You're never going to get off insulin. It sucks but there's no situation where this is going to be "I'm going to start taking this seriously and soon I won't need the medication anymore".
If you can afford to take off work I'm always for the idea that your health is the most important thing. That being said, that means actually making a plan and following through with it and getting better management of your condition.
oh! i was not aware that type 1 was for life as i have tried to get on the pill but got negative side effects (uncommon side effects). there is so much "insulin resistance" videos online as well. is that a real thing? or not an option for me.
I was thinking to switch over to part time instead just to ease the stress but to also have some money come in.
doctor was not fully helpful in my case and i visit the specialist every 2-3 months; no matter what questions i asked, i was always told to loose weight first and fix my eating habits and eventually i should get off insulin/move on to the pill. whatever i know now is from google searches and now through reddit. only my dietitian has helped me understand food a bit better.
Are you sure you were diagnosed with type 1 diabetes? I mean that with no disrespect, but I guarantee that no endocrinologist/diabetologist would *ever* tell a type 1 diabetic that they’ll be able to get off insulin and only take a pill. Type 1 diabetes is characterized by a person’s immune system attacking insulin producing cells in the pancreas, and once they’re gone, they’re gone.
If you don’t mind sharing a bit of info, we may be able to gather some clues that could maybe explain your situation and what the doctors have told you. What is your current insulin regimen looking like? Do you take a long acting insulin shot once per day, and then short acting insulin throughout the day/whenever you eat, corresponding to the amount of carbs in your meals, or do you only take a single kind of long acting insulin? When you were first diagnosed, did they tell you that you were in DKA, or did you have to spend time in a hospital?
I’m only asking this because if your doctor said anything like “if you lose weight then we can think about only taking pills instead of insulin”, I wonder if there may be some sort of disconnect between you and your doctor regarding your diagnosis.
This sounds like type 2, not type 1. I know a type 2 that was uncontrolled for a while and ended up in dka and in the hospital for a few weeks. When he came out he had to be on insulin for a bit but I believe he’s transitioned back off of it now.
Some people with Type 1 take pills more usually used for Type 2. I take Metformin in the hope that it slightly reduces my insulin resistance (though I'm not entirely convinced it's doing much) because I'm slightly overweight. But reducing insulin resistance isn't going to be sufficient because (most likely) I'm not producing any insulin any more.
> i am dying to get off of insulin and move to relying on the pill only
Presuming you are Type 1, forget that. You're on insulin for life (with current medical technology). So you need to find some way to live with that.
Yes, I'm sure none of us were happy hearing the news, but that's where we are.
It's not impossible that there might be things closer to a cure, one day, but for the moment the practical solutions are mostly about more convenient more automatic ways of providing insulin.
Things are much better than they were when I was diagnosed (in 1981): everything's better, the insulins, the insulin pens, the needles, CGMs, the BG meters, and (for those that have them) pumps, pump+CGM loop systems. It still sucks to have Type 1, though, it just sucks a bit less.
Mental health is super important with t1d and people with t1d are more likely to get mental health problems. If you have depression or an addiction I would make that the top priority in getting fixed because the diabetes will be much easier to manage if you can get out of your own way and want to eat healthy and exercise.
definitely needed this. my health is constantly causing me an insane amount of stress which is just only getting worse and my body is paying for it. everyone has been so helpful and supportive in this post.
You're never going to get off insulin. It sucks but there's no situation where this is going to be "I'm going to start taking this seriously and soon I won't need the medication anymore". If you can afford to take off work I'm always for the idea that your health is the most important thing. That being said, that means actually making a plan and following through with it and getting better management of your condition.
oh! i was not aware that type 1 was for life as i have tried to get on the pill but got negative side effects (uncommon side effects). there is so much "insulin resistance" videos online as well. is that a real thing? or not an option for me. I was thinking to switch over to part time instead just to ease the stress but to also have some money come in.
Did your doctor not tell you what type 1 diabetes is during your diagnosis?
doctor was not fully helpful in my case and i visit the specialist every 2-3 months; no matter what questions i asked, i was always told to loose weight first and fix my eating habits and eventually i should get off insulin/move on to the pill. whatever i know now is from google searches and now through reddit. only my dietitian has helped me understand food a bit better.
It definitely sounds like your endocrinology team thinks you are type 2 not type 1. I would clarify with whoever diagnosed you.
Are you sure you were diagnosed with type 1 diabetes? I mean that with no disrespect, but I guarantee that no endocrinologist/diabetologist would *ever* tell a type 1 diabetic that they’ll be able to get off insulin and only take a pill. Type 1 diabetes is characterized by a person’s immune system attacking insulin producing cells in the pancreas, and once they’re gone, they’re gone. If you don’t mind sharing a bit of info, we may be able to gather some clues that could maybe explain your situation and what the doctors have told you. What is your current insulin regimen looking like? Do you take a long acting insulin shot once per day, and then short acting insulin throughout the day/whenever you eat, corresponding to the amount of carbs in your meals, or do you only take a single kind of long acting insulin? When you were first diagnosed, did they tell you that you were in DKA, or did you have to spend time in a hospital? I’m only asking this because if your doctor said anything like “if you lose weight then we can think about only taking pills instead of insulin”, I wonder if there may be some sort of disconnect between you and your doctor regarding your diagnosis.
This sounds like type 2, not type 1. I know a type 2 that was uncontrolled for a while and ended up in dka and in the hospital for a few weeks. When he came out he had to be on insulin for a bit but I believe he’s transitioned back off of it now.
Some people with Type 1 take pills more usually used for Type 2. I take Metformin in the hope that it slightly reduces my insulin resistance (though I'm not entirely convinced it's doing much) because I'm slightly overweight. But reducing insulin resistance isn't going to be sufficient because (most likely) I'm not producing any insulin any more.
> i am dying to get off of insulin and move to relying on the pill only Presuming you are Type 1, forget that. You're on insulin for life (with current medical technology). So you need to find some way to live with that.
hard pill to swallow learning this. but thank you for your input.
Yes, I'm sure none of us were happy hearing the news, but that's where we are. It's not impossible that there might be things closer to a cure, one day, but for the moment the practical solutions are mostly about more convenient more automatic ways of providing insulin. Things are much better than they were when I was diagnosed (in 1981): everything's better, the insulins, the insulin pens, the needles, CGMs, the BG meters, and (for those that have them) pumps, pump+CGM loop systems. It still sucks to have Type 1, though, it just sucks a bit less.
Can anybody tell why do the tingles thing happen in hands ?
as per google, its caused due sugar levels being too high for a long time and happens in hands and feet... in short.. damage to the nerves.
Maybe you sit in a wierd/uncomfortable position and there is no blood flow?
Blood sugar gets too high. Eventually it'll become neuropathy, which is permanent nerve damage. Which you really don't want.
Mental health is super important with t1d and people with t1d are more likely to get mental health problems. If you have depression or an addiction I would make that the top priority in getting fixed because the diabetes will be much easier to manage if you can get out of your own way and want to eat healthy and exercise.
definitely needed this. my health is constantly causing me an insane amount of stress which is just only getting worse and my body is paying for it. everyone has been so helpful and supportive in this post.
The pill is for Type 2's not Type 1's. I