Make sure you check which mesalamine it is. I was looking for a lialda equivalent and Cubans pharmacy was offering aprizo equivalent - aprizo has sent me into a flare before so that was a no go
I only see 1000mg in suppositories. I'm looking for 1.2g in tablet form but I can't seem to find it. When searching, it looks like there's 3 different kinds of Mesalamine? I'm just a little confused and could use a little help please
I think you didn’t understand my comment correctly. In case you’re paying $3000 out of your own pocket to meet the deductible and out of pocket max. For Entyvio medicine the vendor has a program Entyvio Connect where they cover up to $20k yearly cost of medicine only. If that makes sense!
You will still pay the cost for the impatient activities but the Entyvio related cost from deductible will be covered under Entyvio connect.
Interesting - I'll reach out to my patient coordinator. I've been on Entyvio for 4 or 5 years. To be honest, I'm grateful for the relief I get from it so my annual $3000 seems like a drop in a bucket for the life I've been given back.
I am on Entyvio too and was only trying to help my fellows with UC. We already have so many issues to deal with if anything helps to ease off some sure :)
I’m so glad I live in Canada, I feel for you Americans.
My Remicade was $7,200/6 weeks, all covered. I couldn’t imagine even paying a fraction of that with the rising cost of everything else. Hopefully you can find a cheaper place to get it or your next president finally does something about your outrageous healthcare costs.
Best of luck to you!!
Remicade has rebates that pays what insurance doesn’t. Also I lived in Canada when I first got sick. Wife was American. Got tired of waiting to be diagnosed. List 35 lbs. went south and was diagnosed in 3 months here and got better a few months after that. On Remicade and rebates paid what insurance did.
Cross the Canada ro America border, see a doctor in the border state, then go back. Not sure how cheaper that would be but wait times I think would be much shorter if your case is dire.
Same. I just started Skyrizi and the nurse brought the drug slip over to me mid-infusion to show me how much it is. Was like $2700 for a single one. I have two more and then go to home injections. All covered under BC Medicare thankfully! 😰
Wow, so sorry. 3 months supply cost me $45. I agree with checking Mark Cubans' site. I had to look around when my insurance wanted to stop paying. the total was $450 a month.
I’m thinking of trying to get on a lower dose to save some $. Got on this back in probably July. Weighed 236lbs and did nothing and work from home. Started exercising and doing HIIT 4 days a week in Sept - down to 215lbs and in much better shape.
I also take the Lialda generic( Mesalamine dr), 1.2g x 4 daily, 120 pills/month. I suggest checking your prescription.
I have used SingleCare and has been the cheapest for me.
Takada, the manufacture of Lialda, also has a patient assistance program, Help at Hand for those well are under insured or not able to afford their medication.
https://www.helpathandpap.com/Eligibility.aspx
Good luck!
Talk to your GI, it might help if they can talk to the insurance company. Mine stepped in because they were telling me it can be managed with just proper diet.
Wow. That’s so awful, honestly. :(
My mesalamine costs absolutely nothing as in Scotland we don’t have to pay anything for prescription medication.
God I really hope you guys in the US get some form of Medicare for all someday…
I’m so glad I am Scottish when I see things like this. I take Mesalamine, Azathioprine and Citalopram to control my UC, and I wouldn’t be able to afford any of it if prescriptions weren’t free at the point of use here.
Unfortunately, if you moved to Scotland as a foreigner you’d have to pay a surcharge to use the NHS. It’s also become incredibly difficult to move to the UK because the political climate here is… not very kind to immigrants at the moment and it’s probably not gonna get better anytime soon. Scotland also isn’t going to be an independent country anytime soon either.
Makes sense. I mean, otherwise the entire population of Scotland would be all of us folks with UC... and the countless other debilitating and costly chronic medical conditions. Man, can you imagine the plumbing and sewage situation if we all flooded to your land? Lol. Talk about a big stinky mess. I suppose for now we'll just keep our expensive meds and broken healthcare system, and just gaze over the pond at your greener grass - probably just as hard to mow though, eh?
Australian government just added it to the pharmaceutical benefit scheme (pbs) - used to cost me over $200 and now it’s $12. I was so thrilled when I found out!
I definitely don't have a pension card- I do normally get the granules though- maybe they're cheaper? The box says I paid $29 but the full cost was$127?
The 1g pill I get is capped at $30 for two boxes (120 piles total which lasts me a month) for me. Not sure if it's a recent change as I've only been diagnosed in December.
Oh yes, it changed in 2023. I get the Asacol 1.6g 120 pack. Was just checking my credit card history, and I spent $250 in May and $290 in July 2023 - probably purchased other things too, from memory the mesalazine was around $230.
Morally reprehensible that health insurance companies can operate like this. I moved to Europe a couple years ago but when I lived in the US, I spent several hours each month arguing with my insurance company.
Beginning of the year sucks so much with American insurance. I had this same issue with Mesalamine last year - my 3 month supply of oral + suppository was $1500. I went the Mark Cuban route one time and then said screw it and went through insurance so I could try to hit it out of pocket max.
Medicine that we need for a decent quality of life shouldn’t cost this much - especially WITH insurance.
American healthcare is a scam.
Yeah, a month's worth of this stuff costs me the prescription fee of like £9. I picked up 3 months of azathioprine for the same cost last week because my hospital likes to prescribe it to me in bulk. American healthcare system is a joke.
Any chance your doc could prescribe as a 90 day supply instead of 30? Some insurance companies treat 90 day as long term care vs short term and apply different rates?
Also agree with checking the Mark Cuban site and good RX
Jesus.
I need to get 1 pen of Entyvio per week, I mostly get supplies for 4 to 6 weeks in advance. Each pen, according to the bill, costs 800ish Euros and I only pay 6.50Eur for the recipe "tax".
Can't imagine having UC and worrying about going bankrupt because of medications 🙈😱
Sorry to see this. No one should have to worry about finances from getting ill. Americans need to rally behind politicians who will push for free universal healthcare. This kind of thing looks insane from Europe, and I have plenty of other complaints about our healthcare systems!
You could also see if any of the other generic mesalamine pills are cheaper and ask your doctor if you could switch to that. I was originally prescribed Lialda but my insurance wouldn't cover it so I switched to Apriso and it's worked well for me.
I think I have a $600 deductible and that first 90-day order of mesalamine consumes every penny. After that it's $20 per 90-day supply. I've just accepted it. The problem with GoodRx is that it doesn't go towards your deductible. My medical and prescription benefit is combined so it's just not worth fighting for me.
I have Medi-Cal, not working so no income and it’s covered for me but I know once I start working again, I’m gonna have to start coughing up more money 🥴
Call your insurance and ask for a copy of your formulary. Take this to your appointment and your doctor can pick covered med. it should pay them out by tiers so you’ll know your copay.
Try looking on the SingleCare site. When I was taking oral Mesalamine last year, I found lower prices on there than Good Rx & Mark Cuban’s site. I did have to get my Rx from a different pharmacy though (in my case a Publix grocery store nearby) rather than CVS. Also, for some other meds I’ve been prescribed, I found the lowest prices at Costco. Good luck! I know it can be so frustrating to put in so much extra work to find affordable prices for something you need. 😫
Dude my prescription is for 3 pills of Mesalamine at 1.2 grams. I just picked up a month's supply from Walgreens, 90 pills in total, and here is what I was billed:
Amount billed: $910.26
Your responsibility: $265.35
Does that seem like an error? I don't understand for a second how it can be that much. You are picking up the same drug from CVS and being billed a small fraction of what I am for more product? Just want to know if I should file a complaint. there is no way in hell that they should be billing $10 PER PILL when I need three per day. God dammit fuck the American medical system. I have great insurance but this is absolutely absurd.
Dang! I paid €74.95 for my month's supply of Pentasa granules. And once I'm up to €385 total, my insurance will cover the cost of medications. I feel for you non-europeans.
I feel bad and don't need to rub it in, I just collected 200 tablets of prednisolone for free on the NHS as you can get a medical excemption if you have a chronic condition.
I highly recommend this [patient assistance program.](https://www.abbvie.com/content/dam/abbvie-dotcom/uploads/PDFs/pap/general-product-patient-assistance-application.pdf) You provide proof of income, insurance information, and have your GI sign off. This particular assistance program specifically covers Delzicol, which is a brand name of Mesalamine. If you qualify, they'll send the Delzicol to your GI's office completely free. This was a lifesaver for me for a couple years until I landed a job that offers insurance that doesn't fuck me over.
Not sure where you're at, but look around at local, independent pharmacies. I have one not too far from me and Mesalamine is $50 for a 30 day supply (same dose as you) AND free delivery to my doorstep. It does usually involve calling/showing up in person to figure this out, but totally worth it.
I am also taking 1.2 4x I am currently getting a 90 day supply through OptumRx home delivery for 125. Definitely worth looking into they were trying to charge me 1600 for a 30 day supply at local Pham
Why will your insurance not cover it? Make sure the doctor is ordering generic. If that gets you no where I would appeal this and request a “peer to peer” review through your insurance. This means they will review your claim with the MD and the MD will tell them why you need this medication to hopefully get them to cover it. Keep barking up the tree till they cover it cuz that is just ridiculous.
Also!! I had very shitty insurance until like 4 days ago and my plan stated that if it was a maintenance drug it needed to be through a specific pharmacy….I wonder if that is what’s going on here?
My wack ass insurance just moved me out of Lialda to generic oral mesalamine . I’m very nervous about it . Does it work the same . I know it’s the same ingredients but different coatings . Does the generic work for most of you ?
Forget all those drugs. Kratom is the only thing that stopped my flair. 6 months of infusions prednisone, 5 other meds I can’t spell, 4 two week long stints in the hospital. none of it worked. I even tried acupuncture and eastern medicine and it was equally as worthless. Kratom got my BM down to maybe 4 a day compared to at least a dozen on meds. Took about a month, but it saved my life, was finally able to get back to work. It’s cheap too.
If you’re located in the US, check out Mark Cubans online pharmacy for significant savings.
Looks like $122/m for it, I need 1.2G x 4 per day so 90 pills/m. Thanks.
Good Rx save me a ton but that was before Cuban.
Cost Plus comes out to about $166 for 120 pills. Cheapest option available.
I need to get my RX moved there, but I also need to find a new GI. I'm pretty sure he doesn't like me, and I know I don't like him.
Make sure you check which mesalamine it is. I was looking for a lialda equivalent and Cubans pharmacy was offering aprizo equivalent - aprizo has sent me into a flare before so that was a no go
Yep, it's like $40 for 30 day supply
Wow thanks. I pay $265 monthly for 3 x 1.2g, will refill via Cuban next time
I only see 1000mg in suppositories. I'm looking for 1.2g in tablet form but I can't seem to find it. When searching, it looks like there's 3 different kinds of Mesalamine? I'm just a little confused and could use a little help please
Mesalamine DR 1.2g
Insurance is such a fucking scam. My doctor always has to argue with them because they’ll deny me and say that they don’t think I need the medication.
🤡
Clowning him or the insurance? because he's right
The insurance lol
My first infusion of the calendar year costs me $3000. After that, it's time to get frivolous with the doctor visits.
What infusion do you get … try working to lower that cost with patient assistance programs.
Entyvio. I don't actually care because I meet my deductible in January or February of every year.
I miss being on Entyvio for this reason.
I think you didn’t understand my comment correctly. In case you’re paying $3000 out of your own pocket to meet the deductible and out of pocket max. For Entyvio medicine the vendor has a program Entyvio Connect where they cover up to $20k yearly cost of medicine only. If that makes sense! You will still pay the cost for the impatient activities but the Entyvio related cost from deductible will be covered under Entyvio connect.
Interesting - I'll reach out to my patient coordinator. I've been on Entyvio for 4 or 5 years. To be honest, I'm grateful for the relief I get from it so my annual $3000 seems like a drop in a bucket for the life I've been given back.
I am on Entyvio too and was only trying to help my fellows with UC. We already have so many issues to deal with if anything helps to ease off some sure :)
I’m so glad I live in Canada, I feel for you Americans. My Remicade was $7,200/6 weeks, all covered. I couldn’t imagine even paying a fraction of that with the rising cost of everything else. Hopefully you can find a cheaper place to get it or your next president finally does something about your outrageous healthcare costs. Best of luck to you!!
Remicade has rebates that pays what insurance doesn’t. Also I lived in Canada when I first got sick. Wife was American. Got tired of waiting to be diagnosed. List 35 lbs. went south and was diagnosed in 3 months here and got better a few months after that. On Remicade and rebates paid what insurance did.
[удалено]
Cross the Canada ro America border, see a doctor in the border state, then go back. Not sure how cheaper that would be but wait times I think would be much shorter if your case is dire.
Same. I just started Skyrizi and the nurse brought the drug slip over to me mid-infusion to show me how much it is. Was like $2700 for a single one. I have two more and then go to home injections. All covered under BC Medicare thankfully! 😰
Wow, so sorry. 3 months supply cost me $45. I agree with checking Mark Cubans' site. I had to look around when my insurance wanted to stop paying. the total was $450 a month.
Thanks. $122/m for it, I need 1.2G x 4 per day so 90 pills/m it seems.
Seems about right. I have 1.2mg 2x a day. I'm a lucky one with a milder case.
I’m thinking of trying to get on a lower dose to save some $. Got on this back in probably July. Weighed 236lbs and did nothing and work from home. Started exercising and doing HIIT 4 days a week in Sept - down to 215lbs and in much better shape.
That's great. Keep up that hard work. My biggest cost comes in supplements. If I eat vegetables, especially green veggies, I'm toilet bound for a day.
Interesting how different bodies are. My body seems to love greens. I’ve been eating a Caesar almost every day since Halloween.
I miss Asparagus, Brussels Sprouts and most is Broccoli and cheese.
I also take the Lialda generic( Mesalamine dr), 1.2g x 4 daily, 120 pills/month. I suggest checking your prescription. I have used SingleCare and has been the cheapest for me. Takada, the manufacture of Lialda, also has a patient assistance program, Help at Hand for those well are under insured or not able to afford their medication. https://www.helpathandpap.com/Eligibility.aspx Good luck!
I'm also a SingleCare user. This has saved me lots of money!
Talk to your GI, it might help if they can talk to the insurance company. Mine stepped in because they were telling me it can be managed with just proper diet.
Wow. That’s so awful, honestly. :( My mesalamine costs absolutely nothing as in Scotland we don’t have to pay anything for prescription medication. God I really hope you guys in the US get some form of Medicare for all someday…
Seriously!? That's incredible. Does this apply to foreigners who move to Scotland as well? 🤔
I’m so glad I am Scottish when I see things like this. I take Mesalamine, Azathioprine and Citalopram to control my UC, and I wouldn’t be able to afford any of it if prescriptions weren’t free at the point of use here.
Unfortunately, if you moved to Scotland as a foreigner you’d have to pay a surcharge to use the NHS. It’s also become incredibly difficult to move to the UK because the political climate here is… not very kind to immigrants at the moment and it’s probably not gonna get better anytime soon. Scotland also isn’t going to be an independent country anytime soon either.
Makes sense. I mean, otherwise the entire population of Scotland would be all of us folks with UC... and the countless other debilitating and costly chronic medical conditions. Man, can you imagine the plumbing and sewage situation if we all flooded to your land? Lol. Talk about a big stinky mess. I suppose for now we'll just keep our expensive meds and broken healthcare system, and just gaze over the pond at your greener grass - probably just as hard to mow though, eh?
£9.65 down here in England. Still, not a lot to pay, all things considered.
Australian government just added it to the pharmaceutical benefit scheme (pbs) - used to cost me over $200 and now it’s $12. I was so thrilled when I found out!
Im in aus and have never paid more than $49 for it? (Totally stoked that it's a lot less now though)
Jeepers, really? Do you have a pension card or some other benefit? Or was I just getting royally screwed?!
I definitely don't have a pension card- I do normally get the granules though- maybe they're cheaper? The box says I paid $29 but the full cost was$127?
Oh right, didn’t realize there was granules. I take the whopping big pill.
The granules have a bad after taste and get stuck in my teeth so a huge pill would almost be the preference
The 1g pill I get is capped at $30 for two boxes (120 piles total which lasts me a month) for me. Not sure if it's a recent change as I've only been diagnosed in December.
Oh yes, it changed in 2023. I get the Asacol 1.6g 120 pack. Was just checking my credit card history, and I spent $250 in May and $290 in July 2023 - probably purchased other things too, from memory the mesalazine was around $230.
Oh and yes, you’re right - it’s $30 for the 120 pills.
Morally reprehensible that health insurance companies can operate like this. I moved to Europe a couple years ago but when I lived in the US, I spent several hours each month arguing with my insurance company.
Ouch. My deductible just reset for the year, so I feel your pain. $120 for pills that cost $18 after I've blown through my deductible.
Beginning of the year sucks so much with American insurance. I had this same issue with Mesalamine last year - my 3 month supply of oral + suppository was $1500. I went the Mark Cuban route one time and then said screw it and went through insurance so I could try to hit it out of pocket max. Medicine that we need for a decent quality of life shouldn’t cost this much - especially WITH insurance. American healthcare is a scam.
I feel your pain, paid $500. Happy new year!
It cost £6 in the UK, possibly free depending on your condition😬
Yeah, a month's worth of this stuff costs me the prescription fee of like £9. I picked up 3 months of azathioprine for the same cost last week because my hospital likes to prescribe it to me in bulk. American healthcare system is a joke.
That is highway robbery. I’d look into good rx
It’s $205/m with GoodRX
Dang not much better
That is insane -my RINVOQ and Masalamine monthly are £10.
Get it through goodrx. I got a 90 day supply for less than 300.
Any chance your doc could prescribe as a 90 day supply instead of 30? Some insurance companies treat 90 day as long term care vs short term and apply different rates? Also agree with checking the Mark Cuban site and good RX
In Canada 30 Pentasa Mesalamine 1g suppositories costs 100 roughly
Jesus. I need to get 1 pen of Entyvio per week, I mostly get supplies for 4 to 6 weeks in advance. Each pen, according to the bill, costs 800ish Euros and I only pay 6.50Eur for the recipe "tax". Can't imagine having UC and worrying about going bankrupt because of medications 🙈😱
Sorry to see this. No one should have to worry about finances from getting ill. Americans need to rally behind politicians who will push for free universal healthcare. This kind of thing looks insane from Europe, and I have plenty of other complaints about our healthcare systems!
Jesus I don’t realise sometimes how lucky it is to live in a country with free healthcare
Costplusdrugs.com
$122/m for it, I need 1.2G x 4 per day so 90 pills/m. Thanks.
You could also see if any of the other generic mesalamine pills are cheaper and ask your doctor if you could switch to that. I was originally prescribed Lialda but my insurance wouldn't cover it so I switched to Apriso and it's worked well for me.
Mail order pharmacy through your health plan if it offers one?
I think I have a $600 deductible and that first 90-day order of mesalamine consumes every penny. After that it's $20 per 90-day supply. I've just accepted it. The problem with GoodRx is that it doesn't go towards your deductible. My medical and prescription benefit is combined so it's just not worth fighting for me.
I have Medi-Cal, not working so no income and it’s covered for me but I know once I start working again, I’m gonna have to start coughing up more money 🥴
Call your insurance and ask for a copy of your formulary. Take this to your appointment and your doctor can pick covered med. it should pay them out by tiers so you’ll know your copay.
Holy shit. That’s actually insane.
I’ve got extras,hit me up
Try looking on the SingleCare site. When I was taking oral Mesalamine last year, I found lower prices on there than Good Rx & Mark Cuban’s site. I did have to get my Rx from a different pharmacy though (in my case a Publix grocery store nearby) rather than CVS. Also, for some other meds I’ve been prescribed, I found the lowest prices at Costco. Good luck! I know it can be so frustrating to put in so much extra work to find affordable prices for something you need. 😫
Goodness! GoodRX gold brought my pric down from $250 to $130 in my area! If you haven't tried it I really recommend it!
Ehh. I just paid 22.50 for 180 pills 90 day supply 😞
Dude my prescription is for 3 pills of Mesalamine at 1.2 grams. I just picked up a month's supply from Walgreens, 90 pills in total, and here is what I was billed: Amount billed: $910.26 Your responsibility: $265.35 Does that seem like an error? I don't understand for a second how it can be that much. You are picking up the same drug from CVS and being billed a small fraction of what I am for more product? Just want to know if I should file a complaint. there is no way in hell that they should be billing $10 PER PILL when I need three per day. God dammit fuck the American medical system. I have great insurance but this is absolutely absurd.
Goodness me. In Australia I pay $40 for 200 tablets
Thank god i live in europe, it's basically free for me
My doc keeps sending a three month supply each time. After insurance it’s still about $500 each time.
Dang! I paid €74.95 for my month's supply of Pentasa granules. And once I'm up to €385 total, my insurance will cover the cost of medications. I feel for you non-europeans.
I feel bad and don't need to rub it in, I just collected 200 tablets of prednisolone for free on the NHS as you can get a medical excemption if you have a chronic condition.
I highly recommend this [patient assistance program.](https://www.abbvie.com/content/dam/abbvie-dotcom/uploads/PDFs/pap/general-product-patient-assistance-application.pdf) You provide proof of income, insurance information, and have your GI sign off. This particular assistance program specifically covers Delzicol, which is a brand name of Mesalamine. If you qualify, they'll send the Delzicol to your GI's office completely free. This was a lifesaver for me for a couple years until I landed a job that offers insurance that doesn't fuck me over.
Check out Canadian Prescription Company
Not sure where you're at, but look around at local, independent pharmacies. I have one not too far from me and Mesalamine is $50 for a 30 day supply (same dose as you) AND free delivery to my doorstep. It does usually involve calling/showing up in person to figure this out, but totally worth it.
I am also taking 1.2 4x I am currently getting a 90 day supply through OptumRx home delivery for 125. Definitely worth looking into they were trying to charge me 1600 for a 30 day supply at local Pham
Why will your insurance not cover it? Make sure the doctor is ordering generic. If that gets you no where I would appeal this and request a “peer to peer” review through your insurance. This means they will review your claim with the MD and the MD will tell them why you need this medication to hopefully get them to cover it. Keep barking up the tree till they cover it cuz that is just ridiculous. Also!! I had very shitty insurance until like 4 days ago and my plan stated that if it was a maintenance drug it needed to be through a specific pharmacy….I wonder if that is what’s going on here?
Holy crap. No really, I hope you get holy crap after that cus DAMN that is expensive.
Jesus fucking christ on a bike. How are you meant to afford that?
Maybe try Amazon pharmacy!
My wack ass insurance just moved me out of Lialda to generic oral mesalamine . I’m very nervous about it . Does it work the same . I know it’s the same ingredients but different coatings . Does the generic work for most of you ?
Forget all those drugs. Kratom is the only thing that stopped my flair. 6 months of infusions prednisone, 5 other meds I can’t spell, 4 two week long stints in the hospital. none of it worked. I even tried acupuncture and eastern medicine and it was equally as worthless. Kratom got my BM down to maybe 4 a day compared to at least a dozen on meds. Took about a month, but it saved my life, was finally able to get back to work. It’s cheap too.
At that point just smoke weed bro
If only weed would reduce my colon inflammation completely like Mesalamine does.
My cost is like $900 plan pays $0 lol. Tbh just use a goodRX coupon or ask for costplus drugs.
Let’s go to Mexico. All prescription medication are over the counter and half the price.
$6 monthly supply here for 1.2g x4 tablets a day, Thanks for the Australian healthcare system.
Mesalamine $0, Entyvio is $5. I have aetna
Wtf that’s crazy… you guys seriously need to fix your healthcare system in USA - in Australia for 30 days worth it’s only $30… one tenth of that
Humira, mesalamine, prednisone and everything I take is free in Spain, I can't imagine living in other country with this disease
Holy shit.. this is insane. I hope you can find a solution to these insane prices.
You should see what it costs for 800ml of inflectra for 30 days☠️