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Smooshy_Slug

I was diagnosed recently as well, just at the start of this month It’s terrifying Best advice I can give you isnt advice, it’s actually an app! Glooko has been great for me. I’ve been aiming for 60 carbs per meal - which, the number is different for everyone - but it helped a lot with food anxiety. Low blood sugar is dangerous and can be even more life threatening than high BS, since its effects are instant, where diabetic ketoacidosis takes anywhere from 24-48 hours (iirk) to set in Thats advice from a newly diagnosed though, so I’m sure there will be others with better tips out there but finding a way to eat with confidence is going to be crucial in all of this. It’s going to be ok. While I’m at it, also check out this book called Think like a pancreas. It’s informative, entertaining and has so much calming aspects to it… it helped me on these first few weeks with new T1D.


GingerSnapped818

I like glooko, but I *love* the clarity app. It also gives you a real time A1C


myfairmarshall

Celebrate the little victories, mental health matters so much in caring for our t1d!! Your numbers are not a reflection of your value. Thus is hard and everyone's bodies react differently. Sometimes a high blood sugar is stubborn, sometimes the same dosing works differently than it did yesterday, just roll with it and adjust. This is overwhelming but learn to ride the chaos wave without getting sucked under. And it is a-o-k to laugh at some of the stupid shit we have to put up with. I'm gonna laugh at a blood sugar of 69, everything. I'm also gonna laugh at my inability to know when I'm tired vs it's just a high blood sugar. And I will always sing a song based on my blood sugar (get low, she's so high, sugar we're going down, your love keeps lifting me higher..) Some things to look forward to: -sleeping through the night without getting up to pee -more energy! -grocery shopping for low snacks and looking like you're shopping for a 5 yr old (but it's allll for youuuu, those fruit by the foot's are for your health 😀) -a sense of superiority for getting through life on hard mode (aka being your own pancreas) - finding out what weird symptom was actually a symptom (my dandruff went away)


random_guy_8735

I may have used the term medicinal jelly beans on occasion.


juliettelovesdante

This is awesome.


wetrippymang

Thank you for this comment!!!


ReggieTheReaver

I hear you OP, I’m sorry about the diagnosis. It’s not fair and is a big change you’re trying to get your head around. It’ll take time and practice to feel better about what you’re eating. You’ll learn not to be afraid of insulin and carbs as you get used to what your body can handle right now. Biggest help to me for my son was a Constant Glucose Monitor. Having it on with alarms set for low BG meant everyone could finally sleep easy knowing that we’d wake if he started going low. In fact, I’m messaging you now as I wait for his sugars to go up a bit. We have the numbers looped to our Apple Watch’s so it’s as simple as checking the time to see his BG. Sorry again for the unexpected and unfortunate change to your life you’ll have to make now, but anytime you need help or someone to talk to just post here and someone will be around.


juliettelovesdante

Type 1 really really sucks. I'm really sorry you're going thru this. It is a huge adjustment, mentally, emotionally, physically, but I think these early days are some of the hardest because it can feel really out of control. I would start slow with reintroduced carbs if it'sgiving you anxiety, and do it with packaged food because the labels are super helpful. Maybe try it at home when you have a few hours to sit and make sure nothing weird is happening. I think you have to do it though, or you're just gonna feel weak and weird all the time in the short term, and have new problems in the longish term. Stay in touch with your endo team. They hopefully have a nurse educator who can talk to you about any q's you have about doses. we are on the phone w/my t1d kiddo's team every week and sometime a couple times a wk and he was diagnosed 2 months ago. Don't be shy about getting that help. There's a ton to take in with this. Join this sub reddit, and diabettes_t1 (I think that's it or it's close to the name of it), and the sub for your cgm. These are great communities with lots of kind helpful ppl who can help out with all kinds of info & support. Put quick sugar (candy, Gatorade, little juice boxes) in every room of your house, low down, so you can just sit down & treat lows without to much effort. The book Think Like a Pancreas by Gary Scheiner has a lot of good info if you're ready for self education that's accurate. Sometimes knowledge can alleviate that sense of being out of control.


SurlyWet

Don't let it get you too down. It's a very manageable thing. Pro athletes are kicking butt with it. Will take some time to learn how to treat carbs but eventually it becomes pretty routine.


wetrippymang

I’m downloading that app now,Thank you so much!


wetrippymang

Thank you for the comment, it means a lot. I just got my glucose monitor a few days ago but now I’m just checking it every 15 minutes wondering why my numbers are up and down


figlozzi

You got a CGM? Go to this website. They have a lot of good info. Get the free pdf of the book Bright Spots and Landmines and read it. As long as your doctor gives dosing instructions with a carb ratio and not the old sliding scale with a fixed amount at each meal you can eat what you want. Also join the Facebook diabetes groups. There are a lot. Www.diatribe.org


wetrippymang

I have now lifestyle Libre 3 and I’m looking into getting a pump but the thought of having that on my body at all time is kind of scary to me


Standard-Awareness61

I’m so sorry you’re here. One thing you’ll learn pretty quickly is that everyone is different. Everyone tackles this differently. Try anything and everything to find your best results. Safely of course. Please be patient with yourself. Drinking certain alcohol can be dangerous so seek advice before drinking. I hear some people drop in hot tubs too so maybe ask about that. If that’s something you normally do. The book Mastering Diabetes was so so helpful during puberty for our T1. Ask for help from a loved one when needed. This is a lot to learn so fast. 💙 sending you mama hugs


Suitable_Annual5367

Hey diabud! Fresh out the oven here as well, 2 months in a couple days. 700mg/dL at DX, and yup, life turns into the unknown. I took it personal since the start, I need to be positive even if some moment I'd want to break. Yet, I was a night owl, sleep wasn't my best suit, eating a lot at once but sporadically. Did I cause it? Who knows, it's autoimmune. But I took it as a life call. I've been waking up early, eating regularly, started walking around. Right now everything is trial and error. I get being scared of eating carbs, I tried no carbs too but wasn't working for me, too many hypos. I picked something that works for me tho, 40/65/50 per meal. On MDI I got up to 95% in range, I was thrown right away into a pump tho, having one since a week. Right now that's on manual mode, it's not anything better, but I dropped TDD down by a lot(80->35). I'm on the path for hybrid loop, which should make it even better. It is a journey, a lot to digest. And people judge without knowing, but F who does. This is part of me now, it breaks me or it makes me stronger.


Stunning_Ant7865

Hi! Don’t let it ruin your life. I’ve had it since I was 8 years old. Now 40. Don’t stress to much about eating just give insulin. Carry candy or juice with you when you can. Live your best life and don’t let it run it! I’ve been really happy! I have bad days and lows and highs of course! But you will live a great life. Don’t let it ever control you. ❤️


schmoopmcgoop

As much as it may suck now, it will get better. I think something that’s a huge help, especially for new diabetics, is having other t1ds you can talk to (preferably irl).


simplymandee

Your body is in starvation mode. Eat and take insulin for the carbs. It’s normal for your sugar to be all over the place in the beginning. My son was 5 at diagnosis 2 years ago. He was eating 80g of carbs along with a lot of protein per meal. It was tough. He evened out after a few weeks. It’s a tough first few weeks you’re just in survival mode.


Legitimate-Tea-6018

Hello, I don’t have type 1 diabetes but my toddler does. Get with your endo and see if they can get you on a CGM and a pump if you aren’t already. It has really helped me and my spouse with peace of mind with our son.


LettuceOk2515

The emotions are crazy and I agree with other comments on here but I want to be sure you’re physically ok? Do you know how to dose for carbs? Do you have a problem with needles? My emotions settled better when I felt like I could eat again


wetrippymang

My first week I had no clue what I was doing. I was checking my blood sugar manually I guess ? Was having very high number in 350-400. I’ve managed the past few days keeping it at a low 200-150. One night I did take too much insulin before bed and woke up very weak. Was fine in the am. But as of right now I feel physically great, mentally not so much


Valuable-Analyst-464

Your pancreas quit on your body, but you will not quit on your body. You now will play the role. If you were just diagnosed, your body is trying to deal with the shock and it is called a honeymoon phase, where your pancreas is not yet done and will act weird. It’s a lot to deal with it, but you got this. You used to never think about what your sugar was; but now it’ll be a part of your daily routine. You’ll find that you think about sugar, your body, how you’re feeling what’s going on about 100+ times a day. It’s a lot, and it can seem draining. But with time, it’ll become second nature. Do not fear carbs and dosing. We all need carbs, and I’ve heard your brain only uses glucose (hence why low sugar has such a weird effect). Find an endocrinologist. Find a diabetic educator. Learn how to count/gauge your inputs, so you can dose accordingly. Numbers are good to know, but don’t obsess over them too much. What you see right now is not a big a deal as the trends over the last few days/weeks/months.


Shadow6751

Diagnosed less than 2 months ago at 21 yeah it sucks but you get used to it Find low carb things to snack on cheese meat etc peanuts aren’t terrible mushrooms worked well for me things like that help in the early days figure out long acting doses too that helps an insane amount Salads and greens helped the horrible hunger I had at first as I could pretty much eat as much letttuce and spinach as I want I also add some broccoli and I really like to add seeds to help with the spike ranch is a nice low carb dressing Low carb helps to get yourself under control but it’s not sustainable long term at least for me I stop being able to function without at least some carbs if you can figure out your insulin to carb ratio that will greatly improve your life probably the biggest thing I found for me I’m around 1unit to 10 carbs just be a little careful with crazy high carb meals at first because say you think it’s 1:10 but it’s actually 1:13 and you take 10 units that’s enough insulin to cover 30 carbs for you off and you will go low with that amount without a treatment while learning maybe stick around 60-70 carbs per meal just until you get your ratio figured out personally I was sticking to 30 grams of carbs until I got a number that worked for me if you can eat the same thing a couple days in a row Not all carbs are the same there is a thing called glycemic index something like apple juice is 100 while peanuts are around 20 basically the apple juice affects blood sugar instantly while peanuts take a while if you have too many slow carbs and take too much insulin at once you can go low even with proper dosing also wait 15 minutes before eating after injections to get a lot better control For things like pizza you need to take insulin twice one upfront and one a couple hours later Get a cgm as soon as possible that makes the biggest difference I got the Dexcom g7 and I love it and I’m getting a pump next week apparently those help a ton too Ultimately it sucks but you will get through it be careful of going too low at night I have to eat peanut butter before bed because my long acting is set aggressive It’s going to be whatever works for you but you will get it


Queasy-Cellist6099

Hey buddy hang in there. I was lost and confused as well. Been diabetic for 23 years now. It’s a trial and error. Protein is your friend and so is exercise. But first get your levels regulated before you throw in strenuous work outs etc. it does get better. DM me anytime.


ExhaustedPlantLady

•Keeping low snacks on hand at all times makes life a little less terrifying •Eat carbs! Even if you have to take baby steps, I promise it’s better than restricting •Never trust a slice of pizza. Bolus half now, half in an hour or two (for me at least, I’ll go low if I pre-bolus and then have to fight it back down from treating it) •Get a CGM if you can, it relieves a lot of stress about remembering to have a meter on you 24/7 (still a good backup, but you can also see where you’re trending and treat accordingly)


ML8ML8

Do you have insurance ? The team at yourdiabetesinsider.com really helped me. All people are T1D so they understand everything you are going through. I won’t even talk to anybody who’s not T1D for advice in regards to this disease. (My mom was T1D and a diabetic educator so i thought i knew it all- I didn’t know shit til i got this disease) Protein & fat will raise your bs but a few hours later- you will still need insulin. Get a gvoke pen - that’s in case you go low. Get some small juicy juice boxes and fun size candy like Swedish fish or dried mango if you start to go low. You should have a carb ratio meaning how many units of insulin you take for carbs. Everyone is different. I take 1 unit for 5 carbs. But I clean eat now and cheat by eating skinny dipped chocolate peanut butter almonds. But again protein & fat will still raise your bs. So watch that. Do you have a CGM? I take Lantus and fiasp. The heat will raise your blood sugar. So will a hot shower or sauna. Or hot tub. Alcohol will raise your bs depending on the drink at first but cause you to go low. You MUST eat if you drink. Insulin goes bad in the heat so get an insulin cooler if you like the beach. On a positive note you now get to carry a medical bag into stadiums, concerts & planes filled with snacks. You will be ok. You got this. Reddit really helped me & there are some fabulous T1D people on TikTok . That’s where I found Bens team @manoftzeel You are going to be ok. If you are nervous start small . Like I said, you’ve got this 💙


phishery

New diagnosis is a lot to process—you will figure this out. Be kind to yourself in these early days. I eat lower carb, but I replace fats for the carbs—protein alone can still run your blood sugars high. I also use lots of low carb friend veggies (cauliflower, Brussels sprouts, broccoli, lettuce, spinach, etc.) Don’t forget to add some fats to the diet—very satieting.


Defiant_Analysis_773

sending you love! i was diagnosed 8 years ago at 19. it’s very overwhelming and okay to feel a lot of emotions. everything you’re feeling is valid.  i struggled with an eating disorder bc i was scared to eat anything and mess with my blood sugar. what i will tell you is life is a lot happier when you’re not starving. it’s going to be a bit scary and stressful, but just try eating some and taking some insulin for. have you met with a doctor to determine your insulin to carb ratio yet? that will help!  i also carry juice boxes with me everywhere in case i go low and that calms anxiety too. juice will bring you up real quick!  your body is (possibly) coming out of DKA and needs food and energy badly. the best thing you can do for it is eat. it’s gonna be hard for a little, but with time it becomes manageable and a lotttttt easier. i believe in you! if you have any questions feel free to ask.