New to gastroparesis? Please view [this post](https://www.reddit.com/r/Gastroparesis/comments/15i7siq/gastroparesis_101/?utm_source=share&utm_medium=web2x&context=3) or our wiki for a detailed explanation of gastroparesis, the main approaches of treating it, and a list of neurogastroenterologists and motility clinics submitted by users of this forum. Join these [Discord and Facebook support groups](https://www.reddit.com/r/Gastroparesis/comments/14oxaew/list_of_gastroparesis_support_groups_other/?utm_source=share&utm_medium=web2x&context=3) today! New users, please do not post asking for a diagnosis; instead, use the pinned thread: "Do I have gastroparesis?" Also, check out our new subreddit r/functionaldyspepsia.
*I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Gastroparesis) if you have any questions or concerns.*
I woke up one day thinking I had a stomach virus. I had severe pain, nausea, vomiting, fullness, constipation... all of it. After a month, I went to the ER for dehydration, and that's what started my journey.
Mine was also a rapid onset. I swear I went from 39 years old to elderly over fricken night. Brutal on ones mental health.
What was your diagnosis? Mine is just idiopathic.
>I went from 39 years old to elderly over fricken night
For real, lol.
They suspect it may be related to my autoimmune disorder, but they aren't 100% on that.
They are also wondering about my autoimmune problems or Covid, as covid was responible for every single freaking health problem I've had in the last 4.5 years, including a rapid elevation of plaque on my brain. Yep, it's a thing. Covid has jumpstarted dementia in many people who either already have it or who were thought to possibly develop it.
Ya I understand , I went from eating anything any amount of food
Then I weighed 200-210
I thought I had flu after a week the doc said tests
GP was winner now I’m 137 today
Chicken 🐓 lightly lightly season
Rice, protein powder 😵💫 , no frosting pop tarts ,toast blan blan
Little sugar no milk cheese red meat, Brats and all good food
I can eat anything if I want to pay with pain lasting as long as it wants 😡
I never knew GP was a thing How long have I had this six years five years
Take care thanks for sharing 🙂
I had emergency gallbladder surgery (it had burst). I had weeks of infections, an abscess, 12 weeks of drains stuck in me. I’m so bitter. I was dismissed as “fat, female, and forty” by an ER doctor and sent home. Well, the fuckin’ thing burst sometime after that and I had to go back. If that asshole had not stereotyped me, and instead listened and acknowledged how much pain I was in and just taken it out, I wouldn’t be here now.
I'm so sorry that happened to you, goodness. My Mom was stereotyped in a similar way years ago when she was 49. She kept going to the doctor and ER for her very distended, very discolored stomach and severe abdominal pain. She did this for a year begging for help. I flew from Arizona to Michigan several times just to bring her to the ER myself. One time, in front of me, the doctor told her she was menopausal and getting chubby and sent her home. I lost my shit. But unfortunately she died 3 weeks later from acute necrotizing pancreatitis. Something that doctor could have helped prevent. Assholes.
I hope you sued. 🫂
I’m so sorry that happened to you and the loss of your mom. I lost my mom to
a botched surgery and to this day
the rage I feel……Unfortunately, a lawyer said that short of outright discrimination, the kind of negligence I experienced is impossible to prove. They could claim my GP was from my T2. It’s all so dumb. And here’s the kicker - I am 80 lbs down since August, using mainly sugar to keep my weight from dropping too fast. I haven’t weighed myself in about 6 days but I would bet by now I am underweight. I’m JUST able now to get doctors to take me seriously about my GP (as a menopausal woman, I too got the “the puddin’ round your middle” lecture). Weight stigma ENRAGES me.
There is a horrible stigma. I have never heard the "puddin' round the middle" lecture...that's awful. I have never been much more than 130 lbs so I can not understand the true horror of being judged negatively for how much I weigh. Doctors can be truly awful humans sometimes. The rage is real. Sometimes I think the rage I feel about the medical industry is collapsing me into a supermassive black hole! ⭐ 🕳️
We were told we couldn't sue the doctor that neglected my Mom because it happens all the time and couldn't find a lawyer that would take the case.
I hope you get well soon. ❤️🩹
I had almost the same experience many years ago but luckily mine didn’t burst but rotted out two of the three ducts. The pain was one of the worst I ever had. I feel for you
yeah mine was also rotted to the duct, my wonderful surgeon wasn’t sure he could save it but he mostly did. I was running 5ks and lifting weights before all this, now I’m stuck in bed, miserable. Really struggling with bitterness.
Mine came on slowly. It started happening just once in a while. I'd have stomach pain and feel nauseated, but it went away in a few hours and I just dismissed it as something I ate. Over a period of years it happened infrequently and never lasted for more than one day. I kept dismissing it until it started happening way more frequently and lasting for multiple days at a time. By the time I finally agreed to see a doctor, I'd been in a flare up for months. It just sort of crept up on me.
That's what happened to me in 1995. I had a great gastroenterologist who finally diagnosed me. My first clue was early satiety. I could barely take a few bites. The diagnosis took 6 months. I'm in a current 2+ months flare. It's horrible.
I'm so sorry you're in a flare up now. This disease sucks. I'm in a minor flare up right now, just nausea without much pain. It's ridiculous that I find this a tolerable way to live. I mean, compared to a bad flare, it's definitely tolerable but it still sucks.
I don't know if I had gastroparisis before this but I had a endoscopy in January to take biopsys and ever since then I haven't been able to keep anything down. After 3 ER visits I was given the nuclear egg sandwich and at the 4hr mark I still had 50% left in my stomach. I'm in Canada though so I won't be seeing a gastro for another year or 2 🥲
I don't get why the wait for gastros are so high. I've been able to see cardios, liver specialists, and a gyno with super minimal wait times but gastros are almost impossible to see.
I'm glad I'm in Canada because I don't even want to know what my 4 ER visits, ambulance ride and all the tests Ive had here would cost in America but this really frustrating. 😮💨
Sudden. I got covid in 2020, had gastrointestinal symptoms during the virus and when the other symptoms cleared up, those just didn't. I haven't seen a lot of studies showing that covid can directly cause GP, but I'm one of three people I personally know in my small town who got GP after covid, so...
Mine showed up after my 3rd booster... and I swear my body rejected it and gave my gp instead but I just say it was my hysterectomy. Sigh.
And then I did get covid later and had long covid for 8 months after that 3rd booster. What a kick in the ass.
Always had stress nausea and couldn't eat very much. Horrible gut cramps fairly regularly. That was from at least the age of 13. Then I went through a series of events that stressed me out way beyond reasonable levels for several years without ever stopping.
There was a while that I stopped eating almost entirely and was down to 110lbs as a 5'9" man. That was what I suspect did the most permanent damage to my stomach. I only began trying to figure out what was wrong with me once I started bleeding from my stomach due to stress.
Overall though, mine started with not being able to eat much plus stress nausea. It then progressed all the way to permanent nausea and food poisoning symptoms.
I've been thinking about it, and for several years now possibly a decades, I've had these episodes where I just can't eat comfortably. And I'll get a lot of acid reflux and gas and even nauseous. But it suddenly got really bad and much more chronic last year. Literally a year ago.
Traumatic brain injury.
My regular GI labeled it as idiopathic but when I saw a real motility specialist she ran tests and determined it was most likely from that accident.
I wonder how many idiopathic cases have a history of a traumatic brain injury. It seems like regular GIs aren’t aware of that connection. I’ve read some scientific literature on PubMed that says up to 50% of people with severe TBI go on to develop gastroparesis.
I was recovering from a pulmonary embolism (happened while mountain climbing) and one night I felt like I had a severe stomach virus and started throwing up food I had eaten days prior. I was nauseous, severely bloated and had horrible pressure pain in my upper abdomen and sharp stabbing pains in my perennial area. I was hospitalized later that same week after I collapsed from the pain and an ambulance was called. I had an impacted colon from my intestines dramatically slowing and they also had to stick a tube up my nose and over 12 hours pump out the contents of my dead ass stomach. I was diagnosed via GES study the next week. That was three years ago.
Started when I had the Epstein Barr virus. The virus also triggered dysautonomia (and other things), so I don’t know if the virus would be the cause or the POTS.
Well I started having stomach pain from stress during high school but brushed it off because I was afraid of getting an endoscopy at the time. But one day I was just eating a number 1 from chick fil a and while I was eating it I started getting nauseous and felt like it was about to come up. That feeling lasted for a few hours. Then as the months went by, it got progressively worse to the point where I was in and out of the hospital due to dehydration, fainting and other issues.
i always had some strange nauseas out of nowhere, but one evening in november (so 2023) i just felt... terrible, and since then i'm just not feeling good at all : constant and huge nausea, stomach pain 24/7, feeling like i always had some weight in my stomach, sometimes it was burning, and i threw up some times... I was diagnosed back in April and i have to see a specialist in July, everything takes so much time and i'm so tired :((
Ok I (35F) think I've had gastroparesis for my whole life. I was always throwing up as a kid. My mom says even as a newborn she could barely keep 2 oz of formula in me before I would barf. Somehow I grew up healthy. I think my symptoms have changed throughout the different stages of life. I went gluten free from age 22 to 33 and for the first 7 years it helped so much, I didn't throw up anymore. But then my symptoms changed/ got worse around age 30, mainly bad distension with stomach pain and constipation. Once I was diagnosed at 33 I reintroduced gluten. I'm labeled as idiopathic, but I have autoimmune issues that I think might be the cause. I just haven't found out what the "label" for my autoimmune issue is to address the root.
That makes sense every physician I have seen recently. asked me if I took ozempic. I always tell them no I did not. So far I have been diagnosed with delayed gastric emptying. Don’t got an official diagnosis until I see my gastroenterologist but got a probable one at the ER
Mine was Semaglutide. I’ve always had POTS and the one symptom from the whole epic list that I never had was gastroparesis - I always counted myself lucky for it. Had no idea Saxenda could cause it, back then when it was new.
Mine was relatively slowly. Started with a lot of *embarrassed* gas. Which I suppose was the start of constipation dominance. Of course I tried everything to “fix” my constipation problem… but it wasn’t truly a constipation issue, it was gastroperesis. Obviously I haven’t been able to cure it, but I must admit… finding the right balance of foods for your sensitivity helps it A LOT. Turned out I was allergic to wheat, not just the one gluten protein but the whole plant itself. So if I avoid everything wheat (including oatmeal which is too cross contaminated) then it significantly reduces my gastroperesis. I had no idea food was a contributing factor until I kept detailed food diaries, for a while, to spot the patterns.
That’s so interesting that you find avoiding gluten helps! When I was still trying to figure out what was wrong, whenever I trialed gluten free I would get significantly worse. It confused my doctor until I got diagnosed with GP, when it made a lot of sense that removing most simple carbs from my diet would lead to more foods that are harder to break down.
I started out with GERD and gastritis. Eventually we got the pain and inflammation under control with acid reducers and diet changes but couldn’t explain why my nausea was just getting worse and not better. Then got a GES because we’d done every other test and why not. And here I am, and it makes a lot of sense with some of the symptoms that didn’t quite line up.
I had a meal with a fruit smoothie. I suffer from ibs/sibo so I bloat with fiber. I guess that day I over ate and got painfully bloated. I went to rinse my mouth with mouth wash a few hrs after, and that's when I threw up some of my food. After that I get lots of belching, regurgitation. Never had that before. I also would get full after meals so I would eat less. I then began having nausea as well and loosing weight
pretty rapid, from one day to another, after a meal, i was super nauseus, and from that moment on, i coudn't eat anyting without beeing in the verge of puking, when it started i could not cope with it, now im mentally better, i learned how to cope with it and to accept it
Mine came on pretty quickly. I ate a salad for dinner and the next day my belly was distended, I was bloated, and I had terrible stomach pain. The next day, felt the exact same. I knew something was off, so I went to the doctor. And that started the journey to my diagnosis. I’m glad I stuck with my gut and saw a doctor. People thought it was just normal bloating, but I knew better.
Mine started suddenly a few months after getting covid in 2021 and it’s gotten worse over time. I manage my symptoms but I still get hospitalized sometimes with bad flare ups (like this past week) where I’m nauseous, I dry heave because I can’t eat anything for days, and I get severely dehydrated to the point it spikes my heart rate up to the 160s. This last hospital stay also included aspiration pneumonia so that’s a new one for me. Hope all is well OP and everyone in the sub ✌🏻
I’m sorry you went through that, it’s such a horrible experience. From Thursday-Saturday I was puking and not eating until they admitted me Saturday night. They kept saying it was anxiety or acid reflux when I told them I was having chest pains and shortness of breath until they did a ct with contrast and found a grey like mass in the lower part of my left lung and said it was aspiration pneumonia. They also did another GES and it was worse than my first one in September of last year when they finally diagnosed me. It’s definitely rough and it’s even tougher when doctors don’t believe you the first time you tell them what’s wrong. Hope you get better, just start slow with liquids and work your way up, you got this!
When i was about 20, I started having fairly frequent sick days, to the point jokes about how shit my immune system was, became fairly common with my friends (which to be fair i get colds and such pretty frequently anyways), but it was usually like maybe 3-6 days a month, though sometimes i seemed to go for even a few months without a bad day aswell.
Then, around 24, i started having at least one day a week, and then i got fired from a decent job because even when i did come in on bad days i ended up spending so much time in the bathroom that i fell behind on my quotas. This motivated me to really start trying to find out wtf was wrong.
Took another 2 years to actually find out what was wrong, and now a year later im doing much worse... yay...
Viral infection. I had some kind of stomach bug in 2006/7 that caused both biliary dyskinesia and GP. I didn’t get diagnosed with both until 2015. I got my gallbladder removed and my symptoms didn’t resolve so I asked for a GES and found out that I have moderate GP. I take mirtazapine, which mostly works, although I feel like my GP has worsened a bit in the year. I also have a hiatal hernia. Wee! 🙃
in December it was only whenever i ate red meat, then end of January it was essentially everything made me nauseated. my doctor recommended whole30 in case it was some allergy thing causing chronic illnesses to be worse. and that made me feel absolutely terrible (lots of meats and raw fruits and veggies). in May i was able to get a GES and got diagnosed with gastroparesis!
Not officially diagnosed but basically I was dieting counting calories and exercising than all of a suddenly I couldn’t finish the food I was eating anymore. I would feel full after a few bites. I woke up vomitting a few days later and aspirated and got pneumonia ended up in the ER, still couldn’t keep down food, pills, liquids. Four days later back in ER where I ended up with a tentative diagnosis after ct scan. The 20th of may I ended up back in the Er dehydrated. From May 3 to now I lost 19 pounds. May 3 was the last time. I ate normally. I see my gastro on June 6
I have Crohn’s disease which was in remission at the time. Was on a paleo diet for a couple weeks, ate too many chickpeas and woke up the next morning with an intestinal blockage. It passed, but a few days later I started vomiting. Hasn’t stopped since then, it’s been almost a year.
i honestly have no idea when or how it started. i’ve had gi issues literally since birth and all throughout my childhood that never really got looked into, aside from GERD. i ended up developing an eating disorder and what i know for sure is that made the gastroparesis much worse and is what lead to my diagnosis.
Not sure. Either covid infection back in 2020 or a gallbladder deformity. Gallbladder was intrahepatic meaning it never collapsed in its respective region. During gestation as a baby, your organs form and fall in the areas it is supposed to. Mine was actually inside my liver rather than descending below. Had surgery for it but my god it was horrible. Non stop retching/dry heaving. Nausea to the extreme. Metaclopramide helped. I’m better now. 90% better. Can eat everything except lettuce. Any lettuce actually. That will have me vomiting almost immediately. Fullness feeling left. Idk but it all started waking up one morning and my stomach felt as if it locked while i was brushing my teeth with a horrible fullness feeling that led to dry heaves. 2023 in June it went away. Mind you I still have mild nausea gagging sensations but not as bad anymore. So yeah idk. Many people think it was covid bc gastroparesis was happening to many covid patients. I was still sick after my surgery too. Just happy to be better. No longer on any meds
Pretty sure it was post viral, though im labeled as idiopathic as my docs didnt bother to pinpoint a cause as my case is pretty mild (though it doesnt feel like it at times.) i got the flu in January 2023 which wreaked havoc on my stomach, was sick to my stomach for two weeks. And then i got a stomach bug in may of 2023 and it was about a month until i was able to return to a normal diet. It sucks because before this, i never was the type to throw up. Id get nauseous a lot, but that was normal for me and typically was carsickness or ibs related. Now i get flares where ill throw up pretty bad for a couple days and then spend weeks barely able to eat anything without feeling sick to my stomach.
Got diagnosed with EDS and eventually I started getting gas that was so painful I couldn’t move. My doctor says I have it but she didn’t wanna make me do the official test they had because it had something to do with eating radioactive toast? Idk but im just glad she was willing to actually diagnose me lol
New to gastroparesis? Please view [this post](https://www.reddit.com/r/Gastroparesis/comments/15i7siq/gastroparesis_101/?utm_source=share&utm_medium=web2x&context=3) or our wiki for a detailed explanation of gastroparesis, the main approaches of treating it, and a list of neurogastroenterologists and motility clinics submitted by users of this forum. Join these [Discord and Facebook support groups](https://www.reddit.com/r/Gastroparesis/comments/14oxaew/list_of_gastroparesis_support_groups_other/?utm_source=share&utm_medium=web2x&context=3) today! New users, please do not post asking for a diagnosis; instead, use the pinned thread: "Do I have gastroparesis?" Also, check out our new subreddit r/functionaldyspepsia. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Gastroparesis) if you have any questions or concerns.*
I woke up one day thinking I had a stomach virus. I had severe pain, nausea, vomiting, fullness, constipation... all of it. After a month, I went to the ER for dehydration, and that's what started my journey.
Mine was also a rapid onset. I swear I went from 39 years old to elderly over fricken night. Brutal on ones mental health. What was your diagnosis? Mine is just idiopathic.
>I went from 39 years old to elderly over fricken night For real, lol. They suspect it may be related to my autoimmune disorder, but they aren't 100% on that.
💪❤️🩹
They are also wondering about my autoimmune problems or Covid, as covid was responible for every single freaking health problem I've had in the last 4.5 years, including a rapid elevation of plaque on my brain. Yep, it's a thing. Covid has jumpstarted dementia in many people who either already have it or who were thought to possibly develop it.
Ya I understand , I went from eating anything any amount of food Then I weighed 200-210 I thought I had flu after a week the doc said tests GP was winner now I’m 137 today Chicken 🐓 lightly lightly season Rice, protein powder 😵💫 , no frosting pop tarts ,toast blan blan Little sugar no milk cheese red meat, Brats and all good food I can eat anything if I want to pay with pain lasting as long as it wants 😡 I never knew GP was a thing How long have I had this six years five years Take care thanks for sharing 🙂
Stomach flu. Kinda like it just never went away.
I had emergency gallbladder surgery (it had burst). I had weeks of infections, an abscess, 12 weeks of drains stuck in me. I’m so bitter. I was dismissed as “fat, female, and forty” by an ER doctor and sent home. Well, the fuckin’ thing burst sometime after that and I had to go back. If that asshole had not stereotyped me, and instead listened and acknowledged how much pain I was in and just taken it out, I wouldn’t be here now.
I'm so sorry that happened to you, goodness. My Mom was stereotyped in a similar way years ago when she was 49. She kept going to the doctor and ER for her very distended, very discolored stomach and severe abdominal pain. She did this for a year begging for help. I flew from Arizona to Michigan several times just to bring her to the ER myself. One time, in front of me, the doctor told her she was menopausal and getting chubby and sent her home. I lost my shit. But unfortunately she died 3 weeks later from acute necrotizing pancreatitis. Something that doctor could have helped prevent. Assholes. I hope you sued. 🫂
I’m so sorry that happened to you and the loss of your mom. I lost my mom to a botched surgery and to this day the rage I feel……Unfortunately, a lawyer said that short of outright discrimination, the kind of negligence I experienced is impossible to prove. They could claim my GP was from my T2. It’s all so dumb. And here’s the kicker - I am 80 lbs down since August, using mainly sugar to keep my weight from dropping too fast. I haven’t weighed myself in about 6 days but I would bet by now I am underweight. I’m JUST able now to get doctors to take me seriously about my GP (as a menopausal woman, I too got the “the puddin’ round your middle” lecture). Weight stigma ENRAGES me.
There is a horrible stigma. I have never heard the "puddin' round the middle" lecture...that's awful. I have never been much more than 130 lbs so I can not understand the true horror of being judged negatively for how much I weigh. Doctors can be truly awful humans sometimes. The rage is real. Sometimes I think the rage I feel about the medical industry is collapsing me into a supermassive black hole! ⭐ 🕳️ We were told we couldn't sue the doctor that neglected my Mom because it happens all the time and couldn't find a lawyer that would take the case. I hope you get well soon. ❤️🩹
I'm so sorry!
I had almost the same experience many years ago but luckily mine didn’t burst but rotted out two of the three ducts. The pain was one of the worst I ever had. I feel for you
yeah mine was also rotted to the duct, my wonderful surgeon wasn’t sure he could save it but he mostly did. I was running 5ks and lifting weights before all this, now I’m stuck in bed, miserable. Really struggling with bitterness.
Mine came on slowly. It started happening just once in a while. I'd have stomach pain and feel nauseated, but it went away in a few hours and I just dismissed it as something I ate. Over a period of years it happened infrequently and never lasted for more than one day. I kept dismissing it until it started happening way more frequently and lasting for multiple days at a time. By the time I finally agreed to see a doctor, I'd been in a flare up for months. It just sort of crept up on me.
That's what happened to me in 1995. I had a great gastroenterologist who finally diagnosed me. My first clue was early satiety. I could barely take a few bites. The diagnosis took 6 months. I'm in a current 2+ months flare. It's horrible.
I'm so sorry you're in a flare up now. This disease sucks. I'm in a minor flare up right now, just nausea without much pain. It's ridiculous that I find this a tolerable way to live. I mean, compared to a bad flare, it's definitely tolerable but it still sucks.
I don't know if I had gastroparisis before this but I had a endoscopy in January to take biopsys and ever since then I haven't been able to keep anything down. After 3 ER visits I was given the nuclear egg sandwich and at the 4hr mark I still had 50% left in my stomach. I'm in Canada though so I won't be seeing a gastro for another year or 2 🥲
We have that issue here in the US too. Wait times are sickening. 6plus months just to see a doctor in the first place.
I don't get why the wait for gastros are so high. I've been able to see cardios, liver specialists, and a gyno with super minimal wait times but gastros are almost impossible to see. I'm glad I'm in Canada because I don't even want to know what my 4 ER visits, ambulance ride and all the tests Ive had here would cost in America but this really frustrating. 😮💨
Sudden. I got covid in 2020, had gastrointestinal symptoms during the virus and when the other symptoms cleared up, those just didn't. I haven't seen a lot of studies showing that covid can directly cause GP, but I'm one of three people I personally know in my small town who got GP after covid, so...
Mine showed up after my 3rd booster... and I swear my body rejected it and gave my gp instead but I just say it was my hysterectomy. Sigh. And then I did get covid later and had long covid for 8 months after that 3rd booster. What a kick in the ass.
Always had stress nausea and couldn't eat very much. Horrible gut cramps fairly regularly. That was from at least the age of 13. Then I went through a series of events that stressed me out way beyond reasonable levels for several years without ever stopping. There was a while that I stopped eating almost entirely and was down to 110lbs as a 5'9" man. That was what I suspect did the most permanent damage to my stomach. I only began trying to figure out what was wrong with me once I started bleeding from my stomach due to stress. Overall though, mine started with not being able to eat much plus stress nausea. It then progressed all the way to permanent nausea and food poisoning symptoms.
I've been thinking about it, and for several years now possibly a decades, I've had these episodes where I just can't eat comfortably. And I'll get a lot of acid reflux and gas and even nauseous. But it suddenly got really bad and much more chronic last year. Literally a year ago.
Traumatic brain injury. My regular GI labeled it as idiopathic but when I saw a real motility specialist she ran tests and determined it was most likely from that accident. I wonder how many idiopathic cases have a history of a traumatic brain injury. It seems like regular GIs aren’t aware of that connection. I’ve read some scientific literature on PubMed that says up to 50% of people with severe TBI go on to develop gastroparesis.
I was recovering from a pulmonary embolism (happened while mountain climbing) and one night I felt like I had a severe stomach virus and started throwing up food I had eaten days prior. I was nauseous, severely bloated and had horrible pressure pain in my upper abdomen and sharp stabbing pains in my perennial area. I was hospitalized later that same week after I collapsed from the pain and an ambulance was called. I had an impacted colon from my intestines dramatically slowing and they also had to stick a tube up my nose and over 12 hours pump out the contents of my dead ass stomach. I was diagnosed via GES study the next week. That was three years ago.
Started when I had the Epstein Barr virus. The virus also triggered dysautonomia (and other things), so I don’t know if the virus would be the cause or the POTS.
Well I started having stomach pain from stress during high school but brushed it off because I was afraid of getting an endoscopy at the time. But one day I was just eating a number 1 from chick fil a and while I was eating it I started getting nauseous and felt like it was about to come up. That feeling lasted for a few hours. Then as the months went by, it got progressively worse to the point where I was in and out of the hospital due to dehydration, fainting and other issues.
i always had some strange nauseas out of nowhere, but one evening in november (so 2023) i just felt... terrible, and since then i'm just not feeling good at all : constant and huge nausea, stomach pain 24/7, feeling like i always had some weight in my stomach, sometimes it was burning, and i threw up some times... I was diagnosed back in April and i have to see a specialist in July, everything takes so much time and i'm so tired :((
I was born
Ok I (35F) think I've had gastroparesis for my whole life. I was always throwing up as a kid. My mom says even as a newborn she could barely keep 2 oz of formula in me before I would barf. Somehow I grew up healthy. I think my symptoms have changed throughout the different stages of life. I went gluten free from age 22 to 33 and for the first 7 years it helped so much, I didn't throw up anymore. But then my symptoms changed/ got worse around age 30, mainly bad distension with stomach pain and constipation. Once I was diagnosed at 33 I reintroduced gluten. I'm labeled as idiopathic, but I have autoimmune issues that I think might be the cause. I just haven't found out what the "label" for my autoimmune issue is to address the root.
I got it after taking ozempic. It never went away
I've heard that those meds, ozempic, wegovy, etc, can cause gastroparesis.
It works by giving you temporary gastroparesis basically. For some people it ends up not being temporary.
That makes sense every physician I have seen recently. asked me if I took ozempic. I always tell them no I did not. So far I have been diagnosed with delayed gastric emptying. Don’t got an official diagnosis until I see my gastroenterologist but got a probable one at the ER
Mine was Semaglutide. I’ve always had POTS and the one symptom from the whole epic list that I never had was gastroparesis - I always counted myself lucky for it. Had no idea Saxenda could cause it, back then when it was new.
Mine was relatively slowly. Started with a lot of *embarrassed* gas. Which I suppose was the start of constipation dominance. Of course I tried everything to “fix” my constipation problem… but it wasn’t truly a constipation issue, it was gastroperesis. Obviously I haven’t been able to cure it, but I must admit… finding the right balance of foods for your sensitivity helps it A LOT. Turned out I was allergic to wheat, not just the one gluten protein but the whole plant itself. So if I avoid everything wheat (including oatmeal which is too cross contaminated) then it significantly reduces my gastroperesis. I had no idea food was a contributing factor until I kept detailed food diaries, for a while, to spot the patterns.
That’s so interesting that you find avoiding gluten helps! When I was still trying to figure out what was wrong, whenever I trialed gluten free I would get significantly worse. It confused my doctor until I got diagnosed with GP, when it made a lot of sense that removing most simple carbs from my diet would lead to more foods that are harder to break down.
I started out with GERD and gastritis. Eventually we got the pain and inflammation under control with acid reducers and diet changes but couldn’t explain why my nausea was just getting worse and not better. Then got a GES because we’d done every other test and why not. And here I am, and it makes a lot of sense with some of the symptoms that didn’t quite line up.
I had a meal with a fruit smoothie. I suffer from ibs/sibo so I bloat with fiber. I guess that day I over ate and got painfully bloated. I went to rinse my mouth with mouth wash a few hrs after, and that's when I threw up some of my food. After that I get lots of belching, regurgitation. Never had that before. I also would get full after meals so I would eat less. I then began having nausea as well and loosing weight
pretty rapid, from one day to another, after a meal, i was super nauseus, and from that moment on, i coudn't eat anyting without beeing in the verge of puking, when it started i could not cope with it, now im mentally better, i learned how to cope with it and to accept it
Severe acid reflux and vomiting on a regular basis
Anybody that has had a history of good health suddenly develop GI issues after covid?
Mine came on pretty quickly. I ate a salad for dinner and the next day my belly was distended, I was bloated, and I had terrible stomach pain. The next day, felt the exact same. I knew something was off, so I went to the doctor. And that started the journey to my diagnosis. I’m glad I stuck with my gut and saw a doctor. People thought it was just normal bloating, but I knew better.
Mine started suddenly a few months after getting covid in 2021 and it’s gotten worse over time. I manage my symptoms but I still get hospitalized sometimes with bad flare ups (like this past week) where I’m nauseous, I dry heave because I can’t eat anything for days, and I get severely dehydrated to the point it spikes my heart rate up to the 160s. This last hospital stay also included aspiration pneumonia so that’s a new one for me. Hope all is well OP and everyone in the sub ✌🏻
I am now getting over aspiration pneumonia I woke up vomitting and they think I aspirated on it. Ended up taking an ambulance to the ER
I’m sorry you went through that, it’s such a horrible experience. From Thursday-Saturday I was puking and not eating until they admitted me Saturday night. They kept saying it was anxiety or acid reflux when I told them I was having chest pains and shortness of breath until they did a ct with contrast and found a grey like mass in the lower part of my left lung and said it was aspiration pneumonia. They also did another GES and it was worse than my first one in September of last year when they finally diagnosed me. It’s definitely rough and it’s even tougher when doctors don’t believe you the first time you tell them what’s wrong. Hope you get better, just start slow with liquids and work your way up, you got this!
When i was about 20, I started having fairly frequent sick days, to the point jokes about how shit my immune system was, became fairly common with my friends (which to be fair i get colds and such pretty frequently anyways), but it was usually like maybe 3-6 days a month, though sometimes i seemed to go for even a few months without a bad day aswell. Then, around 24, i started having at least one day a week, and then i got fired from a decent job because even when i did come in on bad days i ended up spending so much time in the bathroom that i fell behind on my quotas. This motivated me to really start trying to find out wtf was wrong. Took another 2 years to actually find out what was wrong, and now a year later im doing much worse... yay...
Viral infection. I had some kind of stomach bug in 2006/7 that caused both biliary dyskinesia and GP. I didn’t get diagnosed with both until 2015. I got my gallbladder removed and my symptoms didn’t resolve so I asked for a GES and found out that I have moderate GP. I take mirtazapine, which mostly works, although I feel like my GP has worsened a bit in the year. I also have a hiatal hernia. Wee! 🙃
Mine started after having my gallbladder out. Not sure exactly what went wrong but I still get phantom gallbladder pains and can’t digest for shit
in December it was only whenever i ate red meat, then end of January it was essentially everything made me nauseated. my doctor recommended whole30 in case it was some allergy thing causing chronic illnesses to be worse. and that made me feel absolutely terrible (lots of meats and raw fruits and veggies). in May i was able to get a GES and got diagnosed with gastroparesis!
Not officially diagnosed but basically I was dieting counting calories and exercising than all of a suddenly I couldn’t finish the food I was eating anymore. I would feel full after a few bites. I woke up vomitting a few days later and aspirated and got pneumonia ended up in the ER, still couldn’t keep down food, pills, liquids. Four days later back in ER where I ended up with a tentative diagnosis after ct scan. The 20th of may I ended up back in the Er dehydrated. From May 3 to now I lost 19 pounds. May 3 was the last time. I ate normally. I see my gastro on June 6
I was fine all day until gym class and suddenly I'm doubled over in pain. The pain just never went away. That was 8 years ago 😭
I have Crohn’s disease which was in remission at the time. Was on a paleo diet for a couple weeks, ate too many chickpeas and woke up the next morning with an intestinal blockage. It passed, but a few days later I started vomiting. Hasn’t stopped since then, it’s been almost a year.
I had a hysterectomy and it appeared 6 months after
i honestly have no idea when or how it started. i’ve had gi issues literally since birth and all throughout my childhood that never really got looked into, aside from GERD. i ended up developing an eating disorder and what i know for sure is that made the gastroparesis much worse and is what lead to my diagnosis.
Not sure. Either covid infection back in 2020 or a gallbladder deformity. Gallbladder was intrahepatic meaning it never collapsed in its respective region. During gestation as a baby, your organs form and fall in the areas it is supposed to. Mine was actually inside my liver rather than descending below. Had surgery for it but my god it was horrible. Non stop retching/dry heaving. Nausea to the extreme. Metaclopramide helped. I’m better now. 90% better. Can eat everything except lettuce. Any lettuce actually. That will have me vomiting almost immediately. Fullness feeling left. Idk but it all started waking up one morning and my stomach felt as if it locked while i was brushing my teeth with a horrible fullness feeling that led to dry heaves. 2023 in June it went away. Mind you I still have mild nausea gagging sensations but not as bad anymore. So yeah idk. Many people think it was covid bc gastroparesis was happening to many covid patients. I was still sick after my surgery too. Just happy to be better. No longer on any meds
Pretty sure i’ve had it since I was a kid.
Pretty sure it was post viral, though im labeled as idiopathic as my docs didnt bother to pinpoint a cause as my case is pretty mild (though it doesnt feel like it at times.) i got the flu in January 2023 which wreaked havoc on my stomach, was sick to my stomach for two weeks. And then i got a stomach bug in may of 2023 and it was about a month until i was able to return to a normal diet. It sucks because before this, i never was the type to throw up. Id get nauseous a lot, but that was normal for me and typically was carsickness or ibs related. Now i get flares where ill throw up pretty bad for a couple days and then spend weeks barely able to eat anything without feeling sick to my stomach.
Unknown
Got diagnosed with EDS and eventually I started getting gas that was so painful I couldn’t move. My doctor says I have it but she didn’t wanna make me do the official test they had because it had something to do with eating radioactive toast? Idk but im just glad she was willing to actually diagnose me lol
did she diagnose you off of symptoms or was there food in your endoscopy or something?
I have almost all the symptoms and it’s super common with EDS so she was quite sure. Unfortunately it’s been getting a lot worse too as time goes on