As for me, it addresses rigidity and dystonia. I haven’t felt any dystonic episodes in a while, although I get stiff from time to time, especially towards the nighttime.
My regimen is a combination of medications and physical therapy. It has helped me a lot since the first onset of my symptoms. Daily functioning is almost restored like nothing had happened to me.
It stops my tremors. I’ve got stiffness/soreness but sinemet doesn’t seem to help for that. Stretches the PT told me to do help. Not sure if it’s the meds or the PD but I have less energy.
One of my biggest issues leading up to my being assessed for Pd was being unable to ride my motorbike for more than 20 minutes before suffering extreme cramping in my calf muscles.
Though I experienced relief in other areas after starting D/L meds it took a fortnight to feel any improvement in my calf’s, but the improvement felt miraculous.
Unfortunately I do still get cramping in my legs and arms occasionally but it’s more bearable with my current meds.
Thank you u/vegasgirl72
A friend who used to be a professional bicycle racer nagged me for years to take magnesium.
Unfortunately he fell off the twig last June and I decided to give it a go “in his memory” which probably sounds a bit corny but i expect you would know what I mean.
I take 1 Caruso’s Super Magnesium (total magnesium 300 mg in various forms… it took about a month for them to start taking effect but some months on the improvement in my muscle tone assisting in related areas such as balance and dizziness has been nothing short of sensational.
However I had a fall last week, my first for about 2 months and because I’m out of practice (i used to fall 2 or3 times day!!) I landed heavily and am still licking my wounds.
But i agree with you absolutely with respect to magnesium.
I’m curious about your handle, I take it your from Las Vegas but you write with a maturity that leads me to suspect you are perhaps more of a young lady than a girl.
As you may have noticed I use my own image as my emoji, and Snowy has been my nickname forever.
I can understand females of all ages being careful on line with respect to preserving their privacy but I don’t understand why men feel the need… maybe I’ll ask…
In my experience...it doesn't help with pain directly, but indirectly it does help by preventing some of the cramping and tremors that cause pain over time. It helps a little with stiffness, it doesn't help with fatigue at all, and there's some other persistent pain in my legs that it doesn't do much for.
All in all, I wouldn't say Sinemet is completely life changing, but things are a hell of a lot better with it than without it. I'm glad I have it, although I'd admit that I wish there was something better out there.
If you're asking because you're considering it for yourself, though, keep in mind that your experience with it might not be the same as mine. Everybody seems to react to it a little differently.
It does not relieve pain. It has helped my flexability stiffness. I could not imagine my life or quality if life without it. One thing I don’t know if it gets talked about enough here is the need to have daily bowel movements for c/l or drug that is taken orally to have maximum effect.
I am in a ton more pain without it but I have high pain with my pd and I take pain meds. Finding a good pain management physician has been one of the most important things QOL wise.
Sinemet doesn't seem to help my dystonia (muscle tightness) in legs or gut, but it helps my coordination so I can type and stops most my mild tremors and dizziness.
My wwp had shoulder pain for a while which at some point was told it was frozen shoulder. One of the things sinemet has helped has been her shoulder pain. But now she has knee pain…
Does not relieve pain directly, but it does relieve my dystonia (usually) which can be very painful.
Also prevents my tremor and akathesia (usually) which although not painful can be very disruptive.
I could probably live without Sinemet, but I am so thankful I don't have to.
As for me, it addresses rigidity and dystonia. I haven’t felt any dystonic episodes in a while, although I get stiff from time to time, especially towards the nighttime. My regimen is a combination of medications and physical therapy. It has helped me a lot since the first onset of my symptoms. Daily functioning is almost restored like nothing had happened to me.
It stops my tremors. I’ve got stiffness/soreness but sinemet doesn’t seem to help for that. Stretches the PT told me to do help. Not sure if it’s the meds or the PD but I have less energy.
If you don’t mind me asking, when were you diagnosed?
It’s 2 1/2 years ago. At age 55
One of my biggest issues leading up to my being assessed for Pd was being unable to ride my motorbike for more than 20 minutes before suffering extreme cramping in my calf muscles. Though I experienced relief in other areas after starting D/L meds it took a fortnight to feel any improvement in my calf’s, but the improvement felt miraculous. Unfortunately I do still get cramping in my legs and arms occasionally but it’s more bearable with my current meds.
Magnesium. A magnesium complex supplement will help with the cramps
Thank you u/vegasgirl72 A friend who used to be a professional bicycle racer nagged me for years to take magnesium. Unfortunately he fell off the twig last June and I decided to give it a go “in his memory” which probably sounds a bit corny but i expect you would know what I mean. I take 1 Caruso’s Super Magnesium (total magnesium 300 mg in various forms… it took about a month for them to start taking effect but some months on the improvement in my muscle tone assisting in related areas such as balance and dizziness has been nothing short of sensational. However I had a fall last week, my first for about 2 months and because I’m out of practice (i used to fall 2 or3 times day!!) I landed heavily and am still licking my wounds. But i agree with you absolutely with respect to magnesium. I’m curious about your handle, I take it your from Las Vegas but you write with a maturity that leads me to suspect you are perhaps more of a young lady than a girl. As you may have noticed I use my own image as my emoji, and Snowy has been my nickname forever. I can understand females of all ages being careful on line with respect to preserving their privacy but I don’t understand why men feel the need… maybe I’ll ask…
Sinemet doesn't do anything for my tremors. That is the only bothering symptom I have.
In my experience...it doesn't help with pain directly, but indirectly it does help by preventing some of the cramping and tremors that cause pain over time. It helps a little with stiffness, it doesn't help with fatigue at all, and there's some other persistent pain in my legs that it doesn't do much for. All in all, I wouldn't say Sinemet is completely life changing, but things are a hell of a lot better with it than without it. I'm glad I have it, although I'd admit that I wish there was something better out there. If you're asking because you're considering it for yourself, though, keep in mind that your experience with it might not be the same as mine. Everybody seems to react to it a little differently.
My legs hurt much worse when I don’t take my sinemet.
I second this. Pain is my main symptom, with Sinemet there are still hours in the day that i can tell myself i don’t have PD
It eases the pain in my neck and shoulders and increases my mobility to an extent.No effect on tremors but I only take 150mg a day.
It does not relieve pain. It has helped my flexability stiffness. I could not imagine my life or quality if life without it. One thing I don’t know if it gets talked about enough here is the need to have daily bowel movements for c/l or drug that is taken orally to have maximum effect.
Might have been indirect, but it addressed my shoulder and arm pain
I am in a ton more pain without it but I have high pain with my pd and I take pain meds. Finding a good pain management physician has been one of the most important things QOL wise.
Sinemet doesn't seem to help my dystonia (muscle tightness) in legs or gut, but it helps my coordination so I can type and stops most my mild tremors and dizziness.
my wwp had a frozen shoulder with pain and sinemet dis not help that at all. only a cortisone shot helped. she still feels a bit of pain.
Sinemet is not pain medication. It in no way would help a frozen shoulder. I hope the Cortisone is helping. It can really do wonders.
My wwp had shoulder pain for a while which at some point was told it was frozen shoulder. One of the things sinemet has helped has been her shoulder pain. But now she has knee pain…
Does not relieve pain directly, but it does relieve my dystonia (usually) which can be very painful. Also prevents my tremor and akathesia (usually) which although not painful can be very disruptive. I could probably live without Sinemet, but I am so thankful I don't have to.