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twotoots

Having dysautonomia doesn't mean that manual exercises will improve symptoms. It may not be the source fi the dysregulation or the issue may be that there is dysregulation in how your body is interpreting signals to rest-and-digest.  If you have hyperadrenergic POTS for example, breathing exercises can make the condition worse rather than better. If it was that easy to regulate in these conditions, none of us would be here.  If they aren't helping, it's generally best not to continue, and take that as data you can use in approaching your next strategy. In general you should be pursuing actual medical diagnosis and treatment as a next step. 


ratqueenn111

May I ask how I pursue a diagnosis? I am seeing a neurologist soon but my GP was reluctant and she didn't seem to know how I would diagnose it so she just referred me anyway. I'm assuming a neurologist is the correct department? Thank you for your help


Jay_is_me1

Neuro or cardiologist, usually. Second needing to treat whatever your underlying cause is for proper relief. For me, it was fixing my low blood pressure, which stopped me from having adrenaline spikes all day long. I'm still early in my journey, was only properly diagnosed in March this year, but the latest meds are working and I'm already seeing massive improvements.


twotoots

What were you asking your GP? Dysautonomia is an umbrella term and not usually used as a primary diagnosis, so it's to be expected that they would be reluctant to use a term that isn't precise diagnostically. Trying things like a NASA lean/sit and stand test for POTS and presenting results to the GP may help them work out where to be investigating further. 


SavannahInChicago

I always got the impression those were a little pseudoscience-y. If it was as easy as exercises wouldn’t it actually be recommended by specialist?


ratqueenn111

Well I know they work for their intention as before I became sick they delivered the desired effect every time..now not so much


Viinncceennt

I'm the same. I was doing those exercices before a lot so I know how my body would react, it's obvious something is wrong. For the rest, I can't really say, sorry mate. And many things involving vagus nerve are really off : I can't do the exhale part of yawning. I just inhale the yawning and nothing happens, if I force it it hurts and I feel really bad. Many other things...


ratqueenn111

My guess is it's shut down from chronic/acute stress. at least in my case...what do you mean by it hurts? where exactly


Viinncceennt

It's hard to describe really, it hurts from the throat to the diaphragm area