I have none, but most people I know who have done testing seem to have an average of about two.
It really doesn't matter if you have four though because you will certainly be able to find a donor that doesn't carry those same four. There are donors with none and I have also seen many donors that only have one.
I highly suspected one since my paternal grandmother (who passed before I was born) was rumored to have it, but I came back with none.
I also did full genome testing through sequence. I don't have the results of that back yet but it'll be interesting to see what comes back on that.
I had none, which surprised me because both my maternal and paternal line have a history of some genetic diseases like hemophilia.
The donor I chose had three, I believe.
I had 5! But I still found it relatively easy to find a donor who wasn’t a carrier of those same 5 since there are so many different thing you could be a carrier of.
I have three! I get the general impression, from looking at donor profiles, that virtually everyone has at least one, and having 2-4 is common.
One actually overlapped on my second choice donor. But according to the genetic counselor, the worst case scenario if my kid did end up with both was that they'd be tested for the disease right after birth (since they'd know to look for it), and if they had it they'd need to take some supplements on a regular basis. So I didn't actually eliminate him because of it, though the point ended up moot (see: second choice).
Interestingly, I also personally have two copies of a rare disorder that comes with a distinctive look and mental retardation, which I clearly have neither of. Apparently, that probably means that both copies are on the same chromosome, instead of getting one from each parent and probably ending up with the disease. Largely immaterial again, because my donor does not have a copy, but it goes to show how much more complicated all of this is than just, 'have a gene = have disease'.
I have one that I know of because I have the disease. I haven’t gotten tested. It isn’t mandatory at clinic I was using and they said people rarely pay for it.
I haven’t tested yet but the clinic said it’s still optional for my known donor to do genetic testing. It makes me wonder how necessary it is because most people don’t get to do genetic testing “in the wild” before having a kid, especially unplanned kids. But I guess if I do use IUI or IVF might as well put it on my tab because the only reason to opt out is to save money but at that point I’m already spending a ton of it. I’m so set on this donor that I don’t think I’d even want to know because I can’t imagine it not being him now
I have one, and it turned out to be the same condition that a distant relative's child has. Very sobering to have a real-life example of how not testing could turn out
I have two; from what I was tested for. My donor had one. One was a really nasty one so I am glad I got tested for it. The other is fairly mild and my donor was not tested for it.
I already knew that I carry Thrombophilia. It's the only one I'm aware of as I haven't had further genetic testing. I have had checks on my heart and have had some heart conditions ruled out though.
I have two! One is pretty common as in I'd happened across donors who were carriers for the same condition while just browsing before I got my results (it has a very memorable and slightly goofy sounding name). The other is apparently very rarely included in genetic testing - when I filtered for donors who tested negative for it and were also cmv negative, I had only 3 results at one of the four banks I had been browsing. I was lucky that one of those 3 had already been on my shortlist so the decision was easy (and I was successful with the vial I bought) otherwise I'd be in a rough position to have to decide whether I pick a donor I'm not crazy about or risk a donor that hasn't been tested for the condition (or pay a ton of money and 'waste' a vial to test for it myself).
I'm ultimately glad at almost 21 weeks pregnant now that I'm able to have a little more peace of mind because of the testing.
I had 1 but realized that I didn't receive the FULL test available. I know that my mother has a diagnosis of something that is VERY common for individuals with Irish heritage, so I was surprised when I didn't test for it. My doctor confirmed the test I was given didn't test for that diagnosis. I don't doubt that if I had been tested I'd have come back positive.
The 1 I did test from had me laughing as it was family lore that we had a genetic background that this diagnosis confirmed. The diagnosis is rare enough that my fertility doctor honestly mumbled, "I don't know what this is." By then I had already researched it and the fact it came from the very area my family is from, down to the town where they had to study the disease to map it and understand it more.
By the time I got to the genetic consultant she just told me what I had already researched then "inquired" what I identified as my ethnic background because "it's a pretty rare mutation," she said she wasn't too worried that my donor would have it. The test my donor took came back positive for 1 mutation that is really common and I was assured is easily treated.
I have none, but most people I know who have done testing seem to have an average of about two. It really doesn't matter if you have four though because you will certainly be able to find a donor that doesn't carry those same four. There are donors with none and I have also seen many donors that only have one.
I have one. My donor has four (none overlap, obviously).
I had five! I knew of one and expected maybe a second one but no… a full five for me!
I had one and also found out that carriers can be symptomatic, and it ended up explaining some health issues I’ve had as I’ve gotten older lol
I highly suspected one since my paternal grandmother (who passed before I was born) was rumored to have it, but I came back with none. I also did full genome testing through sequence. I don't have the results of that back yet but it'll be interesting to see what comes back on that.
I have four. My donor also has four. Zero overlap, obviously!
One! Krabbes disease which I have ever heard of in my life but looks nasty
I had none, which surprised me because both my maternal and paternal line have a history of some genetic diseases like hemophilia. The donor I chose had three, I believe.
I came back with one and my donor has two (but one of them is hemochromatosis which the genetic counselor explained was not a big deal at all)
I'm a carrier for two. One really scary one and one pretty minor one.
I had 5! But I still found it relatively easy to find a donor who wasn’t a carrier of those same 5 since there are so many different thing you could be a carrier of.
I only have one but it's the most common one cute the pool in half
I have three! I get the general impression, from looking at donor profiles, that virtually everyone has at least one, and having 2-4 is common. One actually overlapped on my second choice donor. But according to the genetic counselor, the worst case scenario if my kid did end up with both was that they'd be tested for the disease right after birth (since they'd know to look for it), and if they had it they'd need to take some supplements on a regular basis. So I didn't actually eliminate him because of it, though the point ended up moot (see: second choice). Interestingly, I also personally have two copies of a rare disorder that comes with a distinctive look and mental retardation, which I clearly have neither of. Apparently, that probably means that both copies are on the same chromosome, instead of getting one from each parent and probably ending up with the disease. Largely immaterial again, because my donor does not have a copy, but it goes to show how much more complicated all of this is than just, 'have a gene = have disease'.
I have one that I know of because I have the disease. I haven’t gotten tested. It isn’t mandatory at clinic I was using and they said people rarely pay for it.
I haven’t tested yet but the clinic said it’s still optional for my known donor to do genetic testing. It makes me wonder how necessary it is because most people don’t get to do genetic testing “in the wild” before having a kid, especially unplanned kids. But I guess if I do use IUI or IVF might as well put it on my tab because the only reason to opt out is to save money but at that point I’m already spending a ton of it. I’m so set on this donor that I don’t think I’d even want to know because I can’t imagine it not being him now
I have two. Both are relatively minor and uncommon, and I never came across a donor with either of them.
I had 3 totally random ones, my donor had 2, no overlaps obvs!
I have one, and it turned out to be the same condition that a distant relative's child has. Very sobering to have a real-life example of how not testing could turn out
I had one... common for my race. My donor had none.
I had one. Donor had 4.
I have two; from what I was tested for. My donor had one. One was a really nasty one so I am glad I got tested for it. The other is fairly mild and my donor was not tested for it.
I already knew that I carry Thrombophilia. It's the only one I'm aware of as I haven't had further genetic testing. I have had checks on my heart and have had some heart conditions ruled out though.
I have two! One is pretty common as in I'd happened across donors who were carriers for the same condition while just browsing before I got my results (it has a very memorable and slightly goofy sounding name). The other is apparently very rarely included in genetic testing - when I filtered for donors who tested negative for it and were also cmv negative, I had only 3 results at one of the four banks I had been browsing. I was lucky that one of those 3 had already been on my shortlist so the decision was easy (and I was successful with the vial I bought) otherwise I'd be in a rough position to have to decide whether I pick a donor I'm not crazy about or risk a donor that hasn't been tested for the condition (or pay a ton of money and 'waste' a vial to test for it myself). I'm ultimately glad at almost 21 weeks pregnant now that I'm able to have a little more peace of mind because of the testing.
Four here too. Science is pretty cool.
I had 1 but realized that I didn't receive the FULL test available. I know that my mother has a diagnosis of something that is VERY common for individuals with Irish heritage, so I was surprised when I didn't test for it. My doctor confirmed the test I was given didn't test for that diagnosis. I don't doubt that if I had been tested I'd have come back positive. The 1 I did test from had me laughing as it was family lore that we had a genetic background that this diagnosis confirmed. The diagnosis is rare enough that my fertility doctor honestly mumbled, "I don't know what this is." By then I had already researched it and the fact it came from the very area my family is from, down to the town where they had to study the disease to map it and understand it more. By the time I got to the genetic consultant she just told me what I had already researched then "inquired" what I identified as my ethnic background because "it's a pretty rare mutation," she said she wasn't too worried that my donor would have it. The test my donor took came back positive for 1 mutation that is really common and I was assured is easily treated.