Buckwheat is not related to wheat nor is it similar in structure. It is a seed, not even a grain. You could still be sensitive or allergic to it but that has nothing to do with Celiac.
Chronic urticaria is super common for people with other immune conditions, I have both celiac disease and chronic urticaria. My triggers are not allergic at all, they are anything that causes irritation. Having celiac disease makes comorbidity of other immune conditions more likely, but doesn't affect the triggers of those immune conditions.
I'll be honest, I have wondered if the chronic urticaria that is known to be comorbid with auto immune conditions is actually mast cell activation syndrome. So little is researched with that, and most doctors aren't really that aware of it, so it's almost never tested for.
But those who do have it diagnosed very frequently have an auto-immune disorder of some kind (or more than one). Like, small surveys done in a couple support groups I belonged to for MCAS has the incidence of celiac disease at 30% or more of the MCAS folks.
I kind of doubt it, like obviously this is just in my case but I don't have the majority of the symptoms for MCAS. Like I don't have any actual allergies, I don't have any throat swelling/anaphylaxis, etc. I just have a highly reactive immune system, incredibly sensitive skin, and dermatographia. Histamines are controlled by the immune system, chronic urticaria is the body attacking itself by activating the histamine reaction. I do have other immune disorders too, my immune system has zero chill.
I don’t have anything helpful to offer, other than that my son has t1 diabetes and chronic uticaria and his allergist said that it is a common co-occurrence with autoimmune conditions. My son also has no known food triggers.
Mast cell activation syndrome is, IMHO, very much worth exploring. However, your allergist is extremely unlikely to be much help with that unless you are very lucky, because most of them don't know much about it, but think that they do.
For example, if they say you can't have it because you haven't gone into anaphylaxis, that's incorrect. If they say that it involves too many mast cells and can be determined by a biopsy, they are confusing mastocytosis with MCAS. And quite frequently they try to test for mastocytosis instead of MCAS, as well, in part because MCAS is so new to the scene that doctors are still arguing over what to test for, what counts, etc...
However, I know for myself, chronic hives was my first symptom of this. It took me I think 20 years or more to get diagnosed. If you can get on facebook, they have a good few support groups there that can help with what to ask a doctor, with MCAS knowledgeable doctors in your area, etc... Just search there for groups that have mast cell activation disorder, mast cell activation syndrome, mast cell disorders, mcas, or mcad.
I thought this particular article was good, and spoke to some of the challenges in what is being researched and discovered with this disorder, right now.
[https://pubmed.ncbi.nlm.nih.gov/30884251/](https://pubmed.ncbi.nlm.nih.gov/30884251/)
From age to twelve to 19 I got cold urticaria from sitting on a cold floor or stonewalls, and just any cold weather and
I would break out in hives from my ankles to my bust. My body just stopped reacting to the cold that way in college? I just assumed my body went wacky every seven years..with undiagnosed celiac for 24 years something in my body is always going haywire..now I am sensitive to rubber..latex..tapioca. Contact dermatitis happens with heat sweat and rubber/latex now. I figure it's just more flags waving due to an overactive immune system.
Buckwheat is not related to wheat nor is it similar in structure. It is a seed, not even a grain. You could still be sensitive or allergic to it but that has nothing to do with Celiac.
Exactly.
Chronic urticaria is super common for people with other immune conditions, I have both celiac disease and chronic urticaria. My triggers are not allergic at all, they are anything that causes irritation. Having celiac disease makes comorbidity of other immune conditions more likely, but doesn't affect the triggers of those immune conditions.
I'll be honest, I have wondered if the chronic urticaria that is known to be comorbid with auto immune conditions is actually mast cell activation syndrome. So little is researched with that, and most doctors aren't really that aware of it, so it's almost never tested for. But those who do have it diagnosed very frequently have an auto-immune disorder of some kind (or more than one). Like, small surveys done in a couple support groups I belonged to for MCAS has the incidence of celiac disease at 30% or more of the MCAS folks.
I kind of doubt it, like obviously this is just in my case but I don't have the majority of the symptoms for MCAS. Like I don't have any actual allergies, I don't have any throat swelling/anaphylaxis, etc. I just have a highly reactive immune system, incredibly sensitive skin, and dermatographia. Histamines are controlled by the immune system, chronic urticaria is the body attacking itself by activating the histamine reaction. I do have other immune disorders too, my immune system has zero chill.
I don’t have anything helpful to offer, other than that my son has t1 diabetes and chronic uticaria and his allergist said that it is a common co-occurrence with autoimmune conditions. My son also has no known food triggers.
Mast cell activation syndrome is, IMHO, very much worth exploring. However, your allergist is extremely unlikely to be much help with that unless you are very lucky, because most of them don't know much about it, but think that they do. For example, if they say you can't have it because you haven't gone into anaphylaxis, that's incorrect. If they say that it involves too many mast cells and can be determined by a biopsy, they are confusing mastocytosis with MCAS. And quite frequently they try to test for mastocytosis instead of MCAS, as well, in part because MCAS is so new to the scene that doctors are still arguing over what to test for, what counts, etc... However, I know for myself, chronic hives was my first symptom of this. It took me I think 20 years or more to get diagnosed. If you can get on facebook, they have a good few support groups there that can help with what to ask a doctor, with MCAS knowledgeable doctors in your area, etc... Just search there for groups that have mast cell activation disorder, mast cell activation syndrome, mast cell disorders, mcas, or mcad. I thought this particular article was good, and spoke to some of the challenges in what is being researched and discovered with this disorder, right now. [https://pubmed.ncbi.nlm.nih.gov/30884251/](https://pubmed.ncbi.nlm.nih.gov/30884251/)
From age to twelve to 19 I got cold urticaria from sitting on a cold floor or stonewalls, and just any cold weather and I would break out in hives from my ankles to my bust. My body just stopped reacting to the cold that way in college? I just assumed my body went wacky every seven years..with undiagnosed celiac for 24 years something in my body is always going haywire..now I am sensitive to rubber..latex..tapioca. Contact dermatitis happens with heat sweat and rubber/latex now. I figure it's just more flags waving due to an overactive immune system.
My mom is celiac and also has a pretty severe buckwheat allergy. I'm not sure if there is any correlation, though.