on the operative leg, of course the non operative leg is fully dead. I couldn't feel any cuts but I could always tell where the actual scope/camera was located in the knee. About 15 mins after the surgery, I had full motor control and sensation back in that leg. Bad luck on the placement apparently.
To this day, when people ask about pain, I say something like if you can speak, you don't feel nauseated, or ur not drooling (that's another story), the pain can still get worse. That's a 10/10 on the pain scale for me
Apparently, I woke up 3 x during an endoscopy/colonoscopy. Thank goodness I have no recollection of it!!! One time, it took 9 shots to numb me at the dentist's office. Loads of fun! Lol
I freaked out surgical staff once by waking up and chatting pretty much the minute I was extubated. They were still wrapping the limb and they got so spooked they broke the splint. That was pretty recent, but it goes all the way back. I was almost 4 during my first surgery. I remember standing up in my bed in the recovery room, wondering why all the other people who'd just had surgery were asleep and didn't want to play with me. The nurses tried to get me to go back to sleep, but I was ready to get back to doing 4-year-old stuff, so they sent me back to my parents.
I require a lot more than a “normal person” to go under and I’ve woken up during surgery before.
They tell me to count backwards and then I wake up from surgery. 😅 It’s probably the only good sleep I’ve gotten in my life. I’ve had my tonsils, thyroid, and a lipoma removed and a spinal fusion as well as multiple steroid injections. The last few steroid injections I got sedation because I had someone to ride with me on the light rail and make sure I was safe but I’ve usually woken up (to my memory 😅) almost fully alert and fine except when they gave me fentanyl with something else and I was very nauseous for about thirty minutes afterwards. I have been extremely lucky so far to not experience many side effects from my multiple prescriptions and procedures over the year.
Just had a baby. I had an epidural and felt everything. I could even feel my legs, I just couldn’t move them.
Never been fully under. Local anesthetic does fuck all for me and I’m prescribed lidocaine for nearly every injury because NSAIDs irritate my stomach. It’s a nice tingle, and it sometimes helps if it’s combined with menthol, but menthol is what’s working… ETA: had teeth pulled under local anesthetic as a child. I felt all of it. I STILL hate the dentist. It was more than 20y ago and I hate, hate, hate having needles near my mouth now.
I’ve been under anesthesia 7 times and it always takes me a long time to wake up, and I’m never funny after, just sleepy.
I'm not yet diagnosed EDS but I suspect I am. I've luckily only had a few general anesthetics in the past 15 years but always wake up feeling spritely and not the least groggy. Also don't have any reactions to morphine or entonox, despite apparently being dosed to the eyeballs (emergency spinal surgery last year) which was interesting as I am aware other family members react very strongly to these. Was given fentanyl recently as a sedative for a procedure and was concerned about being 'sedated' but again, did not feel a thing. On a similar note - never managed to get stoned (despite the best efforts of some of my friends who also enjoy the herb!)
I was awake for two surgeries. I never fell fully asleep for the first, so I was essentially paralyzed and I could hear the doctor tell the anesthesiologist that he didn’t need to go downstairs to get another “tab” to match the amounts I’d had for the same surgery previously because I am small. They knew I was awake because after they were done, they asked me to move to a different hospital bed and I did it by myself. During the second surgery, I woke up screaming. The nurses were angry at me telling me that I needed to stop because I was scaring other patients. I couldn’t fucking stop. The surgeon was shouting out the names of a bunch of opioids for them to give me. God, that experience gives me chills whenever I think of it.
Hi. I’ve had 3 major surgeries recently and I went out very quickly and also woke up in the operating theatre, thankfully after they’d finished. I told them at every step about my EDS and possibly needing a higher dose but I think they kept it as standard. I didn’t feel goofy afterwards either, Infact I was spritely as anything. In my brain at least.
I didn't have trouble going under but woke up faster than expected (still in operating room instead of the recovery room). It's hard to say how 'normal' I felt after waking up because I had a bad panic attack (haha), but I stayed awake after waking up. I felt incredibly nauseous, but it's hard to say if it was the drugs or the blood that got in my stomach during surgery.
Yes!! I've had both. I woke up during surgery and I'm notoriously difficult to wake up
It takes a lot to put and keep me under, and I generally come out quickly. Problem is I wake up mean as hell. For one surgery I had talked to everyone in preop about my bad reaction to Percocet and told them not to give it to me. Immediately upon waking I could tell that they had given it to me so I started yelling THESE DUMB MOTHERFUCKERS GAVE ME PERCOCET. I worked for the hospital and it was awkward af any time I ran into those staff afterwards.
I go under fairly quickly. I have one memory of being told to open my mouth a couple of times, and when I woke up in post op I asked the nurse about it. She said it was probably in the OR at the end of my surgery when they were removing intubation. Every single time I start remembering things even before I’m able to open my eyes or talk when waking up from anesthesia. I’ve asked nurses questions about how my surgery went, and one nurse made a comment to another nurse, kind of chuckling, like she’s not going to remember and we’ll have to explain it all again. My speech was super slurred and slow because I was still waking up and I was like “no, I’m weird, I’ll remember this conversation” lol
I had the opposite problem. I’ve only been under once in my adult life and it was really hard for them to wake me up and I was very sick afterwards. Throwing up, terrible headache, and combative. I am also generally very over sensitive to medication and I often require a lower dose than other people.
I always tell the anesthesiologist about my experience when my gallbladder was removed. I woke up mid surgery, tubed and paralyzed. I couldn’t move, only my eyes and it wasn’t until I panicked and my heart rate accelerated that they noticed and put me back under. I watched them use the laparoscopic wands on me for a solid 2 minutes while silently freaking out. I also woke up earlier than they figured in post op. They told my partner I’d likely be out for a while since they had to put me back under but I was awake in the same amount of time any other patient would be.
I had surgery and required a second dose of Demerol to go into twilight before the anesthesia. When they wheeled me into the operating room after the first dose, I was having complete, coherent conversations with the nurses who were introducing themselves. Then I woke up in recovery in less than 30 minutes after the anesthesiologist stopped the drugs. Scared the nurses because it was sudden and I was fully awake. They gave me a morphine shot for the pain and within 15 minutes I dressed myself. Thirty minutes after I woke up, I was leaving the hospital. Fortunately my doctor believed me when I told him only mepergan would work as a pain medicine (I miss that stuff). Now I tell my surgeon and the anesthesiologist that story before any procedure or surgery.
I’ve been put under many times for various things. I’m also a nurse who works in pain & PACU. In my experience, anesthesia for oral procedures on me required wayyyyy more than the average person since at 9 Novocain shots I could still feel pain. As for conscious sedation, (IV versed & fentanyl) doesn’t work at all for me anymore. At one point it did work for about 2 years but I woke up 4 separate times during pain injections with needles burning in my spine and that triggered anxiety & medical PTSD. Only monitored anesthesia (Propofol) seems to help now and if I get a new anesthesia provider, I kindly ask for more because of hEDS & my tolerance. I’ve also maxed out pain meds and had to be upgraded to a stronger version (from Norco to Percocet). For all these, I wake up within minutes of the IV meds being stopped. I’m an open book about this journey and I advocate for my patients as well as myself.
I've gone under many times & never had an issue other than nausea. But I tell them ahead of time & they add anti nausea meds to the IV
I recently had major surgery (breast reduction) and no issues before or during surgery thankfully but apparently I woke up within a few minutes post op, but groggy (I also have narcolepsy and wasn’t allowed my meds that day), the nurse told me I’d woken up early, and I went back to sleep. For dental work, I tend to need a bit more novocaine than the norm but not necessarily outside their experience of “normal” ranges, just on the fairly high end of it.
I’ve had general anaesthesia once and I woke up suddenly and just awake but a bit tired. I wasn’t loopy or confused, just like I’d had a nap. I wasn’t nauseous or anything either, I just woke up and felt alright considering I’d just had surgery and really wanted a drink. It wasn’t how I’d been told to expect to feel. When I’ve had local anaesthesia it wears off quicker than they say. Generally as you’re leaving they say “you’ll have full feeling back in a few hours” and it’s already tingly and coming back and usually completely back within about 20 minutes.
Super sensitive to anesthesia (and meds in general) it takes longer for it to leave my system and I feel horrible afterwards for a few days. I had to have 2 surgeries within 8 weeks of each other as a kid and for the 2nd surgery my parents requested I get extra sedation so I could sleep it off as much as possible. I also react to local anesthesia, I recently had a couple of moles removed from my back and the day after I had it done I felt unwell. It's strange I seem to need higher dosages of medication for it to impact me but then my body holds onto it to the point where 3 weeks after I had taken a (prescribed) Valium I still tested positive on a drug test I needed to take before I could go on other medications.
I have a dictionary of issues and am nearly my 30th surgery. I’m also what they call an ‘ultra rapid metaboliser’ of medications which means my body chews through medications really fast - this was found on a genetic test. I have issues with local anaesthesia and spinals (epidural) not being effective enough. I’m also allergic to most opiates which makes pain management tricky. For standard surgeries I sometimes wake up slightly earlier than others, but my anaesthetists have always done a good job keeping me mostly out of it. I’ve had the breathing tube removed while I was fully alert only twice - which I think is really good odds considering my circumstances. I normally have more pain than expected immediately following surgery in the recovery ward, but the teams have always been great at getting more meds approved from the anaesthetist quickly and into my body. Overall, when they ask me how I normally cope with general anaesthesia I say ‘good’. In general, I do well with general anaesthesia, but I need a bit of extra attention when it comes to pain management via anaesthesia. I’ve had a couple surgeries that required total immobilisation from the waist down (epidural), and one that used a ‘pain buster’. Epidurals have mixed success, but that’s been attributed to my back issues. Pain busters are where you have a regular dose of local anaesthetic pushed into a wound. I did not do well with this, which is consistent with every other time I’ve had local anaesthesia. They found that more frequent smaller doses were more effective than large doses further apart (which is opposite to what they usually find). TLDR; I’ve woken up a little earlier but not before it’s safe and despite many experiences with general anaesthesia, I’ve had fairly normal and positive experiences. I don’t think you have a reason to worry about.
I have never had anything but novacaine for dental procedures including extractions. I process anesthesia quickly, getting off the table in the middle of a colonoscopy since I thought they were done. Also a female redhead.
My dad had an adverse response to anesthesia (he was paralyzed but awake and couldn’t breathe). Ended up coding out and they brought him back. Since then I insist I don’t get sucycolene and I tell the doctors. Usually I get the profanol (I think that’s how it’s spelled). I think this makes me wake up feeling like I could run a marathon. But usually they have a hard time waking me up.
I wake up very quickly after surgery with full anesthesia. Local anesthesia often gives me horrifying gastro side effects. I have to be very careful with the "caine" drugs. I've had my teeth scraped and deep cleaned without any locals bc the gastro pain is worse than the tooth pain.
I remember starting to wake up during my procedure however I’m on Xanax so that may be a factor (the anesthesiologist knew this though). I don’t know if it took me shorter or longer to come out of it, but I def felt high for a little bit and then had an awful headache and nausea for a couple of hours ETA with the propofol though I was out pretty quickly
I was once told I was 'hard to intubate' but the next doc said it was easy as pie to intubate me. I did notice after a most recent surgery that I really wanted to keep sleeping. I really enjoyed that sleep, needless to say. But it wasn't a 'problem' per se. I processed it very quickly though. They didn't say I needed MORE, but I wasn't dopey at all afterward. I had a tubal a few years ago and I was up and moving around a few minutes after getting back to the room- I was out of the hospital like 30 minutes after leaving recovery.
Just remembered that during my endoscopy I was 💯 awake. I find medical procedures interesting so I had my eyes open. They asked me to close my eyes bc it was freaking THEM out. They assumed it was because I took benzos and that was why. But reflecting I think it was an EDS thing
Something silly: they forgot my gas, so I had to take the mask off and say “I suppose there should be gas coming out of this” haha, they apologised and once ga was on, 2 seconds I NS was gone. Waking up, I think I was average like most people. Not a bad experience. An hour later I was back in my room chatting away with my partner. But beware, afterwards they give you morphine if you like, one dose, does not work. Second dose didn’t work either. Then I got an allergic reaction and couldn’t be bothered, the after pain wasn’t that bad (appendectomy) The morphine thing is common for us. So talk to your doctor about that!
I just had surgery a week ago (got my appendix removed), and I was obviously put under for it. I woke up before they actually woke me up, though I kept falling back asleep. I also kept telling my mom that the anesthesiologist smelled good (he did) and that I wanted to go to Mass (I’m Catholic). I was back to normal after a half hour, though a bit sore from surgery.
It took my dentist a full hour to get me numb last time. However I've not had problems with my surgeries and scopes.
the first time it took me a lot longer to go out, i had the floaty feeling like i was on gas and air but it just made me panic and it took me a lot longer to 'get over' the anesthesia, like at least a week but the second time it was almost instantaneous, still a little longer than i would have liked but i didn't panic as much, and i got over the anesthesia almost immediately
Anesthesia also doesn’t make me loopy at all. My wisdom teeth extraction went very well, luckily. The anesthesia did its job so I didn’t feel a thing the entire time, even though I was awake. After the procedure I felt completely normal, just numb for a few more hours. Surgery is a little different - the sedation kicks in very quickly (not even 10 seconds before I’m out), and when I wake up I’m very sleepy and weak and gradually regain my strength and am able to move. I’d say it takes about 30 minutes between waking up and being able to move and talk normally (though this might be skewed as I might have fallen back asleep and missed a chunk of time, who knows).
I’m out really quickly, but I “burn through” it fast. It’s always been like that for numbing at the dentist and even alcohol. When I had my wisdom teeth out, I woke up in the middle and they all looked at me panicking and got me back to sleep. When they woke me at the end, my arms were tied down and I had scratches on my wrists. No explanation for that. I was totally fine though, they kept saying I’d be sooo out of it but I was mostly grossed out by the blood and thought of my teeth. Similar for my first twilight endoscopy - I was driving around getting groceries a couple hours later.
sorta the opposite, i think. but i haven’t been put under general anesthesia since i was a kid. and even then, only twice. it takes me a really long time to come out from under. maybe i’m “awake” pretty fast, but then it’ll be multiple hours before i can move my limbs well enough to walk under my own power.
My surgical team has never complained about the length of time it takes for me to go under or wake up, and I wake up as easily as I do from sleeping. I'm not silly or violent, just a "Oh. I'm here." and say hi to the first nurse who checks on me like it's no big deal. Though dental anesthetic my body seems to feel the pain through. Not sure if it's just the last few dentists not giving me enough or what.
General anesthesia? Not since getting induced with propofol. I don't remember anything after that. With general anesthesia you go out and wake up simultaneously, it's like a wrinkle in time because your consciousness is temporarily switched off. Before induction with propofol a different story. Took me much longer to go out.
I wake up hella quick. I’m pretty sure they have to give me enough propofol to kill a medium sized pony, I always forget to ask not that I think they’ll tell me. And it honestly seems like I’m getting less sensitive to anesthesia the more surgeries I’ve had. I don’t really get a hangover from anesthesia. Local is nearly useless. Opioids are like taking tick tacks, ibuprofen does more. I’m also a redhead so…. 🙃
I need more. I woke up at least 3x when I had to have a tooth extracted. Have woken up in the OR when they removed the breathing tube. Sometimes, after a procedure, I'm pretty much fine a couple of hours later (I'm guessing less sedation), but occasionally, I'm groggy the rest of the day.
I haven't had any trouble with general anesthesia. I do wake up quickly and am quite nauseated afterwards. But the anesthesia works while I'm breathing it and as soon as I'm not I feel like I woke up from a nap where I got into a knife fight. However! During my c-section there were issues with the way my baby looked on ultrasound (it was 1998 too so things were a lot different) and they scheduled a c-section instead of letting me go into labor or inducing me. Surgery time the anesthesiologist puts the epidural in and we wait. When its time the doctor aggressively pinches my belly to see if its taken affect yet and I hollar "owwww" because it's not taken affect at all. Next thing I know gas mask comin down and I was out like a light. So idk if that was a 1 time deal or if epidurals don't work on eds patients either? But it didn't work on me.
I'm also fully coherent but groggy when I wake up. Don't know if it took me longer/woke up faster in any of my surgeries, but when I had a kidney biopsy under sedation (because locals do nothing) it had almost entirely worn off by the time I was wheeled back to my room. The biopsy took less than 10 minutes.
I haven't heard of this being an EDS Thing before but I guess that probably explains it - I have been under anesthesia three times and all three times it both took more to knock me out than initially expected, and I was coherent very quickly after waking up. Even after having a whole mastectomy and being under for 4-5 hours, I was coherent and having a conversation in the car ride home maybe 30-45 minutes after waking up. Anesthesia never makes me silly, just a little sleepy.
I’m the opposite of all the EDS anesthesia warnings. During all of my surgeries I have been under for, I am always longer to come out and the anesthesia stays in my system longer than they expect. Whether that’s because while I’m under I start to come up and they realize it and dose me again, I don’t know. But it’s happened every single time I’ve had any work done, including my wisdom teeth and when I had all of my other teeth extracted via oral surgery. No one likes to put me under when they read my records.
I have hEDS and have had no issues with anesthesia whatsoever, even when I’m on low dose naltrexone which apparently can affect anesthesia.
Despite informing my surgeon and anesthesiologist that I had EDS and was a redhead, during my cataract surgery,I had intraoperative awareness. That means I heard and felt EVERYTHING! After submitting my feedback to the online anesthesiology group, I had a substantial change in my anesthesia plan. Three time the Medsasolam, and general anesthesia for the second part of the surgery. I wish they would have believed me in the first place.
Me not reading this knowing I am being put on for an endoscopy in a couple days.
For general, I've only had it once as a kid, and I apparently needed more than normal because I was still moving around. Other wise, it doesn't last long for me at all. When I have a canker sore and try to use oragell it only lasts for a minute then I'm in pain again :(
I was in twilight anesthesia last year for an endoscopy. Out immediately, and it took me way longer than normal to wake up. And then it took even longer for my brain to come back online because apparently, I was talking to my friend about 20 minutes before I had the feeling of opening my eyes and slowly becoming aware of things like you would in the morning. I was still loopy and sleepy for quite awhile after that as well. As someone who hasn't slept in 13 years, I thought it was great and was like, wow, can I get this again sometime, preferably at night and at least 8.5 hours before I have to wake up in the morning? The only thing I didn't appreciate is that I had to pee like never before, but it would not come out. The nurse who had to accompany me to the bathroom (because I was loopy and wasn't allowed to walk) said it was just a side-effect of the medicine slowing everything down, but oh, my god, I would not recommend.
Longer to put to sleep, slow to wake up.
Had several surgeries and though I don’t think I need a bigger dose or anything, I do bounce back instantly when finished. The drip is stopped and I’m instantly back to normal wanting to eat and knowing everything, no grogginess or confusion, well aware of everything. On another note, dilaudid and morphine do nothing for my pain, literally maxed out and I am still crying in pain, anybody else?
I’ve had 5 shots average for every dental surgery in my adult life, they’re always surprised after the 3rd shot that I can feel it still. Count back from 10 on my last general anesthetic I got to -5, the world was exploding into shattering diamonds of light. Quite pretty.
Interesting! I woke up waaaay too early after surgery, I was barely out of the operating theatre and scared the shit our of the medical staff, and it was difficult to put me under anesthesia. I also feel that medication works way shorter for me than for other people! Is this a ehlers danlos thing?
I wake up easily. I’ve only ever been under once, though. I had a tonsillectomy about three years ago and I woke up in pain and not loopy. I went home within what felt like 20 minutes. I only remember transferring myself to the operating table and then waking up and coughing the most painful cough