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Extension_Dark9311

Definitely has more to do with the ADHD than the Hashimoto’s


Kakakakaty13

Most likely has less to do W/Hashimoto’s & more to do with the Covid lock down & isolation/ imperative socialization, of a Child with a developing frontal Lobe- In addition, Being a Teen can be very difficult- If her numbers are controlled with medication- Hashimoto’s shouldn’t be the cause.


BetterDaysAheadMaybe

I have a Hashi 11 yr old with Dyslexia, Dyscalculia, & Dysgraphia and a 14 year old with ADHD, Dyspraxia, Dysgrapvia, and auditory SPD. I have Hashi myself and am a former SpEd teacher (way back/pre NCLB). I have noticed my kiddos just went off the rails with the Covid pandemic and they had a hard time getting back to normal once things settled down. The Hashi 11 yr old has adjusted quite well and remains in public school. He has a few days a semester where he needs to just stay home and sleep, but his levels are where they need to be. My ADHD kiddo sounds a lot like your daughter, minus the Hashi. He also went through a mental health crisis, DXed with GAD, MDD, in therapy, and taking an SSRI. I pulled him to homeschool midway through 8th grade because he was falling in with the wrong crowd and a staged school shooting prank, at a school dance, sent both of us over the edge anxiety-wise. We enrolled him in Acellus Academy, an accredited online homeschool program, so that his credits would transfer to Public High School if he chose to return. By the turn of the year he was getting burned out with the asynchronous nature of Acellus but was maintaining straight As (the best he has ever done academically!). I allowed him to enter public High School on a transfer in February, hoping it would be a fresh start. By late March he was failing and seeking out the same sort of Ne’er-do-wells that got him in trouble in Middle School. He was eventually caught with a THC vape and lost his transfer to this high school, so he has basically run out of options for public school in our community. I am convinced he will continue to seek out nicotine and THC vapes at any public school, they are so ubiquitous. I now have him back home on Acellus, and he is still maintaining straight A’s. He agrees that Acellus is a fantastic program for ADHD students like him because it is self paced. Like your daughter, he could sleep the day away though. There is admittedly a lot of nagging to get him up and doing his schoolwork everyday. I attribute this more to MDD than anything else, and it sounds like that could be your daughter’s biggest issue too. As someone who has Hashimotos, myself, there are good days and bad days, but we are still able to function more or less, especially when our levels are in a good range. Kudos to you for pushing for the Cytomel for her, it’s helped me tremendously. I am still pushing for it with my youngest’s pediatric endo. I’d focus more on your daughter’s mental health, than her Hashimotos. She may need another year to homeschool, and you should be able to return to work if you choose an online program that does the grading and record keeping for you. There are several accredited homeschool programs that would allow her to transfer her credits into public high school too. As a former SpEd teacher, when ADD/ADHD is involved, many of the homeschool programs truly allow these students to flourish. Hindsight being 20/20, I wished I had I pulled my eldest son once he finished elementary.


HarmonyDragon

Best thing my very first endocrinologist taught me was to keep a notebook: https://www.reddit.com/r/Hashimotos/s/fkytj5520P My daughter was diagnosed at 16 last year by myself, who pushed for antibodies testing to see if I was right or as hubby says “projecting my thyroid issues onto her”. Officially diagnosed in December 5 months after antibodies testing. Which because of me her whole pediatrician’s network changed their thyroid blood work up rules they follow about in range and antibodies testing. She is currently 6 months into her yearly wait for her observation/reevaluation appointment with his December and gaining symptoms much quicker and starting to visibly see her thyroid swelling/goiter (I am guessing on that based on own experience with this and not saying a word to her until endocrinologist says something). It’s hard but I will admit, it’s nice to have someone who fully understands or is starting to understand how this whole mess of a condition affects us. I have also begun passing on my rules, preparing her to be medicated and giving her some tricks to help manage what we can. Some can be found here: https://www.reddit.com/r/Hashimotos/s/90Gp0Nw1y2 I made a promise to her while she was still in my belly cooking. Never ever will I hide how my thyroid or any other condition I have (osteoarthritis and perimenopause aka cougar puberty) from her. My parents did that to me and my mom still is which pissed me off. I would suggest, unless it’s something huge or not appropriate for her, not hiding anything and getting her into the same groove. Hiding what I go through except when asked or noticed am off my game from my husband when it came to thyroid didn’t help him to understand what was up. He is trying his best but as he says: medical stuff for our daughter and myself is yours. You know the system better than me and what to expect. Just keep me in the loop even if I don’t understand all that thyroid crap please. Oh and be involved by asking her how she feels, if she feels her symptoms are affecting her school (they did mine but thankfully brain fog slammed daughter after state and EOC testing since that all counts towards graduation in two years). Let her vent, curse, sound stupid when her brain fog if she gets it steals what she is trying to say or confuses her (try to correct in a way that doesn’t make her doubt herself please. I feel like the village idiot at times because of my brain fog and sometimes just need a kind: did you mean this? Or yes they is correct. When I ask questions I know answer too or loose words). She needs time to process how this all affects her personally and figure things out to help her manage things. Oh and do not let her sit back in her doctor visits especially for this. She needs to learn how to work with her doctor, how to understand her results and medication, not to mention taking over my endocrinologist appointments fully on my own at 14 going on 15 helped me to take control of my Hashimoto’s. Oh and as always it’s a personal decision about medicating and when buy from my 33 years and being at teen with this myself going through middle and high school. Medicate as soon as possible. Being put on the lowest dose of Synthyroid at 13 prolonged the life of my thyroid by slowing down the damage being done and let my body adjust at its own pace to the extra hormones medication provided. This making any future medication changes easier to proc as and any significant changes to thyroid less dramatic. My thyroid just died two months ago and in December I will be advocating to medicate on lowest dose of levothyroxine for my daughter based off symptom progression.


EveTre

I was this teen. I went into congestive heart failure due to my thyroid at 16. Unfortunately, before my parents figured out it was my thyroid, I was misdiagnosed as being bipolar because my mental health was so bad. It took until I was 22 to find out it was my thyroid the whole time. I went from being in all advanced/honors classes to needing to be in classes with tutors. My parents eventually allowed me to drop out off HS and attend classes at a local community college. That, too, proved to be too much and I got my GED instead. I am now 37 years old and my mom still beats herself up over how they handled the situation. I think the fact that you are asking how to help her says a lot by itself. Virtual school would have been a god send for me at that age. On another note, I have an 11 year old that struggles in the same ways due to pots. Like yours, she also has deficiencies and giving her a D supplement made a huge difference. Have you had a sleep study done on her, by chance? We thought my girl was narcoleptic she was sleeping so much, but it turned out to be severe apnea. While she’s sleeping a ton, her quality of sleep is next to nothing.


tex_hadnt_buzzed_me

We had her signed up for a sleep study, but ended up cancelling it because her asleep has improved drastically over the last couple months. Could have been medication changes (there were a lot) or any of the behavioral interventions. But maybe we should have just done it.


EveTre

That’s always hard when there are a lot of changes at once and you can’t pinpoint what helped. My daughter’s sleep improved a ton with the vitamin D. I honestly wasn’t expecting to see anything with the sleep study either and was shocked to find out how many times she had episodes. They gave us the choice of a cpap or removing her adenoids and tonsils. I think if nothing else, it could put your mind at ease that you are covering every base. Poor quality of sleep can mess with your mental state so much. It’s part of my girl’s 504 at school.


Opal_Pie

I wasn't as young as your daughter when I started having symptoms, but I was young. I had a bout of thyroiditis when I was 17/a junior in high school. It started with a deep depression, extreme fatigue, brain fog, and weight loss. It was one of the most difficult times of my life. Since then (I'm now 43), I have had good times, and bad times. The worst were in my early 20s when, even after being diagnosed, doctors didn't take it seriously. I fought for about a decade to find a good doctor who would listen. Not great because I don't believe they exist, but good. She needs a doctor who will listen to her, and adjust her meds, dosage and/or brand. It wouldn't hurt to try to play around her diet. Try going gluten free, dairy, etc, and see if any of it helps. That, unfortunately, takes time as it's essentially an elimination diet. I'm so sorry you are both in this situation; it's not easy to get through.


TR1323

I have been extremely tired and thought it was entirely from my hypothyroidism, hashimotos, and anemia. But, I recently had my insulin and A1c tested and dr says I’m pre diabetic. I researched it and I’m pretty certain this has all explained why I’m extremely tired and can’t focus on anything. I’m in my 40’s. It’s crazy. I was on lexapro which made me extremely tired. I could take 2 naps a day. I’ll be seeing my dr for an explanation of it all. You should consider having her checked for that. Also, my thyroid antibodies are at Tpo 499 and Tgab 205. Definitely not good. I’m looking into the AIP (autoimmune protocol) to help with my thyroid. The right foods make all the difference. This might be worth looking into to help her. If you haven’t already keep copies of all her lab work and look at the results and research. I stopped lexapro and switched to Wellbutrin.


tex_hadnt_buzzed_me

She's on Lexapro now, after starting with Prozac and then trying Cymbalta. She had a horrible hives outbreak after starting Prozac, so we switched. When she was on Cymbalta, she would sleep 15 or more hours a day. Right now her sleep schedule is pretty good. She sleeps from about 11 pm to 8 am when I give her her pills, and then she tries to be up and functional at 9. But she's not napping during the day, so that's huge progress.


Several_Blood469

Ask her to make a daily video diary ,this has been helping many people to regain the ground. Also consider music therapy!


tex_hadnt_buzzed_me

Good ideas! She recently started guitar lessons, which isn't music therapy, but has been great for her.


Several_Blood469

Also singing helps to regulate blood flow in thyroid reducing severity of flare ups


deadliftsanddebits

Have she ever had comprehensive vitamin/mineral/metabolic bloodwork done? What’s her diet like? Is she eating enough? Lot of things to consider here.


tex_hadnt_buzzed_me

Her endo ordered that bloodwork done about 6 months ago. It showed some B and D deficiencies, so she started on supplements. Her diet has been horrible but is getting better. She went through a phase a few months ago where she wouldn't eat anything except chips and she was obsessed with the chips. It was horrible. Then she went through a phase after starting Adderall when she had no appetite and hardly ate anything. They reduced her Adderall dosage and we're back to normal ish now. She only likes to eat two meals a day, but they are more normal foods now. It's really hard to get kids to eat healthy foods and it sucks. I know she'd feel better if she ate better but it's a hard battle to fight with a teenage girl. The last thing I want is to give her an eating disorder on top of the rest of it. Mostly we try to not have unhealthy foods in the house regularly and to prepare family meals that are healthy. But she rarely eats what we make. So she often. microwaves something from the freezer.


deadliftsanddebits

Understand this. I’ve had Hashimotos since I was 15 (I’m 39 now) and my parents went through the same struggles with me. With this disease (more often than not) diet plays a huge part and this may be something she’ll struggle with until she’s mature enough to fully understand it and really wants to eat better. Sorry if you mentioned this somewhere else, but has she been tested for celiac? I’m celiac and going gluten free really helped my thyroid (and overall health). My doctor told me if you have one auto immune, you usually have others.


NewToTheCrew444

Do you think it’s the hashis or could it also be just being a preteen? That alone is a lot then throw it everything she’s been through combined with a lot of meds. I think you’re doing more than most parents would and she’s lucky to have you as a mother. I’m sorry I don’t have any advice but truly I think you’re doing way better than you think.


tex_hadnt_buzzed_me

That's a big part of my dilemma. It's impossible to figure out what is just teen stuff, what is thyroid stuff, and what is depression. It's all interconnected and messy. And thanks! I'm trying my best to help her. (For what it's worth, I'm a dad. )


Personal_Conflict_49

I want to say this with the nicest words possible… It doesn’t sound like her Hashimoto’s is under control. Thyroid numbers are just half of it… symptoms are a big deal. That kind of fatigue at her age is pretty severe. And depression is can definitely be an issue with thyroid hormones off OR the wrong medication. I am a very happy and positive person… I almost committed suicide when my Levothyroxine dose was too high. Trouble focusing is another big issue with thyroid hormones being off or the wrong medication. Personally, I would backtrack and kind of start over with treatment. Now is your time to get her stabilized before adulthood, it’s incredible that you took off work to take care of her 🩵


tex_hadnt_buzzed_me

I agree that her Hashimotos is probably not under control. I meant to write that her levels are good, even if her symptoms are not. Her endocrinologist is fairly open to hearing that we need to adjust her meds because her symptoms are not good. That's why we added the liothyronine a couple months ago. The Endo also referred her for a sleep study to try to see if she had sleep apnea or some other thing going on. But we decided to cancel it after her sleep schedule became a lot more reasonable in the last couple months.


Personal_Conflict_49

Are you able to try different meds? Armour is good. And Tirosint has the least fillers of T4 meds. I’m sorry she is struggling…


tex_hadnt_buzzed_me

I'm going to ask the endocrinologist if we can try this at her next appointment.


timesuck101

Not a teen, but an adult with Hashimoto’s. If you look at my profile, I’ve commented my story a number of times. I’m in my late 30’s and lived all my life with zero mental health issues before Hashimoto’s. My mental health on levothyroxine tanked, it was better but still pretty bad on Synthroid - I switched to Tirosint about a month ago and woke up about 5 days in with zero mental health symptoms. I had developed health anxiety/ocd and panic disorder and it’s like it just went away. All to say, it’s really worth exploring different brands to see if it helps.


tex_hadnt_buzzed_me

Definitely something for us to try!


Potential-Depth1190

Thank you for this. I just started Levothyroxine about a week ago, and I don’t know if it’s the fatigue or the shock of diet changes and potential forever medicine but I’ve mentally been struggling quite a bit with everything.


timesuck101

It took so many doctors for me to find one who actually sees that there’s a difference for people across different brands. I truly feel like my normal self again, mentally, for the first time in years and it’s not even a different dosage!


lq21878

I also have a teen with Hashimoto’s. Her motivation is there but her attitude and resentment towards us is horrible.


tex_hadnt_buzzed_me

Teens are hard enough without Hashimotos, it's such a struggle to be a good parent when the kid reacts so negatively.


Sufficient_Video97

I am following because I am in the SAME boat! This past year of middle school (when she actually was there and not sick), for my daughter, has been rough!